Question re: Endometriosis

I haven't officially been diagnosed with endo yet - that will happen shortly I'm sure. But, I have a question: If you have it, when does it hurt the most? Meaning...before AF, durring, after, all the time, etc.? Any help would be appreciated! Thanks!
Kathy

Re: Question re: Endometriosis

Kathy as you already know, I have endo ..

Unfort. every case is different (everyone has different symptoms too) but in my particular case, I used to get the most severe pain before AF was due and during. The other weeks in the month, I generally felt ok.

However I prob. had endo for years before I was diagnosed, and the only reason I became suspicious that I had it was because I was having pain around my ovaries ALL THE TIME .. after 2-3 months or that, I finally went for the lap procedure and they saw that I did, indeed , have endo

The weird part about endo is that often when its a mild case (like mine was) you can have bad symptoms/pain.. and often when you have a severe case of endo, you don't always have syptoms or pain at all!

I started a thread on TTC on LIWs when I was diagnosed, where a lot of people gave me great advice.. I'll try to search for it, there is some good info on there

Message edited 6/27/2005 11:47:22 AM.

Re: Question re: Endometriosis

Kathy, like Felicia said, every case is different, but a telltale sign of endo is very painful periods. That's the first question my RE asked me. You can sometimes tell from a sonogram whether or not you have it, so that's the first step my RE took. (Just a warning, I thought I was just going in for a consultation on my first appt with my RE, but she did a sonogram that day, so yours might do the same.) My sister has endo and has pain every day. They think I might have endo. I have mild pain all month long, but most severe when AF comes around. GL at your appt!

Re: Question re: Endometriosis

Thanks Ladies,
I pretty much have pain all month long. Some days its mild.moderate and some its just plain BAD. Like today it's hurting me a bit but I also feel so sick to my stomach. I'm pretty sure (judging from my symptoms) that I have it too - I really want to know why Im in pain and feel so sick and tired so much of the time.

Re: Question re: Endometriosis

it would be while my best friend had AF....she was on RX pain killers and she'd be doubled over in pain and crying! I think it's also when right before AF came it would hurt too but not as much.

Re: Question re: Endometriosis

for two months, i had af backing up into my system and i am CONVINCED that i developed endo from that.....my doc said that two months was not enough to cause it, but i have been having pain in my right ovary during ovulation ever since i developed ashermans.

is pain in the ovaries during ovulation a symptom of endo? also, are endo biopsies and laps the only sure ways to diagnose it?

i am going for a hsg in three weeks - can they tell anything from that?

thanks in advance!

Re: Question re: Endometriosis

Message edited 6/27/2005 2:29:07 PM.

Re: Question re: Endometriosis

Kara,
My OBGYN told me the only way to diagnos endo is with a laperscopy. But based on my symptoms she is pretty certain I do have it. She referred me to an RE and they will find out for sure - via laperscopy - I'm sure.
I have the type of pain you described - all the time pretty much.
But you can also have that pain when you are ovulating.
the endometrial biopsy cant detect endo - I dont think. Neither can an HSG usually. Although the HSG will show if you have blocked tubes and can show if you have pollups

Re: Question re: Endometriosis

thank you, guys for the great info...

i guess after my ashermans treatment, we will "try" for three or four months......if nothing happens, i will go to a specialist and start tesing for endo....

unless the pain gets worse, then i will start sooner...what do you guys think?

it's so hard, i am not sure what course of action to take anymore. i just want to give up. i have only been married for seven months and it has been the toughest seven months of my life.....my poor dh....

well, even though i don't post much anymore, i have been following everyone's stories and i wish everyone the BEST and MOST baby dust in the entire world....every morning i log on wishing one of us would announce a pregnancy already!!!!!

Message edited 6/27/2005 9:36:26 PM.

Re: Question re: Endometriosis

Posted by kakarch

thank you, guys for the great info...

i guess after my ashermans treatment, we will "try" for three or four months......if nothing happens, i will go to a specialist and start tesing for endo....

unless the pain gets worse, then i will start sooner...what do you guys think?

it's so hard, i am not sure what course of action to take anymore. i just want to give up. i have only been married for seven months and it has been the toughest seven months of my life.....my poor dh....

well, even though i don't post much anymore, i have been following everyone's stories and i wish everyone the BEST and MOST baby dust in the entire world....every morning i log on wishing one of us would announce a pregnancy already!!!!!

Re: Question re: Endometriosis

i am currently taking estrogen for 30 days followed by 5 days of progesterone. after that is completed, i will have and hsg and a mid-cycle ultrasound to see if any scar tissue has grown back.

i will have the hsg and u/s done by someone here and then the results are being fowarded to the ashermans specialist who did my surgery in california - he will have the final say regarding my post-op treatment.

Re: Question re: Endometriosis