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so far, nothing wrong with me?????

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Jeannad67
LIF Toddler

Member since 5/05

380 total posts

Name:
Jeanna

so far, nothing wrong with me?????

blood tests are normal
karyotype is normAL
hysterocpoy is normal

only thing left is the resylts from my endo biopsies

so if there is nohing wrong with me how did i lose 2 babies??


an the fetal karyotype is back.... normal as well.... and i was having a boy Chat Icon

Posted 10/4/07 3:07 PM
 
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LaurenExp
Waiting patiently for baby sis

Member since 8/06

11613 total posts

Name:
L-Diddy EDD 11/11/11 :)

Re: so far, nothing wrong with me?????

I'm so sorry...have you looked into immune issues? Melijane knows all about this...

Posted 10/4/07 3:15 PM
 

Jeannad67
LIF Toddler

Member since 5/05

380 total posts

Name:
Jeanna

Re: so far, nothing wrong with me?????

yes had all the blood tests

thanks for your reply and good thoughts

Chat Icon

Posted 10/4/07 3:19 PM
 

Gertyrae
Peace out Homies!

Member since 5/05

20046 total posts

Name:
Gerty ®

Re: so far, nothing wrong with me?????

Well, the good thing is that everything came back okay.
Honestly, my BF worked in an OB-GYN for 15 years and she said that 1 in 4 pregnancies miscarry...and this is in women who aren't testing from day one, so there are countless pregnancies that can be lost in the first week or so without the mother knowing she was pregnant at all.
We just happen to be in a small group that are dealing with IF and are tested more stingently than most.

I wish you luck and am sorry you don't have better answers. I know how difficult this is for you.Chat Icon

Posted 10/4/07 4:09 PM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: so far, nothing wrong with me?????

Posted by Jeannad67

yes had all the blood tests

thanks for your reply and good thoughts

Chat Icon



would you mind posting or FM'ing what tests exactly you had. I can almost guarantee you you did not have immune testing-the tests you just mentioned really have nothing to do with RPL(except for karytyping) I know its frustrating. I just got answers after 2 years of losses and I had been told I "had all the tests" too. It depends who you talk to.

Posted 10/4/07 4:36 PM
 

angel7
LIF Adolescent

Member since 3/06

775 total posts

Name:

Re: so far, nothing wrong with me?????

I am glad to hear that everything is coming back ok. I know it sometimes is fusturating, b/c we want to fix something.
Hand in there!!!
Chat Icon

Posted 10/4/07 8:28 PM
 

Jeannad67
LIF Toddler

Member since 5/05

380 total posts

Name:
Jeanna

Re: so far, nothing wrong with me?????

Posted by melijane

Posted by Jeannad67

yes had all the blood tests

thanks for your reply and good thoughts

Chat Icon



would you mind posting or FM'ing what tests exactly you had. I can almost guarantee you you did not have immune testing-the tests you just mentioned really have nothing to do with RPL(except for karytyping) I know its frustrating. I just got answers after 2 years of losses and I had been told I "had all the tests" too. It depends who you talk to.



While I dont have the list of blood tests in front of me I remember most of them I think. It was 19 vials of blood taken for a number of different tests including:

MTHFR
antiphospholipid antibodies (3 differnt types I think?)
Protein S
Protein C
Factor V and Factor II

again without the list in front of me im sure im missing some but are there any you can think of that i missed so i can double check?

Posted 10/5/07 9:21 AM
 

DRMom
Two in Blue

Member since 5/05

20223 total posts

Name:
Melissa

Re: so far, nothing wrong with me?????

OK you had the RPL panel from a regular RE. I was in your situation and after 3 losses and one ectopic I chose to see a specialist called a reproductive immunologist on the advice of a friend. She is located in Chicago. From what I see you are missing:

PAI-1
NK Assay(VERY IMPORTANT)
ANA-this is one of my issues
DQ Alpha-for you and your DH
Did you have your thyroid checked
Immunoglobulin Panel
Serum Protein Electrophoresis
TH1:TH2 intracellular cytokine ratios
Anti Phospholipid Antibodies(one o fteh most common)
Anti-DNA, Histones
Anti Thyroid Antibodies

There are also a bunch of tests on Dr. Beers site which I linke dyou to at the bottom

I am going to copy an e-mail I sent to someone else for you here because it is a lot to type.

Re: Info please

get ready to become a scientist. 1st things first-you should have the RPL panel-as I read it you have had 3 early losses. I am going to link you to a page that is one of the pioneers in this field. His name is Dr. Beer-he is now passed away, but he's got TONS of info on his site.
1st a few questions...Do you have a family history of clotting disorders or immune disorders(lupus, rheumatoid arthritis, stroke?) What are the symptoms when you miscarry..do you get pain in your joints? Rashes?

Link to Dr. Beers 5 categories of immune related pregnancy loss

He is a reproductive immunologist which is different that an endocrinologist. The only RE in NY that really will give you advanced immune testing is SIRM:
SIRM RPL page
I would also look at fertilethoughts.com and inciid.com and check their RPL chat boards. I have a bunch of studies but they are paper copies. If you want I can mail you some stuff....LMK.

I am truly sorry this is happening to you. Luckily many women have gotten PG and had healthy pregnancies

Here are some sites to check put




Dr. Beer(I am a Cetegory 3)

Also I would suggest you join the Yahoo Group Immunology Support. You can post your story on there and the ladies will give you advice.

I see you had the APA so scratch thatChat Icon

Message edited 10/5/2007 10:02:42 AM.

Posted 10/5/07 10:01 AM
 

BigB
C & J are 10!

Member since 6/05

5914 total posts

Name:
Stacey

Re: so far, nothing wrong with me?????

I am so sorry......What about progesterone levels during the beginning stages?

Posted 10/5/07 10:13 AM
 

jellybean78
:)

Member since 8/06

13103 total posts

Name:
Mommy

Re: so far, nothing wrong with me?????

I'm sorry you didn't get any answersChat Icon Chat Icon Chat Icon

Hopefully they will find out soonChat Icon

Posted 10/5/07 10:14 AM
 
 

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