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danis2031
LIF Zygote
Member since 2/10 38 total posts
Name:
Danielle
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Twins sharing a placenta with the demise of one twin
I was pregnant with twins that shared a placenta. At 15 weeks one of the twins passed and we have no idea why. There was no evidence of twin to twin transfusion. However, due the fact they shared a placenta, when one died, the other may have suffered severe neurological damage. I am 18 week along now. I have seen about 5 doctors, including one from Yale and 2 from Columbia. The percentages of severe neurological damage ranges from 12 %-30%. The Columbia doctors have convinced us to wait until I am 22 weeks to have an MRI of the babies brain. Does anyone know anyone who had something similar? What did they do? If they carried until term, how was the baby's health? Any info would be greatly appreciated. Thanks.
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Posted 4/1/13 10:37 PM  |
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baby22012
LIF Adolescent
Member since 11/12 870 total posts
Name:
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Re: Twins sharing a placenta with the demise of one twin
I've never dealt with this but I'm so sorry you are going through this waiting game.  Praying that all works out for you.
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| Posted 4/2/13 7:41 AM |
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skinny
3 boys and a princess!
Member since 11/08 8178 total posts
Name:
Momma
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Re: Twins sharing a placenta with the demise of one twin
Just want to tell you how sorry I am that you are going through this. How horrible. 
Praying you get some answers.
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| Posted 4/2/13 7:44 AM |
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MESal0820
LIF Adolescent
Member since 2/11 543 total posts
Name:
Meghan
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Re: Twins sharing a placenta with the demise of one twin
I have no help for you but lots of thoughts!
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| Posted 4/2/13 7:56 AM |
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TyReseGreen
Lil Prince is here
Member since 8/11 6338 total posts
Name:
Theresa
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Re: Twins sharing a placenta with the demise of one twin
I never experienced this myself with twins, but have seen cases like this. The end result varies. Wait for the MRI and go from there.
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| Posted 4/2/13 8:19 AM |
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Pray4Baby2010
<3 Cutest Giants Fan
Member since 10/09 5796 total posts
Name:
MB
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Re: Twins sharing a placenta with the demise of one twin
just wanted to send some hugs and prayers
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| Posted 4/2/13 8:21 AM |
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TaraVinny
my miracle coming October!!!
Member since 10/09 1049 total posts
Name:
Tara
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Re: Twins sharing a placenta with the demise of one twin
I'm so sorry. I lost my twin at 8 weeks but they had their own sacs. My heart goes out to you. Good luck and I pray for you that everything is good.
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| Posted 4/2/13 9:40 AM |
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Twins sharing a placenta with the demise of one twin
I know someone who went through something similar but I don't know all the specific details. She lost her boy at 20 weeks but her little girl survived. Her little girl is now 8 months old and one of the happiest and cutest babies I have ever seen. She is healthy and active and completely perfect.
I hope that your baby is safe and that you can rest easy for the rest of your pregnancy!
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| Posted 4/2/13 9:47 AM |
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kahlua716
3 Girls for Me!
Member since 8/07 12475 total posts
Name:
Keri
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Re: Twins sharing a placenta with the demise of one twin
I have no experience. I'm so sorry- I pray everything works out well for you
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| Posted 4/2/13 12:01 PM |
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Hope2009
Thankful
Member since 1/09 4429 total posts
Name:
A
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Re: Twins sharing a placenta with the demise of one twin
sorry no experience. ..
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| Posted 4/2/13 12:03 PM |
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Re: Twins sharing a placenta with the demise of one twin
No experience, just sending lots of prayers and hugs
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| Posted 4/2/13 12:17 PM |
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LadyBug1209
Mommy to FOUR little men!
Member since 8/08 9655 total posts
Name:
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Re: Twins sharing a placenta with the demise of one twin
No experience, but I'm so sorry for your loss.
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| Posted 4/2/13 12:21 PM |
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IVFmiracle
Complete
Member since 12/12 4088 total posts
Name:
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Re: Twins sharing a placenta with the demise of one twin
Did they say why they thought the twin might have suffered neurological damage?
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| Posted 4/2/13 3:13 PM |
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DaniJude
You're My Home <3
Member since 11/06 14815 total posts
Name:
Danielle
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Re: Twins sharing a placenta with the demise of one twin
I'm so sorry to even be posting because I have no experience with this but I had to write just to say how sorry I am that you are going through this.
Many prayers that your baby is alright and everything works out for you.
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| Posted 4/2/13 3:48 PM |
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Re: Twins sharing a placenta with the demise of one twin
sorry no experience either. I had a friend who lost a twin at 18 weeks but they each had their own so different story . hope you get some info soon and it is good news, that is so hard to be in that awful zone of not knowing anything
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| Posted 4/2/13 3:54 PM |
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danis2031
LIF Zygote
Member since 2/10 38 total posts
Name:
Danielle
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Twins sharing a placenta with the demise of one twin
Thank you all for your kind thoughts and prayers. The reason they said the surviving twin could have neurological damage is when both babies were alive they shared blood back and forth with the placenta. There was an even blood pressure balance on both sides. When one twin died, the blood pressure dropped on that side. The blood from the healthy twin rushes out to compensate on the other side. The intial rush of blood out of the healthy twin's brain could cause neulrological damage. Also, because the blood wasn't pumped back to the healthy twin, it took time to return. The loss of blood and oxygen during that time could also cause neurological damage. Now it is a waiting game. April 24 is our prenatal mri at Columbia Hospital in Manhatten. At that time I will be 21 and half weeks along.
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| Posted 4/2/13 4:44 PM |
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IVFmiracle
Complete
Member since 12/12 4088 total posts
Name:
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Re: Twins sharing a placenta with the demise of one twin
I hope everything is ok
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| Posted 4/2/13 7:41 PM |
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