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LoveBeingMrsT
Love my Boys!
Member since 12/05 4648 total posts
Name:
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a long coming vent
my 17 month old has sensory issues which makes him vomit VERY easily. if he laughs hard, then he gets the hiccups=he vomits. he cries hard= he vomits, he doesn't like a food=he vomits, he coughs=he vomits.
now he has a little cold and he has been throwing up constantly. i just feel so bad for him and it is so tough to go about life like this.
he's not eating (noramlly it is a HUGE battle anyway) but now it is nuts. if i'm lucky he'll eat a yogurt or pudding for a meal and drink his pediasure and then he coughs and bam it all comes out.
it's just so hard and their is no end in site. even when the cold goes away it's just a constant battle with food and everything coming up.
i just feel like the only one going through this. he just had 2 more aweful procedures to find a problem but since no problem is ever found then it just proves that it is sensory related and there is no fix for it. (he has therapy but it's a joke.)
i just wish there was an end in site for him. (and me.) and now with baby #2 coming, it'll be even harder b/c he needs so much attention.
i'm sorry for the pity vent but thanks for listening.
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Posted 10/16/08 2:35 PM  |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: a long coming vent
I'm sorry. That must be so hard on both of you. I hope you find some answers 
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| Posted 10/16/08 2:36 PM |
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want2beamom
Love my boys soooo much!!!
Member since 8/06 10164 total posts
Name:
True love doesn't end with happily ever after...
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Re: a long coming vent
Did you get the results from the Upper GI yet?
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| Posted 10/16/08 2:41 PM |
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lulugrrl
My 3 Blessings
Member since 3/06 6551 total posts
Name:
L
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Re: a long coming vent
I am so sorry, I hope somehow there is a solution for your DS.
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| Posted 10/16/08 2:47 PM |
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sasha96
lovin' my 2 little ladies!
Member since 5/05 7401 total posts
Name:
Julianne
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Re: a long coming vent
I'm sorry to hear this and want to send you .
I'm an SLP but have worked closely with OTs. If you feel the therapy is a joke, have you tried other therapists? Other sensory gyms? I'm sure you've heard it before, but be his advocate and get what you think he needs! I've seen OTs do great sensory work!
Message edited 10/16/2008 3:09:54 PM.
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| Posted 10/16/08 3:09 PM |
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Re: a long coming vent
I really hope that you get some answers. That must be very hard on you. We are always here for you to vent to. 
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| Posted 10/16/08 3:35 PM |
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JenBenMen
party of five
Member since 9/06 11343 total posts
Name:
Jen
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Re: a long coming vent
I am so sorry. That must be so awful to deal with. do the drs help in any way?
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| Posted 10/16/08 3:38 PM |
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littlejoy06
Love
Member since 3/07 6944 total posts
Name:
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Re: a long coming vent
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| Posted 10/16/08 3:39 PM |
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monkeybride
My Everything
Member since 5/05 20541 total posts
Name:
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Re: a long coming vent
I'm sorry. That sounds so trying. I remember when DD was spitting up all the time, that wore me out. I can't imagine how hard it must be on you to still deal with it at 17 months. Hopefully once he can communicate better maybe you can get to the bottom of it a little easier.
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| Posted 10/16/08 3:42 PM |
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FeliciaDP
♥
Member since 5/05 18599 total posts
Name:
Mommy
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Re: a long coming vent
I am so sorry you have to deal with this... it sounds so awful and I feel for you and your DS
I hope that there is some way soon that you will be able to help him
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| Posted 10/16/08 3:45 PM |
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CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
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Re: a long coming vent
That is awful! I can't even imagine. Your poor son and poor you! I pray they find a solution.
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| Posted 10/16/08 4:29 PM |
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Re: a long coming vent
Oh my. I am so sorry!! Your poor little boy. I can't even begin to imagine how hard this must be on you and him.
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| Posted 10/16/08 10:20 PM |
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jana
LIF Adult
Member since 3/06 1134 total posts
Name:
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Re: a long coming vent
Poor baby.
I hope they figure this out to give you both some peace.
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| Posted 10/16/08 10:25 PM |
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BigB
C & J are 10!
Member since 6/05 5914 total posts
Name:
Stacey
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Re: a long coming vent
Is there any way you could or would even want to night feed him through a tube?
A friend of a friend had a son with sensory issues and eating. He would only eat soup. Even now, he won't eat crunchy things. She had wonderful luck at an eating clinic through NYU in NYC.
Good Luck!
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| Posted 10/16/08 11:15 PM |
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LoveBeingMrsT
Love my Boys!
Member since 12/05 4648 total posts
Name:
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Re: a long coming vent
thanks everyone! if things couldn't get worse my poor cocker spaniel fell down 2 steps yesterday and had to have surgery today for a disk rupture. i feel so helpless these days. plus it cost over $5000. yikes!
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| Posted 10/17/08 8:05 PM |
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LoveBeingMrsT
Love my Boys!
Member since 12/05 4648 total posts
Name:
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Re: a long coming vent
Posted by sasha96
I'm sorry to hear this and want to send you .
I'm an SLP but have worked closely with OTs. If you feel the therapy is a joke, have you tried other therapists? Other sensory gyms? I'm sure you've heard it before, but be his advocate and get what you think he needs! I've seen OTs do great sensory work!
i don't want to quote everyone but want to answer your questions.
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sasha96
he gets speech/feeding but she really just feeds him and wants me to mush everything up when he used to eat things soft but in small bites. he has low tone too. his ot stinks and i'm thinking about asking for a switch.
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want2beamom
the upper gi was totally normal. good but not good b/c that just means more tests.
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BigB
i don't think i'd be willing to tube him b/c he can eat some foods and drinks his pediasure. when he vomits i just refeed him. meals take 1 hour but what can i do ya know. but thanks for the info on the feeding program at nyu.
thanks again everyone!
Message edited 10/17/2008 8:11:33 PM.
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| Posted 10/17/08 8:10 PM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: a long coming vent
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| Posted 10/17/08 8:16 PM |
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