I just found out that one of my 5 month old triplet boys has this deficiency, and now I am getting my other DS tested (the hemotologist said girls are just carriers and I do not have to get my DD tested until later on in life).

Anyways...does anyone know anyone or have a child that has this deficiency? It is all diet base, and very easy to control, however not many doctors are familiar with it because its not very predominant in the US. I was just trying to receive additional information and find out what foods I should be completely staying away from
(since I am pumping for him).

Thanks!!!