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LoveBeingMrsT
Love my Boys!
Member since 12/05 4648 total posts
Name:
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well i'm 2 for 2.
i'm so totally devistated. my ds 1 has sensory processing disorder, feeding issues, and low tone and now they suspect ds2 (only 6 1/2 months )has it all too.
we just had an e.i. eval and it's worse then i thought with the low tone. he also needs a swallowing study done. and too much other cr@p to write.
i'm so worried about my older ds with the future (school and friends) and now i have the same problems although probably more severe with ds#2.  
i feel lost,scared, and just awful.
Message edited 10/20/2009 3:37:45 PM.
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Posted 10/20/09 3:36 PM  |
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lbelle821
Arghhhhh
Member since 2/06 5285 total posts
Name:
Lisa
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Re: well i'm 2 for 2.
I know it's a fear in all of our minds when thinking of having more children. Take some time to process it yourself but know that at 6 1/2 months with EI involved the outcome will probably be better and quicker (not sure at what age you started DS at).
hang in there
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| Posted 10/20/09 4:45 PM |
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caliz
LIF Zygote
Member since 8/07 45 total posts
Name:
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Re: well i'm 2 for 2.
Just wanted to send some hugs. I'm sorry you are going through this. EI can do amazing things for our little ones and starting at 6 1/2 months is a great start. It can be overwhelming to project out into the future and think of all the things that might be a struggle for our little ones. Try to focus on the short term - one step at a time so to speak. You are a great mom who is getting her little ones the help they need. Just love them to bits and pieces and get all the support you can from family and friends to help keep your spirits up. This board is a great place to find support and solace when you are feeling lost and overwhelmed. I'll keep your family in my prayers.
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| Posted 10/20/09 4:54 PM |
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smdl
I love Gary too..on a plate!
Member since 5/06 32461 total posts
Name:
me
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Re: well i'm 2 for 2.
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| Posted 10/20/09 5:15 PM |
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maybebaby
LIF Adult
Member since 11/05 6870 total posts
Name:
Maureen
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Re: well i'm 2 for 2.
I'm so sorry to hear you are going through this. I have a little guy too (3 months old) and am constantly watching him for signs of sensory problems...its so hard to go through one child w/special needs that to think of doing it again is upsetting. But I hope that with therapies and with time things will be just fine. Your boys are adorable by the way, absolutely adorable. You will get through this!!! 
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| Posted 10/20/09 9:56 PM |
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lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
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Re: well i'm 2 for 2.
I think our DS' are about the same age! (Bry is a little over 2.5)
My DD is 5 months old, so, that also makes our babies about the same age.
As you may or may not know, my DD has Down Syndrome.
So, I can kind of say, I know how you feel.
DS is getting a ton of services and we already started EI for DD as soon as she came home from NICU!
Already, we (DH and I see a difference)
E.I. is AMAZING!! DS is taking off and with a lot of hard work, DD will hopefully too!
If you ever want to talk, FM me! I feel we have a lot in common!
Message edited 10/20/2009 10:15:51 PM.
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| Posted 10/20/09 10:15 PM |
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Re: well i'm 2 for 2.
Starting EI at 6.5 months is great. I'm sure you will see amazing progress starting so young!
I'm very worried with the new baby coming that she will have to go through the same things. At the same time though I have a lot of hope if she does. Lance did so well in EI... I cried as much when he was discharged as I did when he qualified.
I'm sure both of your boys will do wonderful! You're a great mom, and your giving them what they need for right now, so that they will have an amazing future ahead of them.
Hang in there!
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| Posted 10/21/09 9:03 AM |
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Re: well i'm 2 for 2.
I am so sorry to hear this. But by you taking action as young as he is, he will have the best chances!! I can't even begin to imagine how hard daily life is for you (I have read your prev posts with DS1) but know that we are all hear to support you!!!
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| Posted 10/21/09 9:50 AM |
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mom2aidan
2 boys & 1 girl :)
Member since 11/06 1874 total posts
Name:
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Re: well i'm 2 for 2.
Hang in there!
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| Posted 10/21/09 11:56 AM |
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smdl
I love Gary too..on a plate!
Member since 5/06 32461 total posts
Name:
me
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Re: well i'm 2 for 2.
You girls are so brave and so strong!
DH and I decided we could not deal with another child with special needs and decided not to have another one who most likely would be autistic too.
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| Posted 10/21/09 12:32 PM |
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maybebaby
LIF Adult
Member since 11/05 6870 total posts
Name:
Maureen
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Re: well i'm 2 for 2.
Posted by smdl
You girls are so brave and so strong!
DH and I decided we could not deal with another child with special needs and decided not to have another one who most likely would be autistic too.
Just out of curiosity..why do you assume your second would be autistic as well? I know that siblings have a higher chance of diagnosis...but only a bit higher than the general population. I know many people with a few typical children and one special needs...
I am not judging you whatsoever...I totally understand where you are coming from . It is very difficult to parent a special needs child. However, I just wanted to shed light on another side...my son has his issues but is such a great boy like all our kids are...and brings us so much joy that we decided if his sibling too were afflicted we would deal with it the same as we did Johnny.
Just wanted to show another viewpoint! I think everyone has to do what is right for them!
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| Posted 10/21/09 4:04 PM |
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A3CM
Avatar Title
Member since 9/08 3762 total posts
Name:
Mommy
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Re: well i'm 2 for 2.
Posted by smdl
You girls are so brave and so strong!
DH and I decided we could not deal with another child with special needs and decided not to have another one who most likely would be autistic too.
DH & I were debating this same issue, i knew in my heart at about 6 months my DS was autistic, but i still wanted another child...
at 15 months he was unoffically diagnosed as autistic and 18 months he was put on the spectrum...
i got pregnant when my DS was 14 months, and was scared and i still am, but i take each day as it comes, and i know one day my DS will be functioning in TRW. we do plan on mainstreaming him.. and he is in school now and that has really helped him socially
there is a greater risk if you were to have another boy, but we both knew when we met we wanted 2 kids.
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| Posted 10/21/09 6:28 PM |
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smdl
I love Gary too..on a plate!
Member since 5/06 32461 total posts
Name:
me
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Re: well i'm 2 for 2.
Posted by maybebaby
Posted by smdl
You girls are so brave and so strong!
DH and I decided we could not deal with another child with special needs and decided not to have another one who most likely would be autistic too.
Just out of curiosity..why do you assume your second would be autistic as well? I know that siblings have a higher chance of diagnosis...but only a bit higher than the general population. I know many people with a few typical children and one special needs...
I am not judging you whatsoever...I totally understand where you are coming from . It is very difficult to parent a special needs child. However, I just wanted to shed light on another side...my son has his issues but is such a great boy like all our kids are...and brings us so much joy that we decided if his sibling too were afflicted we would deal with it the same as we did Johnny.
Just wanted to show another viewpoint! I think everyone has to do what is right for them!
We went to a medical geneticist.
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| Posted 10/22/09 7:57 AM |
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Little-J-Mommy
I'm a Big Brother
Member since 5/06 8041 total posts
Name:
D
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Re: well i'm 2 for 2.
Posted by smdl
We went to a medical geneticist.
see now I'm confused and probably uninformed.
before I had my miscarriage, I asked my OB about genetic testing and such because ds has sensory issues and he told me there were no tests to determine autism and that it wasn't genetic. was he just misinformed?
although the thought is in the back of my mind, we also want to extend our family God willing.
but I can certainly see where you're coming from smdl. no judgements here. It's not easy, no matter which direction you go
to the OP....I'm a firm believer that God does not give us what we cannot handle. You will get through this and maybe because you were so aware of what to look for, EI will have a larger effect in a shorter time span. Your boys will always have each other to understand what the other is feeling and going through. Try to see the lining here. They will never feel alone or like there's no one in the world who understands them, kwim. All the same, it's so difficult to hear and to handle. I know you're a strong woman....you will be ok
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| Posted 10/22/09 9:46 AM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: well i'm 2 for 2.
Posted by smdl
You girls are so brave and so strong!
DH and I decided we could not deal with another child with special needs and decided not to have another one who most likely would be autistic too.
This si why we decided not to have any more kids too.
I am so sorry you are going through this, but for them to see it at such a young age is great for you, the earlie the intervention, the better.
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| Posted 10/22/09 10:26 AM |
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LoveBeingMrsT
Love my Boys!
Member since 12/05 4648 total posts
Name:
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Re: well i'm 2 for 2.
[thank you all so much for your kind words and support. i'm sure i'll need more of it as time goes on.
QUOTE
before I had my miscarriage, I asked my OB about genetic testing and such because ds has sensory issues and he told me there were no tests to determine autism and that it wasn't genetic. was he just misinformed?
although the thought is in the back of my mind, we also want to extend our family God willing.
Your boys will always have each other to understand what the other is feeling and going through. Try to see the lining here. They will never feel alone or like there's no one in the world who understands them, kwim. All the same, it's so difficult to hear and to handle. I know you're a strong woman....you will be ok
this so made me i never thought of it like this. thank you!
Message edited 10/22/2009 4:25:24 PM.
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| Posted 10/22/09 4:24 PM |
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Little-J-Mommy
I'm a Big Brother
Member since 5/06 8041 total posts
Name:
D
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Re: well i'm 2 for 2.
Posted by LoveBeingMrsT
[thank you all so much for your kind words and support. i'm sure i'll need more of it as time goes on.
QUOTE
before I had my miscarriage, I asked my OB about genetic testing and such because ds has sensory issues and he told me there were no tests to determine autism and that it wasn't genetic. was he just misinformed?
although the thought is in the back of my mind, we also want to extend our family God willing.
Your boys will always have each other to understand what the other is feeling and going through. Try to see the lining here. They will never feel alone or like there's no one in the world who understands them, kwim. All the same, it's so difficult to hear and to handle. I know you're a strong woman....you will be ok
this so made me i never thought of it like this. thank you!
anytime
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| Posted 10/23/09 12:33 AM |
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monkeybride
My Everything
Member since 5/05 20541 total posts
Name:
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Re: well i'm 2 for 2.
I am going through this with my DD and DS as well.
I recall your feeding issues and ours are not the same but DD have extreme, extreme food aversions. Both my kids have SID, low tongue. DS has a flat tongue. And the list goes on.
FM me if you need to vent or need some support. I know how unbelievably hard it is trying to care for 2 kids with all these extra needs.
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| Posted 10/26/09 4:10 PM |
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