My daughter was diagnosed with subclincal seizures. Anyone have any experience with this? Does it entitle her to more services?

My daughter was diagnosed with PDDNOS, but SPD and developmental delays seem to be more accurate in describing her condition. She was recently diagnosed with subclinical seizures (seizures that you don't necessarily see but show up on EEG). Her brain MRI is normal. Does anyone have any experience with this? I will talk to the neurologist more indepth as to what is the cause, because right now we don't know. Is she entitled to more services now?

Re: My daughter was diagnosed with subclincal seizures. Anyone have any experience with this? Does it entitle her to more services?

I am part of a facebook group for Apraxia. It's essentially run by CASANA (childhood apraxia of speech national association). Many of the moms in the group have found their kids to have silent seizures. Some have also witnessed remarkable improvement in their kids after being medicated correctly.

Very often a child who has 'global apraxia', "dyspraxia" can get the diagnosis for PDD which is something to keep in mind.

It's been my experience that a PDD diagnosis gets the most services since PDD is a huge umbrella that could require all types of specialties to intervene. I am not sure if your daughter has OT and PT as well as speech and special ed services, but you most certainly should look into covering all aspects of the neurological system.

You may find this TED talk really interesting

Message edited 7/21/2013 7:36:53 PM.

Re: My daughter was diagnosed with subclincal seizures. Anyone have any experience with this? Does it entitle her to more services?

Thanks! Great video! Do you know where I may be able to sign my daughter up for such a thing? It seems like they are watching the picture of the brain together with the EEG. DD's EEG showed the seizures. My daughter probably does not have apraxia, but thanks for mentioning it. I am very much into the idea of a proper diagnosis not just based on behavior. We saw our neurologist today and I wished I saw the video before then, but we will see her again in a few months. Right now we need to get my daughter on seizure medication to get the seizures under control, then we will try to find the reason for them. Her MRI was normal. I can't wait to see what happens to her once the seizures stop!

And, yes, she has speech, OT, and PT and the improvement with therapies has been nothing short of miraculous. We are very lucky to have found good people.

Message edited 7/22/2013 10:12:39 PM.