Prayers needed for my little girl.***UPDATE AT TOP OF O.P.***
***UPDATE- OMG it is sooooo good! I think I cried harder hearing the good news than I did all week with the "BAD" news. Here is the story, Basically Jordan has had respitory issues her whole life. She has had pneumonia NINE times and bronchitis more times than I can count. She wheezes and acts like an asmathmatic but does NOT have asthma.(she does not respond to meds) She has bad reflux still at 9 years old and in looking into seeing if she had GERD that was causing her in asperate the reflux and cause chronic lung infections, thjey decided she needed to be tested for Cystic Fibrosis. She apparently has quite a few of the symptoms. I thought it was a waste of time until I got a phone call saying that she tested in the "HIGHLY LIKELY TO HAVE CF" range. We did a follow up test on Tues to confirm and it turned out that it was NEGATIVE. We had the 2nd test at a different hospital and now they are saying the 1st test was likely done wrong. The are saying operator error. I was soooooooo happy and so mad at the same time. I spend the last week in tears, sick to my stomach thinking my DD had a disease that will make her sick for her whole life and cause an early death. I am trying to just move on and be thrilled with the outcome and continue our journey for an answer. Thank you to all you for all your thoughts and prayers! ********************************
We are waiting on some test results and could use some positive thoughts and prayers for my 9 year old DD Jordan. I have never asked for prayers before but this is a biggie. I just wish the phone would ring already, although it may not be until tomorrow. TIA
Update: So... no phone call but I am hopeful they will call tomorrow(which was most likely all along) I am sorry to be vague but I just refuse to even type the words and NOBODY knows what is going on except my parents and my 2 Best Friends. Jordan does not even know what is going on. She thinks it is somewhat normal because she has had some health issues her entire life. She has seen alot of Dr's and had alot of tests. We just have never had an accurate diagnoses it seems. I always wanted to find a Dr that would give me an answer and now I am not too sure Thanks again for all the good thoughts and prayers.
but I am hopeful they will call tomorrow(which was most likely all along) I am sorry to be vague but I just refuse to even type the words and NOBODY knows what is going on except my parents and my 2 Best Friends. Jordan does not even know what is going on. She thinks it is somewhat normal because she has had some health issues her entire life. She has seen alot of Dr's and had alot of tests. We just have never had an accurate diagnoses it seems. I always wanted to find a Dr that would give me an answer and now I am not too sure
