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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Saw my cardiologist today...some GREAT news and some not so great news
First the AWESOME news...
I AM (drum roll please)...
OFFICIALLY OFF MY BETA BLOCKERS!!!!! WOOT WOOT!!!!
I am off of them for the next four weeks. After that, I call the cardiologist to check in. I discussed with him how the beta blockers are negatively affecting my every day life (constant exhaustion, fatigue, dizziness, not loosing any weight even though I am doing WW and working out 1.5 hours 3X a week, etc.) and he agreed to this trial. I am ECSTATIC!!!!! YAY!!!!!! I really feel that if I loose the 40lbs I had since I gave birth to my DD (went on beat blockers when she was 4 months old), my Right Ventricle (AKA: RV) will get better or stay the same. I just feel it in my soul.
Downside: my RV ejection fraction is still in the low 40's when before my surgery it was 55%. BUT it was in the mid 40's after surgery and I would need to take another MRI and transesophageal echocardiogram (TEE) to see the numbers exactly. He did say the beta blockers and lisinopril (another heart med I am on) are prolonging the RV for as long as possible to ward off a transplant. So coming off of them has it's risks. He did say that there was NO guarantee that it would not get worse on the betas so he said the decision was up to me.
I said I would like to roll the dice...and GET MY LIFE BACK! He agreed.
So that's the 6/23/08 update. I can live with this. I really felt like a 90 year old on the betas and I am 33. I am PRAYING that I am able to:
1) have no heart issues while off my betas
2) have my RV function stay the same or get better (to avoid a transplant)
3) loose some weight in the next four weeks (to help take the pressure off my RV)
Any prayers, good vibes, or good thoughts are welcomed & appreciated. 
 ,
Dina
ETA: for those newbies who do not know the situation... I was born with a rare congenital heart defect (CC-TGA aka L-TGA). Got worse while I was preggo, went on meds when DD was 4 months old & I had to stop BFing. I had open heart surgery last year when my DD was one year old. Prognosis: Heart Transplant in a 5-10 years (maybe less maybe more depending on my Right ventricle). Congenitally Corrected Transposition of the Great Arteries (CCTGA)
Message edited 6/23/2008 10:00:00 PM.
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Posted 6/23/08 9:53 PM  |
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BaroqueMama
Chase is one!
Member since 5/05 27530 total posts
Name:
me
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Re: Saw my cardiologist today...some GREAT news and some no so great news
Well, I'll send you prayers, good vibes, hugs and anything else you need, my love! ((((((good vibes!))))))),
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| Posted 6/23/08 9:57 PM |
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Chatham-Chick
*********************
Member since 5/05 10311 total posts
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Lots of and good thoughts being sent your way!!!!
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| Posted 6/23/08 10:01 PM |
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luvsbob4603
To a healthy 2013
Member since 5/05 21840 total posts
Name:
To a brand new year to a healthier me
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Re: Saw my cardiologist today...some GREAT news and some not so great news
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| Posted 6/23/08 10:02 PM |
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Re: Saw my cardiologist today...some GREAT news and some not so great news
That is great news!!!!!!
When I get a chance, I would like to FM you some questions about beta blockers, if you don't mind. I wanted to go off propanolol (inderal) in the summer and the doctor left it up to me. I am on it for "inappropriate sinus tachycardia." But my tachycardia symptoms are triggered in the hot weather so I think I should wait until after summer. I am upset about having to wait.
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| Posted 6/23/08 10:06 PM |
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lbelle821
Arghhhhh
Member since 2/06 5285 total posts
Name:
Lisa
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Re: Saw my cardiologist today...some GREAT news and some not so great news
tons of prayers for you
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| Posted 6/23/08 10:07 PM |
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Phyl
R.I.P. Sweet Mia ♥
Member since 5/06 28918 total posts
Name:
The Mystical Azzhorse! ™
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Re: Saw my cardiologist today...some GREAT news and some not so great news
You are always in my thoughts Dina
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| Posted 6/23/08 10:09 PM |
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Jackie24
~We Did it~
Member since 7/06 6718 total posts
Name:
Jackie
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Re: Saw my cardiologist today...some GREAT news and some not so great news
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| Posted 6/23/08 10:09 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Posted by Kerie-is-so-very
That is great news!!!!!!
When I get a chance, I would like to FM you some questions about beta blockers, if you don't mind. I wanted to go off propanolol (inderal) in the summer and the doctor left it up to me. I am on it for "inappropriate sinus tachycardia." But my tachycardia symptoms are triggered in the hot weather so I think I should wait until after summer. I am upset about having to wait.
FM me anytime.
I researched this: New radio ablation procedure - clinical trial
AHA may have some more details on it...
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| Posted 6/23/08 10:15 PM |
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bayla
Love my two kiddos :)
Member since 8/06 7178 total posts
Name:
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Re: Saw my cardiologist today...some GREAT news and some not so great news
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| Posted 6/23/08 10:17 PM |
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CunningOne
***
Member since 5/05 26975 total posts
Name:
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Happy to hear the great news!! Many and through it all!
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| Posted 6/23/08 10:24 PM |
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tiki03
*************
Member since 9/05 8660 total posts
Name:
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Lots and lots of
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| Posted 6/23/08 10:25 PM |
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Katie111806
Team Pink!
Member since 12/06 5349 total posts
Name:
Katie
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Re: Saw my cardiologist today...some GREAT news and some not so great news
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| Posted 6/23/08 10:27 PM |
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Tah-wee-ZAH
Kisses
Member since 5/05 15952 total posts
Name:
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Lots of
and so happy that you are happy with your progess
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| Posted 6/23/08 10:28 PM |
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Posted by dandr10199
Posted by Kerie-is-so-very
That is great news!!!!!!
When I get a chance, I would like to FM you some questions about beta blockers, if you don't mind. I wanted to go off propanolol (inderal) in the summer and the doctor left it up to me. I am on it for "inappropriate sinus tachycardia." But my tachycardia symptoms are triggered in the hot weather so I think I should wait until after summer. I am upset about having to wait.
FM me anytime.
I researched this: New radio ablation procedure - clinical trial
AHA may have some more details on it...
I don't think I am severe enough for any procedure right now but I want to know what is available, especially if this gets worse. I'll FM you when I gather my thoughts and questions!!! Again, I am glad for your news.
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| Posted 6/23/08 10:43 PM |
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justthe4ofus
I hate hypocrites!!!!!
Member since 5/05 6905 total posts
Name:
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Re: Saw my cardiologist today...some GREAT news and some not so great news
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| Posted 6/23/08 11:02 PM |
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AimeeE2006
Time flies!
Member since 1/06 5698 total posts
Name:
Aimee
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Re: Saw my cardiologist today...some GREAT news and some not so great news
everything works out and that you start feeling better without the BB!
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| Posted 6/24/08 12:01 AM |
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janet
WITH LOVE MY ANGEL MISS YOU!!!
Member since 5/05 12823 total posts
Name:
janet
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Re: Saw my cardiologist today...some GREAT news and some not so great news
and many
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| Posted 6/24/08 12:21 AM |
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thewinterone
You make me happy
Member since 5/05 2474 total posts
Name:
cause you are gray.
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Re: Saw my cardiologist today...some GREAT news and some not so great news
{{{{{{{ }}}}}}}
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| Posted 6/24/08 4:10 AM |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: Saw my cardiologist today...some GREAT news and some not so great news
and a tons of my best wishes!
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| Posted 6/24/08 5:01 AM |
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Briannasmommy
Love her so much <3
Member since 5/05 15567 total posts
Name:
Christina
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Re: Saw my cardiologist today...some GREAT news and some not so great news
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| Posted 6/24/08 8:03 AM |
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mommy2bella
Where does time go?
Member since 12/05 9747 total posts
Name:
Kelly
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Re: Saw my cardiologist today...some GREAT news and some not so great news
I hope you continue in your good health and that your heart gets stronger off the beta blockers
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| Posted 6/24/08 9:49 AM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: Saw my cardiologist today...some GREAT news and some not so great news
Thanks everyone!
First day off of them and I already have more energy (one had one cup of coffee today instead of two)! I can't go to the gym today b/c Grace is sick BUT I have a rebounder at home & a balance ball that i will work out on later.
I am getting my life, my body, and my energy back and it feels AWESOME!!!!!!!!!
I mean if the RV is gonna cr@p out anyway over time, and my prognosis is a transplant "down the road" ANYWAY, then I am going to live my life without meds and have a great time doing it! No more 33 year old spirit trapped in a body that feels like I am 90 years old. I am going to go surfing this summer too...you can count on it! 
ETA: I am claiming my MILF status now and my body will catch up by the end of summer. 
Message edited 6/24/2008 11:39:58 AM.
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| Posted 6/24/08 11:38 AM |
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