LIFamilies.com - Long Island, NY


RSS
Articles Business Directory Blog Real Estate Community Forum Shop My Family Contests

Log In Chat Index Search Rules Lingo Create Account

Quick navigation:   

Walk for Cystic Fibrosis- please help find a cure for my cousin, Dylan.

Posted By Message

Sassyz75
Turning a new page

Member since 5/05

9731 total posts

Name:
Dina

Walk for Cystic Fibrosis- please help find a cure for my cousin, Dylan.

Hi everyone.

My cousin Dylan is 3 years old and was diagnosed with Cystic Fibrosis when he was 2 months old. He is such a wonderful little boy, so full of life and courage. To see the daily routine he needs to go through to stay alive is shocking- the first time my husband and I witnessed it, made us appreciate how much health really means. Of course, Dylan knows no different- this is how his life has always been.

Right now, the life expectancy of a child with Cystic Fibrosis is about 35 years. Medical researchers are very close to a cure. However, because the number of children born with CF every year is very small, the disease isn't as publicized as others. While 10 million people carry the CF gene, only 30,000 people are alive with CF in the United States to date.

Here is a quick video montage about my Cousin:

Dylan's Video

And, if you're moved to donate to the walk his parent's are doing this April, you can find the information here...

CF Walk Info

Thank you for reading and for considering helping my little cousin, I appreciate it.

Dina.

Posted 3/1/08 9:58 PM
 
Long Island Weddings
Long Island's Largest Bridal Resource

MorningCuppaCoffee
Tired!

Member since 12/07

16353 total posts

Name:
Allison

Re: Walk for Cystic Fibrosis- please help find a cure for my cousin, Dylan.

Hey. I am an alum of Delta Phi Epsilon. This is one of our philanthropies. We are trying to get alum and friends to sign up for the walks in Brooklyn & on Long Island (think it's in Lido Beach this year). Haven't decided yet which location I am walking at.

Posted 3/8/08 10:17 AM
 
 
Quick navigation:   
Currently 691585 users on the LIFamilies.com Chat
New Businesses
1 More Rep
Carleton Hall of East Islip
J&A Building Services
LaraMae Health Coaching
Sonic Wellness
Julbaby Photography LLC
Ideal Uniforms
Teresa Geraghty Photography
Camelot Dream Homes
Long Island Wedding Boutique
MB Febus- Rodan & Fields
Camp Harbor
Market America-Shop.com
ACM Basement Waterproofing
Travel Tom

      Follow LIWeddings on Facebook

      Follow LIFamilies on Twitter
Long Island Bridal Shows