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Far fetched but does anyone have a dc that

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LoveBeingMrsT
Love my Boys!

Member since 12/05

4648 total posts

Name:

Far fetched but does anyone have a dc that

has extreme laxity in their joints? my ds has ETREME laxity in all joints but his shoulders are crazy.Chat Icon have u tried anything besides exercise to help?


also anyone with extreme toe walkers? have you found any specific heavy shoe to help or any therapy that actually works?
thanx!

Message edited 12/23/2010 2:39:18 PM.

Posted 12/23/10 2:37 PM
 

A3CM
Avatar Title

Member since 9/08

3762 total posts

Name:
Mommy

Re: Far fetched but does anyone have a dc that

DS did not have extreeme toe walking but we did brushing with him and we even discussed weighted vests

Posted 12/23/10 5:45 PM
 

sapphire
LIF Adolescent

Member since 6/06

568 total posts

Name:
Elizabeth

Re: Far fetched but does anyone have a dc that

You may also want to try to put him thermal pants or something very snug around his legs. A lot of time toe walking can be a result of trying to get that proprioceptive input.

They also have shoes that make sounds to encourage the toe to heel walking

Posted 12/23/10 8:45 PM
 

smdl
I love Gary too..on a plate!

Member since 5/06

32461 total posts

Name:
me

Re: Far fetched but does anyone have a dc that

DS has well above normal flexibility in his joint. Especially his wrists/upper body.

Which has been an issue on why he is not strong at all. Big boy but floppy muscles. He is low tone.

We has OT and PT and since we did horseback riding we have seen major improvement in his core strength but he is still not up to par for his age.

He is still VERY imbalanced and if you push him he WILL fall backward. His muscles are too weak to hold position. He still can't do sit ups and has to lean on the side to go from a laying down on back position to a sitting position.

His toe walking has slowed down. If you put boots or shoes that go above the ankle it will be MUCH HARDER for him to toe walk. In general, DS does toe walk as much with shoes. But he still trips a lot. He still cannot alternate legs going up the stairs. Although that has improved because if I hold him under the armpits going up the stairs he now can do alternate legs.

"strength training" is what we do to help him. The low tone will NOT go away neither the hyperflexibily. I have a balance beam for him at home. We do squatting exercise. I have an exercise ball. I have to put the trampoline together still.

Since school is out until January and his uninterrupted services do not provide OT and PT at home, I will have to work with him myself for the 1.5 week.

Posted 12/23/10 10:28 PM
 

shelby34
Love being a twin mommy!

Member since 5/07

2934 total posts

Name:
Michele

Re: Far fetched but does anyone have a dc that

I have worked with some students that used biofeedback for toe walking. It may be something to ask your doc about.

Posted 12/23/10 11:24 PM
 
 

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