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ConcernedMom
LIF Zygote
Member since 3/07 5 total posts
Name:
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Neurosurgeon help?? (Hydrocephalus)
Has anyone dealt with prenatal hydrocephalus? And does anyone have any experience with a Dr. Steven Schneider in Nassau (Pediatric Neurosurgeon)? I would so appreciate it if anyone has any feedback.
We are meeting with him this week because our baby (I'm still PG) was diagnosed with a severe case of hydrocephalus. We've known for over a month now that the baby has hydrocephalus, but we thought it wasn't that bad. We just found out friday after reviewing the MRI that it is severe and doesn't look good. The baby may have severe brain damage when all is said & done. We are desperately praying that the baby doesn't have too many problems, and for now we just plan to do all we can and deal with it as it comes. I will have to deliver early (in the next few weeks). All the other doctors we have have been amazing so far, but Dr Schneider would be the one operating on our baby (to put a shunt in), so we want to make sure he is the right one.
Please, any info you have would be greatly appreciated. TY!!!!
Message edited 3/26/2007 12:26:46 PM.
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Posted 3/26/07 12:23 PM  |
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Maathy317
Grammie's Little Man
Member since 2/06 3235 total posts
Name:
D
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Re: Neurosurgeon help?? (Hydrocephalus)
All I can offer are prayers for you and your baby.
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| Posted 3/26/07 12:28 PM |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
My co-worker's daughter had hydrocephilitus (post partum). I just asked her. She said he is excellent. He put the shunt in for her daughter.
Bedside manner isn't so wonderful but he is a terrific doctor. Dr. Mittler is her daughter's surgeon (also great). Schnieder is considered the #1.
Many hugs & prayers to you & your family.
Message edited 3/26/2007 12:46:30 PM.
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| Posted 3/26/07 12:46 PM |
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nferrandi
too excited for words
Member since 10/05 18538 total posts
Name:
Nicole
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 12:53 PM |
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MichaelsMommy
Love my son!
Member since 6/05 1468 total posts
Name:
Lauren
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Re: Neurosurgeon help?? (Hydrocephalus)
No advice or information, just wanted to send some your way!
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| Posted 3/26/07 12:54 PM |
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paulandles912
My children are a blessing!
Member since 5/05 2598 total posts
Name:
Leslie
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 12:56 PM |
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Kathy116
Hey baby!
Member since 6/05 1855 total posts
Name:
me
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Re: Neurosurgeon help?? (Hydrocephalus)
Posted by ConcernedMom
Has anyone dealt with prenatal hydrocephalus? And does anyone have any experience with a Dr. Steven Schneider in Nassau (Pediatric Neurosurgeon)? I would so appreciate it if anyone has any feedback.
We are meeting with him this week because our baby (I'm still PG) was diagnosed with a severe case of hydrocephalus. We've known for over a month now that the baby has hydrocephalus, but we thought it wasn't that bad. We just found out friday after reviewing the MRI that it is severe and doesn't look good. The baby may have severe brain damage when all is said & done. We are desperately praying that the baby doesn't have too many problems, and for now we just plan to do all we can and deal with it as it comes. I will have to deliver early (in the next few weeks). All the other doctors we have have been amazing so far, but Dr Schneider would be the one operating on our baby (to put a shunt in), so we want to make sure he is the right one.
Please, any info you have would be greatly appreciated. TY!!!!
My son did not have prenatal hydrocephalus, but he has had his share of seeing neurosurgeons, MRIs, etc. It was scary, because we were preparing ourselves for crainosynostosis, and in the end, his diagnosis was not bad at all, just positional plagiocephaly.
That being said...we've heard fantastic things about Dr. Schneider, and were told that he's one of the top ped. neurosurgeons in the area. We needed an appointment for my son ASAP, and could not wait for Schneider's schedule to open, so we saw his partner, Dr. Mittler. Dr. Mittler was also excellent, and were very happy with him.
We also saw Dr. Michael Egnor, and we loved him as well (affiliated with Stony Brook). We just wanted to see more than one neurosurgeon to get different opinions.
I hope everything turns out well for your baby. Let me know if there is anything I can do.
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| Posted 3/26/07 12:57 PM |
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JTK
my 4 boys!
Member since 6/06 7396 total posts
Name:
Kristi
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Re: Neurosurgeon help?? (Hydrocephalus)
I don't know of the doctor you are using but Dr. Mittler is excellant and actually was the one who my Dh used for my stepdaughter...who also had hydrocephalus
I work with Dr. Egnor at Stonybrook.. FM if you want info!! i am soo sorry about your baby..i'm praying for you and your family!
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| Posted 3/26/07 1:07 PM |
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4monkeys
boys will be boys =)
Member since 9/05 7205 total posts
Name:
:)
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 1:09 PM |
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ConcernedMom
LIF Zygote
Member since 3/07 5 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
Posted by nrthshgrl
My co-worker's daughter had hydrocephilitus (post partum). I just asked her. She said he is excellent. He put the shunt in for her daughter.
Bedside manner isn't so wonderful but he is a terrific doctor. Dr. Mittler is her daughter's surgeon (also great). Schnieder is considered the #1.
Many hugs & prayers to you & your family.
Thanks for finding out! I'm relieved to hear that he's a great Doctor. Bedside manner is not the most important to us- as long as we can get our questions answered and feel confident in his work, that's fine.
TY all for your hugs and prayers!  God knows we need all we can get!
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| Posted 3/26/07 1:15 PM |
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CookiePuss
Cake from Outer Space!
Member since 5/05 14021 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
My prayers for you and your baby...
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| Posted 3/26/07 1:21 PM |
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ConcernedMom
LIF Zygote
Member since 3/07 5 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
Posted by Kathy116
Posted by ConcernedMom
Has anyone dealt with prenatal hydrocephalus? And does anyone have any experience with a Dr. Steven Schneider in Nassau (Pediatric Neurosurgeon)? I would so appreciate it if anyone has any feedback.
We are meeting with him this week because our baby (I'm still PG) was diagnosed with a severe case of hydrocephalus. We've known for over a month now that the baby has hydrocephalus, but we thought it wasn't that bad. We just found out friday after reviewing the MRI that it is severe and doesn't look good. The baby may have severe brain damage when all is said & done. We are desperately praying that the baby doesn't have too many problems, and for now we just plan to do all we can and deal with it as it comes. I will have to deliver early (in the next few weeks). All the other doctors we have have been amazing so far, but Dr Schneider would be the one operating on our baby (to put a shunt in), so we want to make sure he is the right one.
Please, any info you have would be greatly appreciated. TY!!!!
My son did not have prenatal hydrocephalus, but he has had his share of seeing neurosurgeons, MRIs, etc. It was scary, because we were preparing ourselves for crainosynostosis, and in the end, his diagnosis was not bad at all, just positional plagiocephaly.
That being said...we've heard fantastic things about Dr. Schneider, and were told that he's one of the top ped. neurosurgeons in the area. We needed an appointment for my son ASAP, and could not wait for Schneider's schedule to open, so we saw his partner, Dr. Mittler. Dr. Mittler was also excellent, and were very happy with him.
We also saw Dr. Michael Egnor, and we loved him as well (affiliated with Stony Brook). We just wanted to see more than one neurosurgeon to get different opinions.
I hope everything turns out well for your baby. Let me know if there is anything I can do.
TY! Actually I've read that all 3 of those Dr's are part of the hydrocephalus organization. And Dr Schneider & Dr Mittler are from thesame office. I've been doing research on all of them and I'm hoping we really feel confident with at least one of them.
Message edited 3/26/2007 1:26:54 PM.
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| Posted 3/26/07 1:25 PM |
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Tracey
***********
Member since 5/05 6297 total posts
Name:
Tracey - brideinapril
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Re: Neurosurgeon help?? (Hydrocephalus)
Have no advice - but sending you prayers and hugs....
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| Posted 3/26/07 1:38 PM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: Neurosurgeon help?? (Hydrocephalus)
we also saw Dr. Mittler (not for hydrocephelus though) but we were very impressed. Best of luck -- my thoughts and prayers are with you.
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| Posted 3/26/07 2:17 PM |
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TwoGirls4Me
Treasure what you have
Member since 5/05 1839 total posts
Name:
Marie
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Re: Neurosurgeon help?? (Hydrocephalus)
I have no advice but just wanted to offer you tons of
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| Posted 3/26/07 2:47 PM |
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CunningOne
***
Member since 5/05 26975 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 2:53 PM |
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LIMOMx2
...
Member since 5/05 24989 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 2:54 PM |
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Stacey1403
Where it all began....
Member since 5/05 24065 total posts
Name:
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Re: Neurosurgeon help?? (Hydrocephalus)
My mother worked for a pediatric neurosurgeon for years and I asked her about him. She said he is an excellent Dr. and that he is with a great group. She also said that hydrocephalus can be actually quite common and that they can do surgery in-utero if they needed to.
My Mom knows a lot about these kinds of things so if you ever want me to ask her any questions for you I can. Just send me and FM and good luck
Message edited 3/26/2007 3:05:23 PM.
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| Posted 3/26/07 3:04 PM |
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SkyzTheLimit
Bring on summer!!!
Member since 3/06 2483 total posts
Name:
Jamie
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 3:53 PM |
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pharmcat2000
Mom of 2 + 1
Member since 10/05 7395 total posts
Name:
Catherine
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Re: Neurosurgeon help?? (Hydrocephalus)
I don't know about any of those doctors listed, but I wanted to send you my thoughts and prayers for a good outcome for your little baby!
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| Posted 3/26/07 3:56 PM |
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luvmiboy
I love my sister!!!!!!
Member since 3/06 2100 total posts
Name:
Me
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 5:52 PM |
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Moehick
Ready for the sun!
Member since 5/05 30339 total posts
Name:
Properly perfect™
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Re: Neurosurgeon help?? (Hydrocephalus)
Many, Many prayers for you and your baby
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| Posted 3/26/07 6:02 PM |
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michele31
LIF Adult
Member since 5/05 3372 total posts
Name:
Michele
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 6:08 PM |
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dld4e
I ♥ my boys!
Member since 5/05 4461 total posts
Name:
DJ
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 6:33 PM |
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apb17
My guys
Member since 5/06 2173 total posts
Name:
Alli
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Re: Neurosurgeon help?? (Hydrocephalus)
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| Posted 3/26/07 8:10 PM |
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