Mmm777
LIF Infant
Member since 2/13 330 total posts
Name:
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wow my first post on this board...would love to talk to those btdt
Hi
Personally I know how you feel
After a marriage of 10 years , we conceived our first child by IUI with clomid
He too was born at 41 weeks, no labour, induction for 6 hours , failed , then csection , they commented he had meconium stained Aminiotic fluid in the uterus , but his APGARs were good
Since he was born, we are lucky if we sleep more than 2 hours without him waking ... this was until he was 3 years old
He would start whimpering and waking and full blown crying , we have to sing , hold him in our laps , he would not sleep alone , and we have to sleep with him
He did not say any words until age 2 , still non verbal , would play, but doesn't watch TV
When u take him to the playground, all the other children would be playing in the slides, he will find a slope and run over it , or try to catch other kids, and we had to keep running after him , this has decreased somewhat , but still there most days
We started early intervention at age 2 , with some speech and teacher, it did not work, at 2.5 years he had a pscyh eval and was diagnosed with moderate autism
He got services from Nassau , pretty good EI Lead, he learnt to point , still non verbal, but would do some puzzles etc
Another word about EI
Not all teachers are good '
I am not from this country and find it difficult to stand up , but I will tell u a few examples
My EI lead was excellent, on time, spent the required hours , genuinely cared about my son, was great , he did the best with her
Two of the others were really bad, one would spend an hour for the 90 minutes class, came late , took calls from home, was just plain lazy
The other was on time, but she would finish early , was too loud, my son did not get along at all with her
My speech therapist spent only 30 min for her 45 min class, and was out in 30..
MY EI lead told me I should have complained a lot early and not waited 4 months ..
I did speak up , but late,
I did not know I could have asked for a change of his teachers
So this is another information for people like me, new and without any friends to know what should be done
So we transitioned from EI to School
We asked for 6 :1 as we felt that was best, schools insisted he will only get 8:1:3
Well now 4 months later, I regret that I did not place him in the 6:1 as suggested by my team lead
My son is so stubborn he refuses to eat anything in school except maybe a few slices of orange or apple . He will eat only 1 type of food that needs to be hot and he wants us to feed him that , so he remains hungry the whole day ..
He has shut himself down in school, in home he will play point to banana , orange, pacifier etc if he wants them , plays with toys , jumps , is a happy child ... in school he is apathic , shows no interest in anything, cries everyday in the morning
Some days I start to cry when I think of him, I cant stop , I don't know what to do...
I will transition him to a 6:1 next year, maybe move from Nassau into Westchester
Don't go with the general hype regarding schools, I did and I regret it a lot
So we had a meeting in our school district and the social worker told my husband that maybe he is better off in a 6; 1 but she did not say anything to us before in the past 4 months .. I am so unhappy with them for not speaking before.. I don't know if I should be changing him now and then again in next June or Sept , or just change for the next year
As a parent of one special needs child , I will tell u this, no one knows how difficult our lives our except another parent with a special needs child. My parents and inlaws certainly don't .
Defenitely get his ears checked like the prior poster said , my sons was fine
I wish u the best , if u need any specific details u can FM me
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