mom's of children with developmental delays

Just curious
What is the delay?
When was this diagnosed? age of DC
Who first saw the delay?
What services did you get?

Re: mom's of children with developmental delays

What is the delay?
Speech, Cognitive, Social, Gross/Fine Motor

When was this diagnosed?
2

Who first saw the delay?
Friend mentioned the lack of language. Daycare also mentioned it.

What services did you get?
Started as speech, special education teacher, OT and PT all coming to my house. Then at age 3 attended Special Education preschool full day, received all services there. Going into 4th grade. Next year will receive speech, OT, resource room, inclusion class, adaptive PE, social group.

Re: mom's of children with developmental delays

What is the delay?
Pervasive Developmental Disorder / Autism Spectrum Disorder (speech, cognitive, fine motor, social)

When was the diagnosis?
"at risk" PDD at 18 months old, PDD/ASD at 30 months (2.5)

Who first saw the delay?
Me mostly, very concerned about his language and comprehension. Told my ped. started neuro evals, was told he was having seizures, then that he was deaf, maybe a brain tumor, and when it was none of the above the stupid neurologist says "So, have you looked into Autism?"


Services:
Thank God for E.I. !!!!!!
Started with speech 2x/week; special instruction 2/wk and OT 1/wk;
Put him in DDI, took him out of DDI;
Started ABA therapy, ended ABA therapy;
Upped home services to Special Instruction 5x/week; speech 3x/week; OT 2x/week
Put him in Alternatives for Children, took him out of Alternatives for children;
Continued home services, hired music and movement therapists & put him into typical preschool programs;
In Sept. sending him to typical preschool with a Special Educator Shadow, continuing Speech at home, OT at a sensory gym and Music and movement privately.

Whew ... can you tell that we're "customizing" his education just a little?!?!

Re: mom's of children with developmental delays

What is the delay?
Speech

When was this diagnosed? age of DC
Had him tested at 14-15 months, did not qualify. Tested again at 20-21, did qualify

Who first saw the delay?
Me, DH, Grandma, family - then ped.

What services did you get?
Just started EI - Speech 2x a week

Re: mom's of children with developmental delays

What is the delay: speech

When was it dx: both of my children that had/have speech delay were both dx the yr turing 3. Neither of them qualified for EI

Who saw the delay: my first son my family noticed it because they couldn't understand him but I could. My 2nd son I noticed as well as my family. I'm sure many people noticed it but just never said anything.

What services did I get: My 1st son had speech 2x a wk at our home for 1yr. My 2nd son is now receiving speech 3x's a day at their facility because I felt he would be to distracted at home.

Re: mom's of children with developmental delays

oldest at first ... Autism
delayed in speech, all milestones ( well maybe not all)
walking, fine and gross motor, had weaknesses in muscle strength, gravitational insecurities, sensory issues ect...
preschool noticed it first
now at 9 he is "healed" due to EI , only has social issues and certain "quirkiness" to him his diagnosis is Aspergers
he had pt, ot, speech, sensory intergration, and social group therapy, as well as individual counseling

middle son PDD pervasive developmental disorder
had delays in Speech, fine and gross motor skills,
got speech and occupational therapy..
i noticed it first.
i can truley say he is "cured " of the PDD.. is very social and no delays anymore.. he is 6.
he is now diagnosed with ADHD and severe Anxiety disorder

youngest delays in speech and eye contact, also didn't answer to his name
i noticed it first but didn't take him to the neurologist until he had a seizure at 15 months.
diagnosis PDD... (but i don't believe it and neither do 2 other therapists that evaluated him after EI services)
recieved speech and had a special ed teacher and tested ok at 2 years old.. in fact way ahead of his age group!!!! i have no more fears that he is falling on the "spectrum"

Re: mom's of children with developmental delays

Posted by JTK

oldest at first ... Autism
delayed in speech, all milestones ( well maybe not all)
walking, fine and gross motor, had weaknesses in muscle strength, gravitational insecurities, sensory issues ect...
preschool noticed it first
now at 9 he is "healed" due to EI , only has social issues and certain "quirkiness" to him his diagnosis is Aspergers
he had pt, ot, speech, sensory intergration, and social group therapy, as well as individual counseling

middle son PDD pervasive developmental disorder
had delays in Speech, fine and gross motor skills,
got speech and occupational therapy..
i noticed it first.
i can truley say he is "cured " of the PDD.. is very social and no delays anymore.. he is 6.
he is now diagnosed with ADHD and severe Anxiety disorder

youngest delays in speech and eye contact, also didn't answer to his name
i noticed it first but didn't take him to the neurologist until he had a seizure at 15 months.
diagnosis PDD... (but i don't believe it and neither do 2 other therapists that evaluated him after EI services)
recieved speech and had a special ed teacher and tested ok at 2 years old.. in fact way ahead of his age group!!!! i have no more fears that he is falling on the "spectrum"

Re: mom's of children with developmental delays

Message edited 6/29/2008 9:41:38 AM.

Re: mom's of children with developmental delays

I don't have a child that needed services, but our good friends have a child on the PDD spectrum. She had to push at 2 years to have him evaluated.

They just moved near us in Suffolk and she says the services in Suffolk are tremendous and is overwhelmed (with joy) with all the help (she said Nassau is not as generous with services) In the few months, he has improved greatly!

Re: mom's of children with developmental delays

Posted by colesmom

Posted by JTK

oldest at first ... Autism
delayed in speech, all milestones ( well maybe not all)
walking, fine and gross motor, had weaknesses in muscle strength, gravitational insecurities, sensory issues ect...
preschool noticed it first
now at 9 he is "healed" due to EI , only has social issues and certain "quirkiness" to him his diagnosis is Aspergers
he had pt, ot, speech, sensory intergration, and social group therapy, as well as individual counseling

middle son PDD pervasive developmental disorder
had delays in Speech, fine and gross motor skills,
got speech and occupational therapy..
i noticed it first.
i can truley say he is "cured " of the PDD.. is very social and no delays anymore.. he is 6.
he is now diagnosed with ADHD and severe Anxiety disorder

youngest delays in speech and eye contact, also didn't answer to his name
i noticed it first but didn't take him to the neurologist until he had a seizure at 15 months.
diagnosis PDD... (but i don't believe it and neither do 2 other therapists that evaluated him after EI services)
recieved speech and had a special ed teacher and tested ok at 2 years old.. in fact way ahead of his age group!!!! i have no more fears that he is falling on the "spectrum"

This is the most wonderful post I have ever read.
Thank you!

Image Attachment(s):

Message edited 6/29/2008 10:04:56 AM.

Re: mom's of children with developmental delays

What is the delay?
Speech

When was this diagnosed?
I had him evaulated at 21 months by EI, he did not qualify. Had him evaluated again at 24 months and he did qualify for services.

Who first saw the delay?
We noticed that he wasn't talking, not even babbling, when he should have been.

What services did you get?
Ry is currently getting speech and special instruction services to help him develop his play skills to be more on par with children his age (pretend play, etc.)

Re: mom's of children with developmental delays

What is the delay? Speech primarily, but was receptive and expressive language too

When was this diagnosed? 15 months-they labeled him with Sensory Integration Dysfunction. About 75% of the sensory problems have disappeared but some remain. We are told that as his speech continues to improve, they will slow even more...

Who first saw the delay? Both DH & I. What led to us getting help was the fact that he did strange things with his eyes-keeping his eyes fixated on an object as he ran past it...throwing toys to hear the loud crash it made, nonstop activity morning to night...

What services did you get? Early Intervention..I live in Virginia, go throught the PIE program (parent infant education).

He has speech 1x/week, OT 1x/week and a parent educator 1x/week (although we are prob stopping this part soon, seems to be a waste of time).

We wanted more OT/speech however they honestly feel this is all he needs right now. I am thinking now they may be right as the progress has been steady and promising. He will start preschool in september for other children with delays...he will have some OT and speech there. We don't know what the future holds but as of now we all feel very optimistic for Johnny's future. He has come quite a long way in 5 months of therapy!!! I don't know what I would have done without EI.

Re: mom's of children with developmental delays

Posted by JTK

Posted by colesmom

Posted by JTK

oldest at first ... Autism
delayed in speech, all milestones ( well maybe not all)
walking, fine and gross motor, had weaknesses in muscle strength, gravitational insecurities, sensory issues ect...
preschool noticed it first
now at 9 he is "healed" due to EI , only has social issues and certain "quirkiness" to him his diagnosis is Aspergers
he had pt, ot, speech, sensory intergration, and social group therapy, as well as individual counseling

middle son PDD pervasive developmental disorder
had delays in Speech, fine and gross motor skills,
got speech and occupational therapy..
i noticed it first.
i can truley say he is "cured " of the PDD.. is very social and no delays anymore.. he is 6.
he is now diagnosed with ADHD and severe Anxiety disorder

youngest delays in speech and eye contact, also didn't answer to his name
i noticed it first but didn't take him to the neurologist until he had a seizure at 15 months.
diagnosis PDD... (but i don't believe it and neither do 2 other therapists that evaluated him after EI services)
recieved speech and had a special ed teacher and tested ok at 2 years old.. in fact way ahead of his age group!!!! i have no more fears that he is falling on the "spectrum"

This is the most wonderful post I have ever read.
Thank you!

hang in there.. EI is the most wonderful thing that has ever happened to my family
my 9 year old is a black belt in Karate, a peer leader, a math olympiad, an excellent writer and poet, plays the violin, is on the lacrosse team at his school ect...
my 6 year old is the most popular kid at his school, best reader in his kindergarten class, plays baseball, is on the bowling team, will play football this fall, karate also.
my 2 year old is sooo social, a great kid and loves sports!!!


we are extremely happy with their progress!!!
i'll post a pic! look at the eye contact on my 9 year old!!!!!

Re: mom's of children with developmental delays

Posted by JTK

Posted by colesmom

Posted by JTK

oldest at first ... Autism
delayed in speech, all milestones ( well maybe not all)
walking, fine and gross motor, had weaknesses in muscle strength, gravitational insecurities, sensory issues ect...
preschool noticed it first
now at 9 he is "healed" due to EI , only has social issues and certain "quirkiness" to him his diagnosis is Aspergers
he had pt, ot, speech, sensory intergration, and social group therapy, as well as individual counseling

middle son PDD pervasive developmental disorder
had delays in Speech, fine and gross motor skills,
got speech and occupational therapy..
i noticed it first.
i can truley say he is "cured " of the PDD.. is very social and no delays anymore.. he is 6.
he is now diagnosed with ADHD and severe Anxiety disorder

youngest delays in speech and eye contact, also didn't answer to his name
i noticed it first but didn't take him to the neurologist until he had a seizure at 15 months.
diagnosis PDD... (but i don't believe it and neither do 2 other therapists that evaluated him after EI services)
recieved speech and had a special ed teacher and tested ok at 2 years old.. in fact way ahead of his age group!!!! i have no more fears that he is falling on the "spectrum"

This is the most wonderful post I have ever read.
Thank you!

hang in there.. EI is the most wonderful thing that has ever happened to my family
my 9 year old is a black belt in Karate, a peer leader, a math olympiad, an excellent writer and poet, plays the violin, is on the lacrosse team at his school ect...
my 6 year old is the most popular kid at his school, best reader in his kindergarten class, plays baseball, is on the bowling team, will play football this fall, karate also.
my 2 year old is sooo social, a great kid and loves sports!!!


we are extremely happy with their progress!!!
i'll post a pic! look at the eye contact on my 9 year old!!!!!

Re: mom's of children with developmental delays

Posted by JTK

hang in there.. EI is the most wonderful thing that has ever happened to my family
my 9 year old is a black belt in Karate, a peer leader, a math olympiad, an excellent writer and poet, plays the violin, is on the lacrosse team at his school ect...
my 6 year old is the most popular kid at his school, best reader in his kindergarten class, plays baseball, is on the bowling team, will play football this fall, karate also.
my 2 year old is sooo social, a great kid and loves sports!!!


we are extremely happy with their progress!!!
i'll post a pic! look at the eye contact on my 9 year old!!!!!

Re: mom's of children with developmental delays

What is the delay?
Receptive and expressive language, and cognitive delay.

When was it diagnosed?
Lance was evaluated by EI at 15 months old. At 17 months he was seen by a Neurologist who diagnosed him with PDD. 34 days later he was seen by a psychologist through EI, he did an ADOS, and told us that Lance does not have PDD.

Who first saw the delay?
I did.

What services did you get?
Lance has special education 2X per week, soon to be 3. He also gets speech 2X per week. We will be getting an OT eval. soon for sensory.