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Developmental ped- edit with new question for preemie moms
Can anyone recommend a developmental ped in the port Jeff area?
ETA- has anyone had a neonatal follow up with LIJ/ Cohens for a preemie?
Message edited 9/11/2017 5:37:13 PM.
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Posted 9/11/17 3:19 PM  |
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lightblue
LIF Adult
Member since 1/17 2249 total posts
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Re: Developmental ped
I believe some of the Dev Peds at Cohen's go to the Smithtown office some days of the week.
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| Posted 9/11/17 4:25 PM |
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Aries14
Can't plan life...
Member since 8/08 2860 total posts
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Developmental ped
Dr. Tarnok @ Cohen's. They have a smithtown office
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| Posted 9/11/17 4:36 PM |
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Developmental ped
Thanks!
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| Posted 9/11/17 5:36 PM |
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Chai77
Brighter days ahead
Member since 4/07 7364 total posts
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Re: Developmental ped- edit with new question for preemie moms
I have a preemie, and never heard of a neonatal follow up. What does this involve?
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| Posted 9/11/17 6:50 PM |
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MrsT809
LIF Adult
Member since 9/09 12167 total posts
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Developmental ped- edit with new question for preemie moms
My preemie was followed by the high risk clinic associated with the stony brook nicu. She had check ups with a neonatologist every 3 months or so until about age 2 when she was caught up in all areas of development.
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| Posted 9/11/17 7:35 PM |
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MrsT809
LIF Adult
Member since 9/09 12167 total posts
Name:
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Re: Developmental ped- edit with new question for preemie moms
Posted by Chai77
I have a preemie, and never heard of a neonatal follow up. What does this involve?
They just checked her growth and development. They weigh and measure, ask about language and motor skills, and do a developmental screening (do they color with a crayon, place a peg in a hole, find a block placed under a bowl, etc).
We also were followed by chaps which was home visits by a public health nurse. She was the one who eventually got dd started with EI when her motor skills were lagging. It was interesting bc the ped and high risk clinic both saw her right before and didn't think to refer her and sure enough she qualified for PT.
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| Posted 9/11/17 7:41 PM |
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jamnmore
LIF Adult
Member since 6/16 989 total posts
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Re: Developmental ped- edit with new question for preemie moms
Posted by MrsT809
My preemie was followed by the high risk clinic associated with the stony brook nicu. She had check ups with a neonatologist every 3 months or so until about age 2 when she was caught up in all areas of development.
We did this also. My son was born at 28 weeks. However, I stopped after about 1 year and started seeing a dev ped privately. I was not satisfied with the answers SB provided. They did not really ever express any concerns. It was always just wait it out. Wait until he is 2 and they stop adjusting. That was not good enough for me. For the record, at 2 my son was diagnosed ASD. He has language delays, fine motor delays, vision problems and gross motor delays. I knew a lot of this early on and really found that SB only followed but did not give any advise.
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| Posted 9/12/17 10:31 AM |
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Developmental ped- edit with new question for preemie moms
http://ccmc.northshorelij.com/ccmcny-our-services/ccmcny-dev-beh-peds-followup
This is the link. I am taking my 8 month olds next week on the 20th for a full developmental eval. I feel I should have done this sooner. My twins are both in EI, one just got discharged, the other is approved for further service as I have started to notice some self stimulatory behaviors.
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| Posted 9/12/17 10:42 AM |
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MrsT809
LIF Adult
Member since 9/09 12167 total posts
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Re: Developmental ped- edit with new question for preemie moms
Posted by jamnmore
Posted by MrsT809
My preemie was followed by the high risk clinic associated with the stony brook nicu. She had check ups with a neonatologist every 3 months or so until about age 2 when she was caught up in all areas of development.
We did this also. My son was born at 28 weeks. However, I stopped after about 1 year and started seeing a dev ped privately. I was not satisfied with the answers SB provided. They did not really ever express any concerns. It was always just wait it out. Wait until he is 2 and they stop adjusting. That was not good enough for me. For the record, at 2 my son was diagnosed ASD. He has language delays, fine motor delays, vision problems and gross motor delays. I knew a lot of this early on and really found that SB only followed but did not give any advise.
Yes totally agree. I almost felt uncomfortable even asking questions but they weren't volunteering any information about any of my concerns. I continued going bc dd's complications at birth were rare (and many babies don't survive) and very little is known about the cause so any information they could get from her case I was more than happy to give. I got most of my info from googling and a fb group bc no doctors beside my ob and the nicu told me much of anything.
To the op, I hope you get some answers and assurances. The fact that they are already involved with EI is great. My oldest didn't start until over a year and I still wish I'd gotten her in sooner.
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| Posted 9/12/17 11:00 AM |
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jamnmore
LIF Adult
Member since 6/16 989 total posts
Name:
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Re: Developmental ped- edit with new question for preemie moms
Posted by TwinMommyToBoys
http://ccmc.northshorelij.com/ccmcny-our-services/ccmcny-dev-beh-peds-followup
This is the link. I am taking my 8 month olds next week on the 20th for a full developmental eval. I feel I should have done this sooner. My twins are both in EI, one just got discharged, the other is approved for further service as I have started to notice some self stimulatory behaviors.
We see Dr Krevskaya from this office. We see her in the Babylon office.
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| Posted 9/12/17 11:15 AM |
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Re: Developmental ped- edit with new question for preemie moms
Posted by jamnmore
Posted by TwinMommyToBoys
http://ccmc.northshorelij.com/ccmcny-our-services/ccmcny-dev-beh-peds-followup
This is the link. I am taking my 8 month olds next week on the 20th for a full developmental eval. I feel I should have done this sooner. My twins are both in EI, one just got discharged, the other is approved for further service as I have started to notice some self stimulatory behaviors.
We see Dr Krevskaya from this office. We see her in the Babylon office.
They have an appointment with Dr. Milanaik next Wednesday. I have NYSHIP and was told some of their providers don't take it..
Message edited 9/12/2017 11:52:13 AM.
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| Posted 9/12/17 11:50 AM |
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MichLiz213
Life is Good!
Member since 7/07 7979 total posts
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Re: Developmental ped- edit with new question for preemie moms
Posted by Aries14
Dr. Tarnok @ Cohen's. They have a smithtown office
We really like her. We see her at the Bay Shore office.
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| Posted 9/13/17 5:54 PM |
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DWKS810
LIF Adolescent
Member since 3/09 554 total posts
Name:
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Re: Developmental ped- edit with new question for preemie moms
Posted by TwinMommyToBoys
Posted by jamnmore
Posted by TwinMommyToBoys
http://ccmc.northshorelij.com/ccmcny-our-services/ccmcny-dev-beh-peds-followup
This is the link. I am taking my 8 month olds next week on the 20th for a full developmental eval. I feel I should have done this sooner. My twins are both in EI, one just got discharged, the other is approved for further service as I have started to notice some self stimulatory behaviors.
We see Dr Krevskaya from this office. We see her in the Babylon office.
They have an appointment with Dr. Milanaik next Wednesday. I have NYSHIP and was told some of their providers don't take it..
Sorry for responding late but I'm just seeing this now. How did it go with Dr. Milanaik? Did you see her, or the NP, Diana Li? I saw Dr. Milanaik and was NOT a fan... and a lot of my preemie parent friends felt the same way. I felt she was very dismissive of my concerns and that the whole appointment was a waste of time. Li the NP is apparently great but you never know if you're going to see her or Milanaik. We made an appt with Dr. Papianou and then she went out on medical leave so we are still in search of someone too. She's supposed to be great though so I'm going to try again to get set up with her. (I have a 26 weeker who is almost 2, has expressive language delays and had a gross motor delay on one side of the body that she largely worked through already through PT... working on getting her into speech therapy in about a month when they stop adjusting for age.)
Message edited 10/8/2017 8:31:32 PM.
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| Posted 10/8/17 8:30 PM |
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Re: Developmental ped- edit with new question for preemie moms
Posted by DWKS810
Posted by TwinMommyToBoys
Posted by jamnmore
Posted by TwinMommyToBoys
http://ccmc.northshorelij.com/ccmcny-our-services/ccmcny-dev-beh-peds-followup
This is the link. I am taking my 8 month olds next week on the 20th for a full developmental eval. I feel I should have done this sooner. My twins are both in EI, one just got discharged, the other is approved for further service as I have started to notice some self stimulatory behaviors.
We see Dr Krevskaya from this office. We see her in the Babylon office.
They have an appointment with Dr. Milanaik next Wednesday. I have NYSHIP and was told some of their providers don't take it..
Sorry for responding late but I'm just seeing this now. How did it go with Dr. Milanaik? Did you see her, or the NP, Diana Li? I saw Dr. Milanaik and was NOT a fan... and a lot of my preemie parent friends felt the same way. I felt she was very dismissive of my concerns and that the whole appointment was a waste of time. Li the NP is apparently great but you never know if you're going to see her or Milanaik. We made an appt with Dr. Papianou and then she went out on medical leave so we are still in search of someone too. She's supposed to be great though so I'm going to try again to get set up with her. (I have a 26 weeker who is almost 2, has expressive language delays and had a gross motor delay on one side of the body that she largely worked through already through PT... working on getting her into speech therapy in about a month when they stop adjusting for age.)
We saw Milanik and she attributed all of my concerns to preemie issues. I thought all was fine but now I’m reading your post and concerned that she was just dismissing them!!! I have a 6 month follow up, if I am still concerned I’ll find someone new. I track my kids development very carefully.
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| Posted 10/8/17 8:53 PM |
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