Posted By |
Message |
rbsbabies
LIF Adolescent
Member since 12/08 544 total posts
Name: Melissa
|
Here we go again..Update
So in short, for those that know me I have 6 boys. 2 so far have a diagnosis. My 7 year old is ASD and severe, My 3 year old is PDD-NOS and doing well. Has issues but he's a quick learner and most importantly is able to communicate. My little guy is 19 months. Just started walking a month ago. He's been getting p/t for 6 months and gets 2x a week special ed., for language and delays. Since he's approaching 2 this summer the big question popped up by the teachers...could he be on the spectrum. I could just crumble. How can I do this again? Why do I have to again? I'm in such a "woe is me" mode right now it sucks. I will tell you this though, yes he's not totally what they call "typical". His language is delayed and his play skills are off. He just mouths everything and tosses it. He does have some sensory issues too. Yes he'd totally benifit from ABA but do I really think it's autism? Not at this point but maybe it's because my head is in the sand, or maybe it's because I have 2 others and keep saying well he doesn't do this or that.....Now I have to make the dreaded phone call to EI. My coordinator is so nice but he's always telling me that he feels so bad for me. Hmmm, that doesn't really make me feel better. I feel bad for me too but I need someone to slap me in the face and say get over it, it is what it is and it's time to get this kid more help. So I'm asking you...please...SLAP me UPDATE 4/18 So I got a call back and her words were- when your other son was receiving speech his teacher called me in 2 weeks saying something isn't right. (DS w/PDD) The fact that no one has called her within the 6 months he's been getting services is a good sign. Plus she read his 3 month report and even though it states continued services there are no major concerns. He does imitate, his joint attention is perfect along with eye contact and there are no behavioral issues. So she's coming 5/2 to set up a Physological. I dread it. Sometimes the family history thing puts such a marker on us. Anyone who's used someone they love and is un-biased I'd love to hear suggestions. Last son we used Marion K. so we don't want to use them again. I'm slowly pulling my head out of the sand......very slowly
Message edited 4/18/2012 5:07:58 PM.
|
Posted 4/18/12 8:28 AM |
|
|
sapphire
LIF Adolescent
Member since 6/06 568 total posts
Name: Elizabeth
|
Re: Here we go again..
No slaps , just hugs
You do so much for your children,...gosh your 19 month has already received services ! You are far from a mom with her head in the sand.
I just hope that his delays are just that, delays, and that his stay in EI is a short one.
|
Posted 4/18/12 9:57 AM |
|
|
ruby
you rang?
Member since 6/08 5573 total posts
Name:
|
Re: Here we go again..
Get over it and get him the help he needs. He's already getting EI so it may just be a few more hours.
You asked for it. Seriously though, you know, as we all do, that whether or not he's labeled is irrelevant. If it gets him the services now then whatever works. I'm not going to say I feel bad for you, my MIL says this to me (and I only have one on the spectrum) and I haaaaaate it. Don't pity me I tell her, it is what it is. I will send you and tell you what you already know, we're all her for you when you need us.
Message edited 4/18/2012 10:02:26 AM.
|
Posted 4/18/12 10:01 AM |
|
|
dpli
Daylight savings :)
Member since 5/05 13973 total posts
Name: D
|
Re: Here we go again..
I feel badly for you, but I feel badly for myself and everyone else on this board that has to go through so many hoops to get their kids what they need. But what choice do we have? The alternative is not an option.
And as hard as it is (believe me, I KNOW how hard it is), try not to get ahead of yourself and try to look at what's in front of you right now. Make the call to EI and see what they say.
|
Posted 4/18/12 12:00 PM |
|
|
Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name: D
|
Re: Here we go again..Update
Lots of hugs. It must be hard to go through this over and over. It is like being punched in the gut a hundred times.
|
Posted 4/19/12 7:33 AM |
|
|
Twins98
LIF Infant
Member since 8/08 243 total posts
Name:
|
Re: Here we go again..Update
|
Posted 4/19/12 11:31 AM |
|
|