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LisaW
Time for me to FLY!
Member since 5/05 13199 total posts
Name:
Did I ever tell you that I hate people?
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My Update
Went Monday for our follow-up with Dr Scher to get the results of all the tests he had done. Well, it turns out, in addition to the immune problems I already knew about, FOUR MORE THINGS TURNED UP IN MY BLOODWORK. I basically have abnormal and elevated antibodies, which in turn, fight off the embryos.
His fix for this is to add IVIG in addition to the baby aspirin, lovenox, and folgard (3 times a day), which I have basically done the last 2 cycles. Intravenous Immunoglobulin G (IVIG) is a sterile protein preparation derived from human blood. I won't bore you with the medical mumbo jumbo, but basically its a transfusion of a blood product that will put my immune system in order so the embryo(s) can implant. Very scary, but I think I am going to do it. DH is not thrilled with the whole thing, but there are really no options left...Oh, did I mention its not FDA approved for this use (and 3 grand each time you do it, and insurance might not cover it?)? 
He is sending a letter to Dr Davis informing him of my results and my protocol. I know quite a few other patients of Dr Davis that are doing this, so I know there won't be a problem. It looks like I will be cycling the end of April or so...
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Posted 3/15/06 8:30 AM  |
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karacg
Babygirl is 4!
Member since 5/05 17076 total posts
Name:
Kara®
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Re: My Update
Wow Lisa, it sounds very promising despite the "bad" news. I am looking forward to a BFP announcement from you come the end of May!!
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| Posted 3/15/06 8:33 AM |
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luvsun27
Check out my cool glasses
Member since 5/05 8135 total posts
Name:
Kim
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Re: My Update
Lisa...just wanted to send some you way
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| Posted 3/15/06 8:37 AM |
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CookiePuss
Cake from Outer Space!
Member since 5/05 14021 total posts
Name:
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Re: My Update
Lisa....I'm sorry about the results of the bloodwork but at least you have some answers and a clear path. Sending lots of hugs and much baby dust...  
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| Posted 3/15/06 9:04 AM |
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rose825
Best Friends
Member since 6/05 10228 total posts
Name:
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Re: My Update
I hope that this is the answer for you. It will be 3K well spent.
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| Posted 3/15/06 9:08 AM |
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redstar
Delay is not denial
Member since 5/05 2220 total posts
Name:
Michelle
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Re: My Update
Lisa, it is overwhelming....gosh I know. Seems like we are both IVIg candidates.
I do have a great belief that this is the 'key'. I can not wait until you announce your bfp !!!!
You know you are always in my prayers
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| Posted 3/15/06 9:08 AM |
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mrsmck
Be a big girl!
Member since 5/05 4898 total posts
Name:
Donna
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Re: My Update
Lisa, I hope this new course of treatment will be "THE ONE"!!!!
Sending lot of and
We gotta start having some "trampy" babies to bring to a GTG!!!!! 
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| Posted 3/15/06 10:02 AM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: My Update
Well I hope the new addition to the protocol is exactly what does the trick for you! I will keep my fingers crossed, say a prayer and send you as much baby and sticky dust as I can muster.
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| Posted 3/15/06 1:15 PM |
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Sharon
So Big... So Fast!
Member since 5/05 2959 total posts
Name:
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Re: My Update
As scary as it may be, it sounds like the IVIG is the right thing to do. Keeping my fingers crossed for you and waiting to hear of your BFP!!!
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| Posted 3/15/06 1:32 PM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: My Update
sending you tons and tons of baby dust.
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| Posted 3/15/06 2:59 PM |
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Gertyrae
Peace out Homies!
Member since 5/05 20046 total posts
Name:
Gerty ®
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Re: My Update
At least you now have some idea of what is REALLY going on...Good luck, I hope to see your BFP very soon!
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| Posted 3/15/06 4:01 PM |
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Tah-wee-ZAH
Kisses
Member since 5/05 15952 total posts
Name:
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Re: My Update
I hope this is the answer and the end of your struggle.
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| Posted 3/15/06 4:37 PM |
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sylvester
LIF Infant
Member since 10/05 325 total posts
Name:
Rosanna
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Re: My Update
senidng you
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| Posted 3/15/06 4:40 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: My Update
I am praying whatever the protocol you get a BFP soon Lisa...Your always in my thoughts!
INCIID has a lot of message boards on immune issues...if you didnt already check that out...I know IVIG is spoken about a lot there.
I do think its controversial only because of course long term they dont know what could happen BUT isisnt that the case with everything? So I hope your fears can be pushed to the side and get good treatment.
Did he explain why the labs showed different now? I ask because I have read about false positives on tests involving immune system functions. When they see something abnormal, are they able to re-test.
I think I have mentioned this before, but I was diagnosed with Lupus after I lost my daughter and it turns out the tests were wrong....
Im so leary of blood tests because of it.
As I said...wishing you all the baby dust in the wrold..Sounds like your in GREAT HANDS!!
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| Posted 3/15/06 6:07 PM |
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LisaW
Time for me to FLY!
Member since 5/05 13199 total posts
Name:
Did I ever tell you that I hate people?
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Re: My Update
Posted by dm24angel
Did he explain why the labs showed different now? I ask because I have read about false positives on tests involving immune system functions. When they see something abnormal, are they able to re-test.
Actually, this was more in depth testing, tests that were never done before. He wasn't surprised at what came back b/c one of the original things I came there for (positive anticardiolipin antibodies) often shows up when these other antibodies are elevated.
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| Posted 3/15/06 6:12 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: My Update
Posted by LisaW
Posted by dm24angel
Did he explain why the labs showed different now? I ask because I have read about false positives on tests involving immune system functions. When they see something abnormal, are they able to re-test.
Actually, this was more in depth testing, tests that were never done before. He wasn't surprised at what came back b/c one of the original things I came there for (positive anticardiolipin antibodies) often shows up when these other antibodies are elevated.
gotcha!!
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| Posted 3/15/06 6:17 PM |
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