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Need your help please

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Pages: 1 [2] 3

SweetestOfPeas
J'taime Paris!

Member since 3/06

32345 total posts

Name:

Re: Need your help please

Ron, just wanted to let you know that your son is in my thoughts!!!!!

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Message edited 8/1/2006 3:08:52 PM.

Posted 8/1/06 3:08 PM
 
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Bri
I Love You to Pieces!

Member since 5/05

9919 total posts

Name:
Brianne

Re: Need your help please

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Message edited 8/1/2006 3:15:34 PM.

Posted 8/1/06 3:15 PM
 

Ambersmom
Straight up nasty

Member since 5/05

7740 total posts

Name:
Sharon

Re: Need your help please

Posted by hmpena

I don't have a recommendation but I wanted to send lots of Chat Icon and Chat Icon

Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon



Same here!

Posted 8/1/06 3:16 PM
 

VirginiaDeb
Don't eat me, hippo!

Member since 5/05

9252 total posts

Name:
Deb

Re: Need your help please

I'll call my step-dad later... He works at Stony Brook and had Lymes a few years ago (trust me - he would only go to the best).

Posted 8/1/06 3:17 PM
 

baghag
:P

Member since 5/05

10278 total posts

Name:

Re: Need your help please

No recommendations, but many hugs and prayers for you guys. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 3:17 PM
 

JenG
Love my little boy!

Member since 6/05

2489 total posts

Name:
Jen

Re: Need your help please

Posted by regi

Dr. Carol Singer is an infectious disease specialist at LIJ. Her number is 516 470 4415.

She is wonderful. Hopefully, she can help you.




i work at LIJ and Dr. Singer is very good from what i hear. i would call her.

good luck Chat Icon

Posted 8/1/06 3:21 PM
 

Shanti
True love

Member since 6/05

12653 total posts

Name:

Re: Need your help please

No rec but lots of Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 3:21 PM
 

MsMBV
:P

Member since 5/05

28602 total posts

Name:
Me

Re: Need your help please

Hey Ron.,..from a 2000 study about the best Lyme Disease Doctors. The one in Westchester, Dr. Robert Nadelman (914-493-8865), was on a research team that was trying to find out what to do about the *stuborn* cases where anti-biotics did not work.

"Ask five different doctors to describe Lyme disease, and you'll get five different answers. Often called the "Great Imitator," and commonly associated with up to 100 different symptoms, Lyme disease is a multistage bacterial infection, transmitted by deer ticks, that first results in flulike symptoms, joint pain, and fatigue. If you're fortunate enough to realize you've been infected -- more than 70 percent of its victims don't even know they've been bitten -- the disease is readily treatable with antibiotics. Absent treatment, the infection can lie dormant before returning in the form of late-stage symptoms such as neurological disorders, heart irregularities, and, most often, swollen knees or migrating joint pain. If the disease reaches this late stage undetected, it can be very difficult to treat. Currently, a fierce medical debate is raging over the merits of long-term treatment. While most doctors say that a 30- to 60-day course of antibiotics is sufficient to kill the infection, others insist that long-term antibiotic treatment is often necessary. Most infectious-disease specialists are concerned that extensive treatment is potentially dangerous, and are awaiting the results of current studies-in-progress. Manhattan infectious-disease doctors who specialize in Lyme disease are Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), and Christopher Busillo (212-238-0102) and Chester Lerner (212-238-0106) at New York University Downtown Hospital. In Westchester: Robert Nadelman (914-493-8865) and Gary Wormser (914-493-8865) at Westchester Medical Center. In Nassau: Eileen Hilton (516-470-6900), director of the Lyme Disease Diagnostic and Treatment Center, and Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center. In Connecticut: Eugene Shapiro at Yale-New Haven Hospital (203-688-4518) and Debra Adler-Klein at Stamford Hospital (203-325-0146). Two internists with particular expertise in treating the illness are Bruce Logan at Manhattan's New York University Downtown Hospital (212-608-6634) and Raymond Dattwyler at U Hospital, Stony Brook, in Suffolk (631-444-8364). In addition to infectious-disease specialists, many rheumatologists who treat patients suffering from arthritic conditions have become adept at recognizing the illness. Among the best are Thomas Argyros, director of the Lyme Disease Center at Lennox Hill Hospital (212-988-7680); in New Jersey: Leonard Sigal at Robert Wood Johnson Medical School (732-235-7210); in Connecticut: Robert T. Schoen at Yale-New Haven Hospital (203-789-2255). Recently, LYMErix, a new FDA-approved vaccine, has proven 80 percent effective in clinical trials. For up-to-date information on the vaccine and other issues, contact the American Lyme Disease Foundation at 914-277-6970 or visit its Website at www.aldf.com."

Source

ETA: and I am waiting for a call back for you ad well.

Message edited 8/1/2006 3:44:38 PM.

Posted 8/1/06 3:22 PM
 

dm24angel
Happiness

Member since 5/05

34581 total posts

Name:
Donna

Re: Need your help please

Ron-

My sister said she saw

Dr. Irwin Ingwer, MD 789 Old Country Road Plainview, New York 11803
(516) 433-3600

she said hes very very knowledgable about Lyme and helped her get well after many failed attempts!

Good luck!!

Posted 8/1/06 3:22 PM
 

julz33
i run for bacon

Member since 5/05

20584 total posts

Name:
julz

Re: Need your help please

Jonathan is such a sweet boyChat Icon Chat Icon I hope he gets well soon!

Posted 8/1/06 3:29 PM
 

Emily
Kasey & Me! Lurves it!

Member since 7/06

8703 total posts

Name:
STBHC

Re: Need your help please

I have a slew of doctors..for my various hypochondriac problems...that is what dh calls them. I know they are real! I am going to one this afternoon and I will ask for a reccomention.

Posted 8/1/06 3:41 PM
 

Blu-ize
Plan B is Now Plan A

Member since 7/05

32475 total posts

Name:
Susan

Re: Need your help please

Ron- my doc recommended:

Dr. Cunbas. Affiliated with Winthrop University Hospital. 516-663-2507.

Posted 8/1/06 3:49 PM
 

FireIslandLove

Member since 5/05

12119 total posts

Name:

Re: Need your help please

Posted by baghag

No recommendations, but many hugs and prayers for you guys. Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon


Same here!!! Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 3:59 PM
 

lorich
.

Member since 6/05

9987 total posts

Name:
Grammie says "Lora Gina"

Re: Need your help please

Ron I sent you an FM with two Doctors the Chairman of the Board at LIJ recs...
Good luck...I hope and pray they can help Jonathan get relief.Chat Icon

Posted 8/1/06 4:10 PM
 

skygirl
Our prayers were answered:)

Member since 6/05

4919 total posts

Name:
Erica

Re: Need your help please

Posted by MsMBV

Hey Ron.,..from a 2000 study about the best Lyme Disease Doctors. The one in Westchester, Dr. Robert Nadelman (914-493-8865), was on a research team that was trying to find out what to do about the *stuborn* cases where anti-biotics did not work.

"Ask five different doctors to describe Lyme disease, and you'll get five different answers. Often called the "Great Imitator," and commonly associated with up to 100 different symptoms, Lyme disease is a multistage bacterial infection, transmitted by deer ticks, that first results in flulike symptoms, joint pain, and fatigue. If you're fortunate enough to realize you've been infected -- more than 70 percent of its victims don't even know they've been bitten -- the disease is readily treatable with antibiotics. Absent treatment, the infection can lie dormant before returning in the form of late-stage symptoms such as neurological disorders, heart irregularities, and, most often, swollen knees or migrating joint pain. If the disease reaches this late stage undetected, it can be very difficult to treat. Currently, a fierce medical debate is raging over the merits of long-term treatment. While most doctors say that a 30- to 60-day course of antibiotics is sufficient to kill the infection, others insist that long-term antibiotic treatment is often necessary. Most infectious-disease specialists are concerned that extensive treatment is potentially dangerous, and are awaiting the results of current studies-in-progress. Manhattan infectious-disease doctors who specialize in Lyme disease are Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), and Christopher Busillo (212-238-0102) and Chester Lerner (212-238-0106) at New York University Downtown Hospital. In Westchester: Robert Nadelman (914-493-8865) and Gary Wormser (914-493-8865) at Westchester Medical Center. In Nassau: Eileen Hilton (516-470-6900), director of the Lyme Disease Diagnostic and Treatment Center, and Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center. In Connecticut: Eugene Shapiro at Yale-New Haven Hospital (203-688-4518) and Debra Adler-Klein at Stamford Hospital (203-325-0146). Two internists with particular expertise in treating the illness are Bruce Logan at Manhattan's New York University Downtown Hospital (212-608-6634) and Raymond Dattwyler at U Hospital, Stony Brook, in Suffolk (631-444-8364). In addition to infectious-disease specialists, many rheumatologists who treat patients suffering from arthritic conditions have become adept at recognizing the illness. Among the best are Thomas Argyros, director of the Lyme Disease Center at Lennox Hill Hospital (212-988-7680); in New Jersey: Leonard Sigal at Robert Wood Johnson Medical School (732-235-7210); in Connecticut: Robert T. Schoen at Yale-New Haven Hospital (203-789-2255). Recently, LYMErix, a new FDA-approved vaccine, has proven 80 percent effective in clinical trials. For up-to-date information on the vaccine and other issues, contact the American Lyme Disease Foundation at 914-277-6970 or visit its Website at www.aldf.com."

Source

ETA: and I am waiting for a call back for you ad well.





Ron
, I went to Dr. Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), who is mentioned in that article a few years ago becuse she specializes in travel medicine/ infectious disease- she was incredible. Very thourough.
I do not have lime disease but I can recommend her- thought she was excellent checking me out for other symptoms I was having.
Everytime a result came in from testing I had to do, her office called me right away.

Good luck!!!!Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Message edited 8/1/2006 4:12:23 PM.

Posted 8/1/06 4:11 PM
 

Smileyd17
kids

Member since 5/05

20997 total posts

Name:
Mommy

Re: Need your help please

Some Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 4:14 PM
 

My2Boys
Love.

Member since 10/05

4796 total posts

Name:

Re: Need your help please

Posted by JenG

Posted by regi

Dr. Carol Singer is an infectious disease specialist at LIJ. Her number is 516 470 4415.

She is wonderful. Hopefully, she can help you.




i work at LIJ and Dr. Singer is very good from what i hear. i would call her.

good luck Chat Icon



Carol Singer is the Chief of ID. She is an amazing physician and a very good friend of my family, however, she only treats adults. Lorry Rubin is the ped ID physician. I don't have his number (but can get it). You can call the general operator @ LIJ @ 470-7000 and they'll transfer you to PID.

Please PM me if you need help getting in touch with him. All the best to your son. Chat Icon

Message edited 8/1/2006 4:34:12 PM.

Posted 8/1/06 4:21 PM
 

sarahbelle
Little drummer boy

Member since 5/05

2377 total posts

Name:
Sarah

Re: Need your help please

I don't have any recommendations, just Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 4:22 PM
 

MsMBV
:P

Member since 5/05

28602 total posts

Name:
Me

Re: Need your help please

Posted by skygirl

Posted by MsMBV

Hey Ron.,..from a 2000 study about the best Lyme Disease Doctors. The one in Westchester, Dr. Robert Nadelman (914-493-8865), was on a research team that was trying to find out what to do about the *stuborn* cases where anti-biotics did not work.

"Ask five different doctors to describe Lyme disease, and you'll get five different answers. Often called the "Great Imitator," and commonly associated with up to 100 different symptoms, Lyme disease is a multistage bacterial infection, transmitted by deer ticks, that first results in flulike symptoms, joint pain, and fatigue. If you're fortunate enough to realize you've been infected -- more than 70 percent of its victims don't even know they've been bitten -- the disease is readily treatable with antibiotics. Absent treatment, the infection can lie dormant before returning in the form of late-stage symptoms such as neurological disorders, heart irregularities, and, most often, swollen knees or migrating joint pain. If the disease reaches this late stage undetected, it can be very difficult to treat. Currently, a fierce medical debate is raging over the merits of long-term treatment. While most doctors say that a 30- to 60-day course of antibiotics is sufficient to kill the infection, others insist that long-term antibiotic treatment is often necessary. Most infectious-disease specialists are concerned that extensive treatment is potentially dangerous, and are awaiting the results of current studies-in-progress. Manhattan infectious-disease doctors who specialize in Lyme disease are Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), and Christopher Busillo (212-238-0102) and Chester Lerner (212-238-0106) at New York University Downtown Hospital. In Westchester: Robert Nadelman (914-493-8865) and Gary Wormser (914-493-8865) at Westchester Medical Center. In Nassau: Eileen Hilton (516-470-6900), director of the Lyme Disease Diagnostic and Treatment Center, and Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center. In Connecticut: Eugene Shapiro at Yale-New Haven Hospital (203-688-4518) and Debra Adler-Klein at Stamford Hospital (203-325-0146). Two internists with particular expertise in treating the illness are Bruce Logan at Manhattan's New York University Downtown Hospital (212-608-6634) and Raymond Dattwyler at U Hospital, Stony Brook, in Suffolk (631-444-8364). In addition to infectious-disease specialists, many rheumatologists who treat patients suffering from arthritic conditions have become adept at recognizing the illness. Among the best are Thomas Argyros, director of the Lyme Disease Center at Lennox Hill Hospital (212-988-7680); in New Jersey: Leonard Sigal at Robert Wood Johnson Medical School (732-235-7210); in Connecticut: Robert T. Schoen at Yale-New Haven Hospital (203-789-2255). Recently, LYMErix, a new FDA-approved vaccine, has proven 80 percent effective in clinical trials. For up-to-date information on the vaccine and other issues, contact the American Lyme Disease Foundation at 914-277-6970 or visit its Website at www.aldf.com."

Source

ETA: and I am waiting for a call back for you ad well.





Ron
, I went to Dr. Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), who is mentioned in that article a few years ago becuse she specializes in travel medicine/ infectious disease- she was incredible. Very thourough.
I do not have lime disease but I can recommend her- thought she was excellent checking me out for other symptoms I was having.
Everytime a result came in from testing I had to do, her office called me right away.

Good luck!!!!Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon



OOH thank you for giving a real account..... I hope this helped!

Posted 8/1/06 4:24 PM
 

lorich
.

Member since 6/05

9987 total posts

Name:
Grammie says "Lora Gina"

Re: Need your help please

Posted by MsMBV

Posted by skygirl

Posted by MsMBV

Hey Ron.,..from a 2000 study about the best Lyme Disease Doctors. The one in Westchester, Dr. Robert Nadelman (914-493-8865), was on a research team that was trying to find out what to do about the *stuborn* cases where anti-biotics did not work.

"Ask five different doctors to describe Lyme disease, and you'll get five different answers. Often called the "Great Imitator," and commonly associated with up to 100 different symptoms, Lyme disease is a multistage bacterial infection, transmitted by deer ticks, that first results in flulike symptoms, joint pain, and fatigue. If you're fortunate enough to realize you've been infected -- more than 70 percent of its victims don't even know they've been bitten -- the disease is readily treatable with antibiotics. Absent treatment, the infection can lie dormant before returning in the form of late-stage symptoms such as neurological disorders, heart irregularities, and, most often, swollen knees or migrating joint pain. If the disease reaches this late stage undetected, it can be very difficult to treat. Currently, a fierce medical debate is raging over the merits of long-term treatment. While most doctors say that a 30- to 60-day course of antibiotics is sufficient to kill the infection, others insist that long-term antibiotic treatment is often necessary. Most infectious-disease specialists are concerned that extensive treatment is potentially dangerous, and are awaiting the results of current studies-in-progress. Manhattan infectious-disease doctors who specialize in Lyme disease are Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), and Christopher Busillo (212-238-0102) and Chester Lerner (212-238-0106) at New York University Downtown Hospital. In Westchester: Robert Nadelman (914-493-8865) and Gary Wormser (914-493-8865) at Westchester Medical Center. In Nassau: Eileen Hilton (516-470-6900), director of the Lyme Disease Diagnostic and Treatment Center, and Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center. In Connecticut: Eugene Shapiro at Yale-New Haven Hospital (203-688-4518) and Debra Adler-Klein at Stamford Hospital (203-325-0146). Two internists with particular expertise in treating the illness are Bruce Logan at Manhattan's New York University Downtown Hospital (212-608-6634) and Raymond Dattwyler at U Hospital, Stony Brook, in Suffolk (631-444-8364). In addition to infectious-disease specialists, many rheumatologists who treat patients suffering from arthritic conditions have become adept at recognizing the illness. Among the best are Thomas Argyros, director of the Lyme Disease Center at Lennox Hill Hospital (212-988-7680); in New Jersey: Leonard Sigal at Robert Wood Johnson Medical School (732-235-7210); in Connecticut: Robert T. Schoen at Yale-New Haven Hospital (203-789-2255). Recently, LYMErix, a new FDA-approved vaccine, has proven 80 percent effective in clinical trials. For up-to-date information on the vaccine and other issues, contact the American Lyme Disease Foundation at 914-277-6970 or visit its Website at www.aldf.com."

Source

ETA: and I am waiting for a call back for you ad well.





Ron
, I went to Dr. Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), who is mentioned in that article a few years ago becuse she specializes in travel medicine/ infectious disease- she was incredible. Very thourough.
I do not have lime disease but I can recommend her- thought she was excellent checking me out for other symptoms I was having.
Everytime a result came in from testing I had to do, her office called me right away.

Good luck!!!!Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon



OOH thank you for giving a real account..... I hope this helped!



Actually you helped a lot..
Someone I work with is friends and called the Chairman of the Board for LIJ and he highly recommends Dr. Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center.
Great article!Chat Icon

Posted 8/1/06 4:26 PM
 

justthe4ofus
I hate hypocrites!!!!!

Member since 5/05

6905 total posts

Name:

Re: Need your help please

Posted by Ambersmom

Posted by hmpena

I don't have a recommendation but I wanted to send lots of Chat Icon and Chat Icon

Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon



Same here!




Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 4:27 PM
 

Giannas-mama
Happy Birthday baby girl!!

Member since 5/05

1663 total posts

Name:
Nicole

Re: Need your help please

Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 8/1/06 4:28 PM
 

My2Boys
Love.

Member since 10/05

4796 total posts

Name:

Re: Need your help please




Actually you helped a lot..
Someone I work with is friends and called the Chairman of the Board for LIJ and he highly recommends Dr. Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center.
Great article!Chat Icon


I hear you'll be in great hands w/ Dr. Sood. Does he work out of NSU-Manhasset, too?

Posted 8/1/06 4:42 PM
 

slipperboy
LIF Zygote

Member since 11/05

36 total posts

Name:
Scott

Re: Need your help please

Posted by dm24angel

Ron-

My sister said she saw

Dr. Irwin Ingwer, MD 789 Old Country Road Plainview, New York 11803
(516) 433-3600

she said hes very very knowledgable about Lyme and helped her get well after many failed attempts!

Good luck!!



I just talked to my friend who has Lyme's. This is the same doctor (Dr. Ingwer) he sees when he's here on LI.

Posted 8/1/06 10:10 PM
 

Tumbalina
Better than the news!

Member since 2/06

2840 total posts

Name:
Angela

Re: Need your help please

LIJ for sure.
Hope your son feels better very soon.

Posted 8/1/06 10:52 PM
 
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