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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Prayer needed...Updated at bottom of page 2/9
I saw my cardiologist today. After the EKG, Echo and exam my doctor told me that the leak in my right valve has gotten more pronounced due to the increased blood volume. The leak was upgraded today to "moderate" from "slight" before I was PG. I expected this to happen and we knew the risks but I am scared. This was not caused by weight gain, just increased blood volume and water. All part of the heart defect I was born with. I am 26 weeks and he thinks that the leak might get more pronounced as the pregnancy progresses.
Please pray that the leak does not get worse. If it does, I have to change hospitals and have the baby in Columbia Presbyterian (where cardiologist is), and change my OB (which I DO NOT want to do) instead of NSUH in Manhasset (where OB works out of). I have to play everything by ear, so the "birth plan" I wanted to have is pretty much a question mark at this point.
Thanks for listening ladies.
Message edited 2/9/2006 8:26:28 AM.
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Posted 2/8/06 6:54 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
MDF
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Member since 5/05 2313 total posts
Name:
Melissa
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Re: Prayer needed...
My thoughts and prayers will be with you. 
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| Posted 2/8/06 6:58 PM |
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Marcie
Complete Happiness :)
Member since 5/05 27789 total posts
Name:
LOVE being a Mommy!
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Re: Prayer needed...
I will be saying a prayer that everything works out 
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| Posted 2/8/06 7:01 PM |
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doggielover
LIF Toddler
Member since 9/05 391 total posts
Name:
Stacey
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Re: Prayer needed...
My thoughts will be with you. I hope that everything works out
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| Posted 2/8/06 7:08 PM |
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rose825
Best Friends
Member since 6/05 10228 total posts
Name:
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Re: Prayer needed...
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| Posted 2/8/06 7:17 PM |
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-Lisa-
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Member since 5/05 6530 total posts
Name:
Lisa
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Re: Prayer needed...
do you have mitral valve prolapse? My DH developed an implant to repair mitral valve prolapse. The device is in clinical trials at Columbia (and other hospitals around the country).
If you want more info, FM me.
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| Posted 2/8/06 7:23 PM |
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Spring Baby06
My two loves
Member since 5/05 3612 total posts
Name:
Jillian
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Re: Prayer needed...
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| Posted 2/8/06 7:26 PM |
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BabyAvocado
Happy New Year
Member since 5/05 17334 total posts
Name:
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Re: Prayer needed...
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| Posted 2/8/06 7:34 PM |
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dawnygirl25
Growing up soo fast..
Member since 1/06 14917 total posts
Name:
Dawn
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Re: Prayer needed...
I will be praying everything is ok
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| Posted 2/8/06 7:38 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: Prayer needed...
Posted by -Lisa-
do you have mitral valve prolapse? My DH developed an implant to repair mitral valve prolapse. The device is in clinical trials at Columbia (and other hospitals around the country).
If you want more info, FM me.
What I have is called L-transposition naturally corrected. Basically it is tricuspid valve prolapse. Usually valve replacement is what is done to correct it at birth, but my body has basically compensated for it my whole life (long medical explanation on how this is possible) thus the "naturally corrected" term. What I have is pretty rare. Only 5% of congenital heart defects are L-transpositions, 1% of those naturally corrected. That is why I see a congenital heart specialist at Columbia Presbyterian. He is excellent and people come from all over the US and beyond to see him.
That is awesome that your Dh developed that device. Can you ask him if it can be used for L-transposition? I doubt it, because I imagine my Dr. would have told me about it if it would work for me.
Thanks for all your prayers and well wishes ladies...you all are the best!
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| Posted 2/8/06 7:42 PM |
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-Lisa-
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Member since 5/05 6530 total posts
Name:
Lisa
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Re: Prayer needed...
Posted by dandr10199
Can you ask him if it can be used for L-transposition? :
unfortunately not. The leaflets are different on the tricuspid vs. the mitral valve. It wasn't developed for use on the tricuspid - sorry!
Sounds like you're in good hands! I hope your pregnancy doesn't further aggrevate your condition.
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| Posted 2/8/06 9:06 PM |
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CathyB
Member since 5/05 19403 total posts
Name:
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Re: Prayer needed...
I'll definately keep you in my prayers.
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| Posted 2/8/06 9:10 PM |
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michele31
LIF Adult
Member since 5/05 3372 total posts
Name:
Michele
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Re: Prayer needed...
Do you have an OB at Columbia? If not I would suggest meeting with one just in case things progress quickly. It might make you feel better to have a plan a and a plan B.
I hope everything goes smoothly though!
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| Posted 2/8/06 9:20 PM |
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Faithx2
All good things in 2016!!
Member since 8/05 20181 total posts
Name:
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Re: Prayer needed...
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| Posted 2/9/06 5:52 AM |
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Moehick
Ready for the sun!
Member since 5/05 30339 total posts
Name:
Properly perfect™
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Re: Prayer needed...
I am saying a prayer for you
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| Posted 2/9/06 6:47 AM |
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Disneygirl
Disney cruise bound!
Member since 5/05 8126 total posts
Name:
D
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Re: Prayer needed...
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| Posted 2/9/06 7:52 AM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: Prayer needed...
Hang in there! 26 weeks is a really good point to have it progress, think of how it could have progressed earlier. The chances of it getting significantly worse before giving birth is not so great. Try to remember that. I pray your at the worst now and that you will be fine.
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| Posted 2/9/06 8:05 AM |
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KangaMom
...
Member since 1/06 4593 total posts
Name:
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Re: Prayer needed...
I hope and pray all will be ok Keep us posted!
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| Posted 2/9/06 8:08 AM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: Prayer needed...Updated at bottom of page 2/9
Posted by michele31
Do you have an OB at Columbia? If not I would suggest meeting with one just in case things progress quickly. It might make you feel better to have a plan a and a plan B.
I hope everything goes smoothly though!
UPDATE: So My DH and I talked last night about our options. We fell that we should have a plan A, B, and C.
Plan A - deliver at NSUH at manhasset with no complications and ride this out, have a natural delivery (with an epidural).
Plan B - My cardiologist suggested I meet with this other cardiologist that he trained at NSUH. Consult with her so she on call and ready if something unexpected happens. Plus she will have my chart and my medical history.
Plan C - Consult with an OB at Columbia. If the leak in the valve gets worse and I need surgery after birth, I will deliver there and have valve replacement immediately after delivery.
I have to be pragmatic, yet pray for the best. I am a firm believer that everything happens for a reason and God is in control. Also, that how I react and handle this is more important to my unborn child and DH than trying to control something that I can't control. I will keep you all posted as things progress. I am seeing the cardilogist at NSUH in two weeks and seeing my cardiologist at Columbia again in four weeks. I should know more then. Thanks Ladies for all the prayers.
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| Posted 2/9/06 8:36 AM |
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MrsJ
I love my Katie Bug
Member since 5/05 11357 total posts
Name:
Kathy
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Re: Prayer needed...Updated at bottom of page 2/9
I think having plans A B and C sounds like a very good idea. Keep all of your options open.
I'll say a for you and your baby that everything works out just fine
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| Posted 2/9/06 9:29 AM |
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Shelly
She's 7!!!
Member since 8/05 14624 total posts
Name:
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Re: Prayer needed...Updated at bottom of page 2/9
I am sorry you are going through this
But you are doing everything right! You are exploring all your options and checking out the doctors at NSUH is so smart.
Good luck with everything and keep us posted!
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| Posted 2/9/06 9:42 AM |
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dld4e
I ♥ my boys!
Member since 5/05 4461 total posts
Name:
DJ
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Re: Prayer needed...Updated at bottom of page 2/9
I am sorry you are going through this, but it sounds like you have all your bases covered.
Please keep us posted!
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| Posted 2/9/06 9:54 AM |
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Aga
hello baby Albert
Member since 9/05 7750 total posts
Name:
Aga
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Re: Prayer needed...Updated at bottom of page 2/9
wishing you all the best
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| Posted 2/9/06 11:15 AM |
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wowcoulditbe
wow, pic is already 1 yr old!!
Member since 1/06 6689 total posts
Name:
D
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Re: Prayer needed...Updated at bottom of page 2/9
wishing you all the best - I think it is very smart of you to already have come up with so many plans. You are lucky to have such a supportive dh too. I can only imagine how hard this is on you and send you all the hugs and prayers I can!
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| Posted 2/9/06 12:03 PM |
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CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
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Re: Prayer needed...Updated at bottom of page 2/9
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| Posted 2/9/06 12:05 PM |
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