lisad117
LIF Toddler
Member since 9/07 433 total posts
Name:
Lisa
|
Please Help- Genetic Disorder
Hello Everyone,
My friends son suffers from a rare genetic disorder called Sanfilippo Syndrome. This disease is a terminal genetic disorder which slowly takes away a child's ability to walk, talk, and eat. Most of these kids die in their early teen years confined to wheelchair and with a feeding tube. I've known Matthew since he was born and he is a sweet, loving kid and I can't bear the idea of him dying this awful death in only a few short years.
His mother along with some other parents started a foundation to find a cure and they need all of our help. Right now, they are trying to win a grant from Pepsi for $250,000 to fund research.
All you have to do is vote every day between today and January 31st. There are three ways to vote:
1. TEXT to contact “73774” (it stands for Pepsi) the message “105582”
2. ONLINE Vote at http://www.refresheverything.com/curesanfilippo with every valid email account you have (work, personal, yahoo, hotmail, gmail, etc.) After you vote, click the Facebook icon on lower right to share our voting link with everyone on your FB. Remember, the sound of the Pepsi can opening verifies you are now logged in. To cast your vote, you must click the ‘vote for this idea’ button again.
3. ONLINE VIA FACEBOOK You can upload a Pepsi application that lets you and your friends vote from your FB page. http://apps.facebook.com/pepsirefresh/idea Or, click on a
http://www.refresheverything.com/curesanfilippo voting link shared to your facebook. Or, click on LOGIN WITH FACEBOOK button on the top left of Pepsi login window. We are a 100% volunteer organization with NO paid employees. Please get everyone you know to vote!
I know that everyone has causes theat are important to them but I am hoping that since all you need to do is text in a vote every day, people can help. If you have any questions, please FM me. Thank you so much!!!
Lisa
|
