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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by MsMBV
Sometimes I truly believe that a positive outlook and a strong will are the best medicine. 
ME TOO!
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Posted 7/18/06 9:53 PM  |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by DebG
Posted by MsMBV
Sometimes I truly believe that a positive outlook and a strong will are the best medicine.
ME TOO!
Well then I'd say since you're the most positive person I've ever pseudo-met you'll be kicking butt & recovered in no time.
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| Posted 7/18/06 10:33 PM |
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Shanti
True love
Member since 6/05 12653 total posts
Name:
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by nrthshgrl
Posted by DebG
Posted by MsMBV
Sometimes I truly believe that a positive outlook and a strong will are the best medicine.
ME TOO!
Well then I'd say since you're the most positive person I've ever pseudo-met you'll be kicking butt & recovered in no time.
Absolutely! Deb is a role model to us all!
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| Posted 7/18/06 10:34 PM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update 7.13.06 Biopsy results are in
Tomorrow we meet with our new team of doctors and I have to admit I am scared. I am scared of how I am going to react when we finally get the news of exactly what we are dealing with (as in what stage of cancer I actually have) adn I am also scared of the realization that the best place for me to get treatment is probably NOT covered under my insurance and that we will have to pay 20% out of pocket...my hospital bills are looking to cost about 200k so I just don't know where we are going to get that kind of money.
Lesigh. I am jumping hte gun a little nad I know this but my head is just turnong and turning tonight with lots of thoughts as to how the future is going to be.
Anyone have any inspirational stories of young people that they personally know beating this disease?
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| Posted 7/18/06 10:46 PM |
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mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by DebG
Tomorrow we meet with our new team of doctors and I have to admit I am scared. I am scared of how I am going to react when we finally get the news of exactly what we are dealing with (as in what stage of cancer I actually have) adn I am also scared of the realization that the best place for me to get treatment is probably NOT covered under my insurance and that we will have to pay 20% out of pocket...my hospital bills are looking to cost about 200k so I just don't know where we are going to get that kind of money.
Lesigh. I am jumping hte gun a little nad I know this but my head is just turnong and turning tonight with lots of thoughts as to how the future is going to be.
Anyone have any inspirational stories of young people that they personally know beating this disease?
Deb - FM!!!!
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| Posted 7/18/06 10:47 PM |
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Spring Baby06
My two loves
Member since 5/05 3612 total posts
Name:
Jillian
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Re: Today's doctor update 7.13.06 Biopsy results are in
My thoughts and prayers are with you often Deb, you'll get through this
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| Posted 7/18/06 10:49 PM |
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Salason
♥
Member since 6/05 9878 total posts
Name:
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by DebG
Tomorrow we meet with our new team of doctors and I have to admit I am scared. I am scared of how I am going to react when we finally get the news of exactly what we are dealing with (as in what stage of cancer I actually have) adn I am also scared of the realization that the best place for me to get treatment is probably NOT covered under my insurance and that we will have to pay 20% out of pocket...my hospital bills are looking to cost about 200k so I just don't know where we are going to get that kind of money.
Lesigh. I am jumping hte gun a little nad I know this but my head is just turnong and turning tonight with lots of thoughts as to how the future is going to be.
Anyone have any inspirational stories of young people that they personally know beating this disease?
I truly wish I did have an inspirational story for you right now but I dont know anyone who has faced this. So I just wanted to let you know that I will keep you in my prayers tomorrow and in the future as you battle this)
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| Posted 7/18/06 10:50 PM |
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Tumbalina
Better than the news!
Member since 2/06 2840 total posts
Name:
Angela
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Re: Today's doctor update 7.13.06 Biopsy results are in
I'd love to help in any way possible, donation wise, if that is ok. It may not be much but I would love to help. I hope I don't offend you. 
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| Posted 7/18/06 10:51 PM |
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steph4777
**************
Member since 5/05 11726 total posts
Name:
Stephanie
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Re: Today's doctor update 7.13.06 Biopsy results are in
My thoughts and prayers are with you.... Don't worry about the money, God will always make a way. He didn't bring you this far to deliver a healthly baby to let you down now.
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| Posted 7/18/06 10:51 PM |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by DebG
Anyone have any inspirational stories of young people that they personally know beating this disease?
One of the mom's at daycare.
Mom of newborn & 4 year old diagnosed with Stage IV Breast Cancer, Liver Cancer & Malignant Tumor also in spine. Still fighting strong. Said she wouldn't survive to see her daughter's first birthday. Daughter is turning 3.
She went to specialist after specialist. She was on some experimental drug that hadn't gotten FDA approval yet. That was 2 years ago. I still see her bike riding with her son. A beautiful person inside & out.
Her first year walking in Avon's Breast Cancer walk, she went, walked & days later had her masectomy. This year she walked again. I look forward to my annual email telling me she's walking again.
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Boss.
Beginning stages of tongue cancer. He tells me to "treat him normal" and then asked me if I was worried about him. I tell him that he is a miserable guy & that as everyone knows miserable people last FOREVER...
5 years remission - just cleared again on Monday.
Message edited 7/19/2006 4:21:31 PM.
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| Posted 7/18/06 11:07 PM |
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Tany
Becoming a different woman
Member since 5/05 24460 total posts
Name:
Tania
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Re: Today's doctor update 7.13.06 Biopsy results are in
as always Deb, you are in my thoughts and prayers.
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| Posted 7/18/06 11:07 PM |
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Melbernai
I am a lucky Momma!
Member since 7/05 15652 total posts
Name:
Melissa
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Re: Today's doctor update 7.13.06 Biopsy results are in
Posted by DebG
Tomorrow we meet with our new team of doctors and I have to admit I am scared. I am scared of how I am going to react when we finally get the news of exactly what we are dealing with (as in what stage of cancer I actually have) adn I am also scared of the realization that the best place for me to get treatment is probably NOT covered under my insurance and that we will have to pay 20% out of pocket...my hospital bills are looking to cost about 200k so I just don't know where we are going to get that kind of money.
Lesigh. I am jumping hte gun a little nad I know this but my head is just turnong and turning tonight with lots of thoughts as to how the future is going to be.
Anyone have any inspirational stories of young people that they personally know beating this disease?
Deb --- I hope that tomorrow's doctor's visit is at least reassuring in some way -- that they can give you as many positives as possible.
Also I would be willing to give something --- if we could all pool together and help out. I know that wasn't why you said that -- you're not asking for help, but you've got almost 1200 posts of people who I'm sure would help in any small way that they could....
If you need us just say it and we'll do what we can!
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| Posted 7/18/06 11:11 PM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update 7.19.06 Cancer is confirmed
7/19/06 Update
So we went and met with a team of doctors today at MD Anderson. It was good, it was bad, it was overwhelming and it was reassuring.
We learned that I do in fact have Adenoid cystic carcinoma and its more than likely a T4 cancer (this will be confirmed when MD Anderson received my biposy slides). It was confirmed that this is a rare cancer that affects only 1 in 2000 people in the world BUT where mine is affects only a few people as the doc said "you are very very rare". Sweetttt I like to be different and now maybe I can be a medical journal story.
All the doctors confirmed that my type of cancer will not be treated with chemo as chemo doesn't really have an affect on it. Instead hte course of action will be to have a Craniotomy and then let myself recover a bit from that and then start radiation treatment. Radiation will be 5 days a week for about 6 hours and will last 6 to 8 weeks 
We are also adding more teams of doctors to my case and I have a ton of doctors appts coming up.
Tomorrow I meet with social services that will help me arrange transportation to MD Anderson in Houston
Friday I meet with the Radiation department to discuss the effect radiation will have on me
on 7/25 I will have a CT scan done(to see if the cancer has spread)
on 7/26 I meet with the Pain Management division to come up with a new medication regiment (apparently my current one is sooo high in acetametaphin that its HORRIBLE for my liver).
on 7/27 I will have a bone scan done
on 8/03 I meet with the Head & Neck Cancer Specialty Section leader to follow up.
In addition, I am waiting to schedule some testing on my legs (they are sooo swollen the new fear is I have blood clots in them)
and waiting for an appt with the Director of Energy Medicine.
WHEW!
A lot to take in...we are now moving forward and its SCARY!
OOH a nice thing happened today. I was able to help someone see the light at the end of the tunnel! The person who was checking us out and scheduling all these other appts is seeing the same RE that made Joseph possible. I was able to bring Joseph in and say this is a Dr. T baby so don't give up hope.
It was a really nice moment with a complete stranger.
Message edited 7/19/2006 11:10:34 PM.
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| Posted 7/19/06 11:07 PM |
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MrsERod
Praying for Everyone.
Member since 5/05 26170 total posts
Name:
MrsERod™®
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Re: Today's doctor update 7.19.06 Cancer is confirmed
keeping you in my thoughts and prayers daily Deb!! God Bless!!
eta: what a wonderful moment to give another couple hope at conceiving!! 
Message edited 7/19/2006 11:11:33 PM.
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| Posted 7/19/06 11:10 PM |
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Tany
Becoming a different woman
Member since 5/05 24460 total posts
Name:
Tania
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Re: Today's doctor update 7.19.06 Cancer is confirmed
Wow Deb, that's is a lot to take in but just take it one day at a time.
Please, if you ever need anything, let me know.
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| Posted 7/19/06 11:11 PM |
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-Laurie-
Hi!
Member since 5/05 2536 total posts
Name:
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Re: Today's doctor update 7.19.06 Cancer is confirmed
My thoughts are with you! If I can help in any way I would love too!
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| Posted 7/19/06 11:13 PM |
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Melbernai
I am a lucky Momma!
Member since 7/05 15652 total posts
Name:
Melissa
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Re: Today's doctor update 7.19.06 Cancer is confirmed
That is definately a lot to take in but you are a strong woman and I truely believe that you can get through it!!!
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| Posted 7/19/06 11:13 PM |
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Stefanie
♥
Member since 5/05 23599 total posts
Name:
Stefanie
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Re: Today's doctor update 7.19.06 Cancer is confirmed
My gosh Deb, you are going through so much. I'm sending you tons of and .
At least you don't have to go through Chemo. My father had stage 4 cancer in his throat, went through radiation and beat it. I know you'll be strong for you and your family...
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| Posted 7/19/06 11:14 PM |
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beena
Sitting on a tree bench!
Member since 5/05 2429 total posts
Name:
Gina
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Re: Today's doctor update 7.19.06 Cancer is confirmed
... we are still praying for you to get through all of this, it is going to be a tough, bumpy road but you are such a strong person.
lots of hugs and prayers your way...
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| Posted 7/19/06 11:14 PM |
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Re: Today's doctor update 7.19.06 Cancer is confirmed
Deb - I cant imagine how you are digesting this along with a newborn at home. You are the epitome of strength and we all could learn a little something from you! I am continuing to pray and think positively for you.
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| Posted 7/19/06 11:15 PM |
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Myrockette
~*~*~*~*~*~*~
Member since 5/05 5632 total posts
Name:
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Re: Today's doctor update 7.19.06 Cancer is confirmed
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| Posted 7/19/06 11:15 PM |
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JenniferEver
The Disney Lady
Member since 5/05 18163 total posts
Name:
Jennifer
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Re: Today's doctor update 7.19.06 Cancer is confirmed
I can't imagine what you must be feeling right now. Manye and hugs. I asked a priest who is famous for his healing masses to pray for you and your family. I hope you don't mind.
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| Posted 7/19/06 11:16 PM |
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Luvlylady
Earned My Bragging Rights!
Member since 5/05 6141 total posts
Name:
Alexandria
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Re: Today's doctor update 7.19.06 Cancer is confirmed
I am truly sorry
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| Posted 7/19/06 11:17 PM |
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monkeybride
My Everything
Member since 5/05 20541 total posts
Name:
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Re: Today's doctor update 7.19.06 Cancer is confirmed
As always Deb many continued . I am glad you got some answers, plans and reassurance today.
I know I don't know you very well and that you are in excellent hands but I'm a pharmacist so if you ever have any questions or need help with anything at all please feel free to ask. If I don't know the answer (which could be likely now that I have mommy brain) I could always research something for you.
Lots of hugs to you, DH and that precious baby boy of yours.
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| Posted 7/19/06 11:17 PM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Today's doctor update 7.19.06 Cancer is confirmed
Posted by JenniferEver
I can't imagine what you must be feeling right now. Manye and hugs. I asked a priest who is famous for his healing masses to pray for you and your family. I hope you don't mind.
ind, hell I am honored.
THANK YOU for going out of your way and doing this, I really do appreciate it.
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| Posted 7/19/06 11:18 PM |
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