I don't know where else to put this....

I don't know where else to put this, but I think it can go on this board.

Do you yourself have good days and bad days. Since my daughter was diagnosed, some days I feel really strong and other days (like today) I feel like I'm crumbling. I try to stay positive for the most part, but today it's just getting the best of me.

Re: I don't know where else to put this....

Of course, these are our babies. We want them to have everything in life with little disappointment or struggle.

On days that are overwhelming, I just do whatever I can do be proactive or take time to cry.

This is such a supportive group ! You posted in the right place.

Re: I don't know where else to put this....

Absolutely. I definitely have good days and bad days. Since the death of my father in September it has been more bad days than good though. It has to be because my father's health was deteriorating after DS got the diagnosis in May so I don't think I had time on my hands to really think about the diagnosis much. Now it consumes me.

I'm moving on slowly, but things come up and sadden me. DS is getting the very best services and has come a long way since May. So for that I am happy. I find a lot of people take time to grieve the loss of the child they thought they were going to have. I believe mine is almost the opposite. I got over that quickly and set up all the things to get him on the right path to success. But lately I think about the loss of the life I thought I was going to have (hope that doesn't sound too bad). But then I think that this WAS the life I was meant to have. That little guy is mine because we were meant to be together. I take great solace in that.

Just know that you are not alone. Everyone has good and bad days. I hope that you have more good than bad!

Re: I don't know where else to put this....

Some days I wake up and I know it's going to be a great day. Sometimes it is, sometimes it not.

And some days are just bad bad days. Stressful days. Overwhelming!

Feel free to vent here. We are not a big group but I found the help and support is really a great way not feel alone in this journey.

Re: I don't know where else to put this....

Yes - and sometimes they come in spurts. 3 or 4 good days followed by a bad week. It gets a little easier. Someone posted a blog link a while ago and I read it often because I really feel like it defined my experience.

Link

We're here for you.

Re: I don't know where else to put this....

Just wanted to send you some

Re: I don't know where else to put this....

I am only 4 days into this, and mostly, I'm numb, or still processing. The day I found out and the following day were devestating, as if someone had died. That's the closest experience I can compare it to.

Then the last couple days have been a little better and I think well, he's still the same boy he was before we had a label.

But I know this isn't going to be so easy and there will be bad days again, along with good days.

Many to you.

Re: I don't know where else to put this....

Good, bad, smooth, overwhelming, upsetting, happy, sad, etc. I've had them all. I have days where I pick him up from his preschool or he does something new at home and am so happy with the progress I see him making. I had a day last week when I cried driving him home from his afterschool daycare because I saw two of the moms he started daycare with over 2 years ago and their kids are developing typically and mine isn't.

I will say that once we started services and got into a routine, everything seemed a little less daunting, less overwhelming. We do have bad days, but so do moms of typical kids. As they say in AA, just keep showing up. Keep doing what you have to do when you are feeling low. I found sometimes our teachers and therapists were great at supporting me emotionally too, if I were worried about something.

ETA: I also read Diary of a Mom's blog. I think she is great at putting so many of my thoughts and emotions into words and makes me feel less alone.

Message edited 4/18/2011 4:10:07 PM.