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IrishLasss334
I'll be there soon!
Member since 1/08 6549 total posts
Name:
Patty
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PGD or not? I'm really up in the air
I have my IVF consult with Dr. Cain on Thursday..I am leaning towards doing PGD b/c my last pregnancy ended at 11 weeks b/c the baby had Downs Syndrome. I am just afraid b/c they have to splice a cell off that it may reduce the number I have to put back..
what do you think?
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Posted 11/10/08 12:27 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
BA2008
Need to find some hope!
Member since 2/08 2485 total posts
Name:
Beth -Ann
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Re: PGD or not? I'm really up in the air
This is always a hard decision to make. I know people who were successful with PGD and others where they messed up their emby's. You gotta go with your gut on this one. What do they tell you your odds are of it happening again? I used to see Dr. Cain and she told it like it was. No sugar coating. Have you asked her what their success rates are with PGD? I do not know anything about their lab as I only did IUI's with them. Its a risk and its a lot of money. But, so is having to do more IVF's. Sorry, I'm not helping you. Just trying to weigh your options.
Good luck!!!
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| Posted 11/10/08 2:14 PM |
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IrishLasss334
I'll be there soon!
Member since 1/08 6549 total posts
Name:
Patty
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Re: PGD or not? I'm really up in the air
Thanks. I have my appt with her on Thursday, so I'm sure she'll tell me then. I was just looking for opinions from the patients end of things.
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| Posted 11/10/08 3:00 PM |
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Diana712
RIP my beloved Brother Richard
Member since 5/07 6710 total posts
Name:
Diana
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Re: PGD or not? I'm really up in the air
I did it 1x and I will NEVER do it again..
first: It doesn't even check every chromosone so you can still have a problem
second: it risks the eggs and you lose some
third: its like 2500 and I dont think the good out weighs the bad,,
fourth: your body knew what to do about your last pregnancy and my dr always tells me that will most likely happen if there is an issue..
But that being said its a personal decision.. This is just my experience..
Good luck.. 
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| Posted 11/10/08 4:25 PM |
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MrsRbk
<3 <3 <3 <3
Member since 1/06 19197 total posts
Name:
Michelle
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Re: PGD or not? I'm really up in the air
Posted by dilb712
I did it 1x and I will NEVER do it again..
first: It doesn't even check every chromosone so you can still have a problem
second: it risks the eggs and you lose some
third: its like 2500 and I dont think the good out weighs the bad,,
fourth: your body knew what to do about your last pregnancy and my dr always tells me that will most likely happen if there is an issue..
But that being said its a personal decision.. This is just my experience..
Good luck..
I agree with Diana, we didn't have it done. I did ask my RE about it after my first IVF ended in m/c. I was concerned about my age, and chromosomal abnormalities. The RE said it wasn't necessary. In some ways I do wish we had it done, but in others I'm glad we didn't and just let nature take it's course. I'm pretty sure the loss of my twin early on was due to severe chromosomal abnormalites.
But again, it's a very personal decision. Talk to your RE about it. 
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| Posted 11/10/08 4:49 PM |
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IrishLasss334
I'll be there soon!
Member since 1/08 6549 total posts
Name:
Patty
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Re: PGD or not? I'm really up in the air
Posted by dilb712
I
fourth: your body knew what to do about your last pregnancy and my dr always tells me that will most likely happen if there is an issue..
..
yes, but this is exactly what I'm trying to avoid. it was devastating to get to 11w5d and go one day for a sono and have no heartbeat. this is why I am up in the air about it.
thanks for your input!
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| Posted 11/10/08 5:24 PM |
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CAH127
LIF Adult
Member since 7/07 1694 total posts
Name:
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Re: PGD or not? I'm really up in the air
Posted by dilb712
I did it 1x and I will NEVER do it again..
first: It doesn't even check every chromosone so you can still have a problem
second: it risks the eggs and you lose some
third: its like 2500 and I dont think the good out weighs the bad,,
fourth: your body knew what to do about your last pregnancy and my dr always tells me that will most likely happen if there is an issue..
But that being said its a personal decision.. This is just my experience..
Good luck..
I totally agree with Diana. I did it once and will not do it again. The other issue added to what Diana said, there are studies out there that say that when there is a good embryo, the implantation rate is not high, suggesting that the embryo could not take the beating of the biopsy. It is a personal decision. Good luck in whatever you decide.
ETA: Also, I was told by many insurance never covers this. I submitted it to my insurance never thinking it would be covered, but other than out of network fees, I got paid back fully by my insurance.
Message edited 11/10/2008 6:17:09 PM.
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| Posted 11/10/08 5:33 PM |
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Gertyrae
Peace out Homies!
Member since 5/05 20046 total posts
Name:
Gerty ®
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Re: PGD or not? I'm really up in the air
Posted by CAH127
Posted by dilb712
I did it 1x and I will NEVER do it again..
first: It doesn't even check every chromosone so you can still have a problem
second: it risks the eggs and you lose some
third: its like 2500 and I dont think the good out weighs the bad,,
fourth: your body knew what to do about your last pregnancy and my dr always tells me that will most likely happen if there is an issue..
But that being said its a personal decision.. This is just my experience..
Good luck..
I totally agree with Diana. I did it once and will not do it again. The other issue added to what Diana said, there are studies out there that say that when there is a good embryo, the implantation rate is not high, suggesting that the embryo could not take the beating of the biopsy.
I agree with both of these statements.
But, if you don't think you can deal with another m/c, it may be the option for you.
Good luck with your decision.
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| Posted 11/10/08 6:24 PM |
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Diana712
RIP my beloved Brother Richard
Member since 5/07 6710 total posts
Name:
Diana
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Re: PGD or not? I'm really up in the air
But what if it there is a problem with the other chromosones it doesn't check? you will still have that out come.. This is a tuff situation.. If your GUT is telling you to do it then i would do it.. I try to listen to my gut nowdays.. You sound like you want to do it so try it.. Also how many eggs do you have to work with?? Thats a real factor as well..
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| Posted 11/10/08 6:27 PM |
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ibl530
LIF Toddler
Member since 10/08 425 total posts
Name:
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Re: PGD or not? I'm really up in the air
I think you need to follow your heart on this one. I am going through PGD/IVF right now. I just finished my first cycle (it didn't work) and I am just about to start my second one.
For me, screening for the genetic disorder is a must because we think it is what caused the Turner's syndrome in my first pregnancy. I can't go through another loss, so, choosing to put back a healthy embryo and knowing that I am having a healthy baby is what I need. Going through PGD also allows my DH and I to have a boy!
Unfortunately for us, the embryo that we put back appeared to be growing ok, but got slightly damaged by the biopsy. It certainly isn't going to stop me from doing this.
I would say to get all your ducks in a row before you chat with the doc, and make sure you are talking to the PGD specialist in your practice.
GL!
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| Posted 11/11/08 9:39 AM |
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babyfaith
Onward and Upward!
Member since 2/08 3210 total posts
Name:
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Re: PGD or not? I'm really up in the air
PGD is usually recommended for older women and women who are known carriers of genetic disorders. I am quite sure you need to have a good number of embryos to do PGD since the process itself can cause some to not survive. You can always make the final decision after your retrieval so you can see what you are working with. Best of luck!
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| Posted 11/11/08 8:09 PM |
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Diana712
RIP my beloved Brother Richard
Member since 5/07 6710 total posts
Name:
Diana
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Re: PGD or not? I'm really up in the air
I also believe when i did do the pgd the first time it damaged the one and only embryo I put back and that was why it failed for me.. just another opinion.. I know how you feel about the loss.. and cant bear to have another.. As you know I am living in fear everyday.. But you can also have a loss doing PGD..
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| Posted 11/11/08 8:22 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: PGD or not? I'm really up in the air
DO you have a family history of any genetic defects? I would do it ONLY if that were the case.
If you are the first known case among 1st string relatives I would say its not worth the risk.
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| Posted 11/11/08 8:51 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: PGD or not? I'm really up in the air
Posted by ibl530
I think you need to follow your heart on this one. I am going through PGD/IVF right now. I just finished my first cycle (it didn't work) and I am just about to start my second one.
For me, screening for the genetic disorder is a must because we think it is what caused the Turner's syndrome in my first pregnancy. I can't go through another loss, so, choosing to put back a healthy embryo and knowing that I am having a healthy baby is what I need. Going through PGD also allows my DH and I to have a boy!
Unfortunately for us, the embryo that we put back appeared to be growing ok, but got slightly damaged by the biopsy. It certainly isn't going to stop me from doing this.
I would say to get all your ducks in a row before you chat with the doc, and make sure you are talking to the PGD specialist in your practice.
GL!
turners is not genetic though?
My last Pg was a turners Girl and my genetic couselor advised there is no genetic testing available for Turners, nor does it have a testable gene to rule it out?
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| Posted 11/11/08 8:51 PM |
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CarlieJLD7
I love my daughter!
Member since 7/07 3061 total posts
Name:
Carlie
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Re: PGD or not? I'm really up in the air
Posted by babyfaith
PGD is usually recommended for older women and women who are known carriers of genetic disorders. I am quite sure you need to have a good number of embryos to do PGD since the process itself can cause some to not survive. You can always make the final decision after your retrieval so you can see what you are working with. Best of luck!
THis isn't really true... well about making the decision after the retrieval...
In order to do PGD (my DH and I just finsihed our first cycle and did PGD) well in order to do PGD you need to prepare for at least 6-8 weeks before hand and make sure that the labs have all of your dishes ready before our retrieval... I do not think they will freeze the eggs and then do the PGD testing... I am not positive on that... but even if they do do that... its like doing the entire IVF process and then waiting 2 months to have them tested...
if it was just a fluke thing, I honestly wouldn't do it... you can do a test at 10 weeks called the CVS test, although it is risky it might be better off for you as you are not really a carrier of this and it might have just been a fluke thing.
BUT... in the end you need to do what you feel comfortable doing... DH and I are doing PGD due to the fact of genetics disorders, yes we could have tried naturally which we did do an IUI and then I said to myself that I don't think I would be able to go though 10-12 weeks not knowing if my baby was sick and then think I would have to possibly make a decision... so we went with the PGD... we had a lot of eggs, a lot fertilized, some came out with no date but in the end we froze 6 embryos... I know this isn't the case for everyone but I also know someone else who also did PGD and now has twins... I don't think the risk of the embryos getting damaged is as high as most people say or think it is on here.
Whatever the case you need to make the decision on what you and your DH feel comfortable with... to me $2500 was nothing to pay in order to know that we would be having a healthy baby... and by the way... we paid $3500 bc the testing has gone up... and that is not including the freezing etc...
Whatever you choose... good luck and I hope your stay is short and brief here!!!
You can always FM if you have any other questions!
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| Posted 11/11/08 9:01 PM |
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ibl530
LIF Toddler
Member since 10/08 425 total posts
Name:
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Re: PGD or not? I'm really up in the air
Posted by dm24angel
Posted by ibl530
I think you need to follow your heart on this one. I am going through PGD/IVF right now. I just finished my first cycle (it didn't work) and I am just about to start my second one.
For me, screening for the genetic disorder is a must because we think it is what caused the Turner's syndrome in my first pregnancy. I can't go through another loss, so, choosing to put back a healthy embryo and knowing that I am having a healthy baby is what I need. Going through PGD also allows my DH and I to have a boy!
Unfortunately for us, the embryo that we put back appeared to be growing ok, but got slightly damaged by the biopsy. It certainly isn't going to stop me from doing this.
I would say to get all your ducks in a row before you chat with the doc, and make sure you are talking to the PGD specialist in your practice.
GL!
turners is not genetic though?
My last Pg was a turners Girl and my genetic couselor advised there is no genetic testing available for Turners, nor does it have a testable gene to rule it out?
I know, we did it for the fragile X. My RE and genetics counselor think that the severity of the fragile X in the baby might have "helped to cause" the Turners. just bad luck.
We do PGD for Fragile X!
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| Posted 11/12/08 7:55 AM |
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IrishLasss334
I'll be there soon!
Member since 1/08 6549 total posts
Name:
Patty
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Re: PGD or not? I'm really up in the air
I have a list of questions for Dr. Cain on Thursday night. I am very confused as to what to do.
Thanks for everyone's input!
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| Posted 11/12/08 8:45 AM |
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LaurenExp
Waiting patiently for baby sis
Member since 8/06 11613 total posts
Name:
L-Diddy EDD 11/11/11 :)
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Re: PGD or not? I'm really up in the air
My RE says its pointless for me to even do IVF withouth PGD, but that's because of a genetic anamoly. If I were in your situation, I wouldn't do it. It doesn't check everything, its very costly and its not fool proof.
But again, this is a decision that only you and your DH can make.
Lots of luck to you.
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| Posted 11/12/08 9:07 AM |
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IrishLasss334
I'll be there soon!
Member since 1/08 6549 total posts
Name:
Patty
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Re: PGD or not? I'm really up in the air
Well, if it doesn't check for Trisomy 18 or 21, then I won't do it, it's just a waste of money then. But if it does, then I might. We'll see.
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| Posted 11/12/08 10:54 AM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: PGD or not? I'm really up in the air
When I was having pregnancy losses I was pushed to do PGD by multiple Dr's. Somehow I just knew in my heart our issues were not chromosomal. We also had a normal karytyping done. After 3 years of struggling we finally figured out most of our issues were with my tubes(even though I had a clear hsg after 3 m/c's and 1 chemical and proceeded to have anopther causing emergency removal of my tube) I would thouroughly look into other avenues before I spent the $$ on PGD. JMO of ourse
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| Posted 11/12/08 12:24 PM |
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IrishLasss334
I'll be there soon!
Member since 1/08 6549 total posts
Name:
Patty
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Re: PGD or not? I'm really up in the air
DH and I have had every test there is, physical and genetic. Our only issue is my age and I have luteal phase defect. And I bad luck with being pregnant.
Like I said, for me, it's not about the money right now, it's more about damaging the embryos
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| Posted 11/12/08 12:30 PM |
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