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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
I am a little worried. I am pretty certain that she does not have CF. She just came back with a marker for it and I tested negative while I was preggo so DH is obviously the carrier of the CF gene. We have to get her a sweat test if her bloodwork comes back as a marker for CF, the state mandates it and the doctors are 99% sure she does not have it. So today we are ruling out the 1%. I wish I did not have to go and put her through all this.
I am worried about what they will do to her. My poor DD has to dress in layers and go in to a sauna or "hot room" and sweat her arse off. Poor thing. If she starts screaming I am going to want to pull her out of that room before the test is over I just know it. Plus, we have to drive in hush hour traffic down to Westchester Medical Center and be in the testing room by 9:30AM.  Thank GOD my SIL from Hawaii is coming with me. She is very calming (she is the one who is a LMT) and I know she will calm us both down.
Has anyone else gone through this? How did your child react to the test? TIA 
UPDATE 4PM:We are back from the sweat test. DD did great and afterwards we went to Woodbury Commons to kill time. I can't call for the results until after 4:30PM. I will let all of you know how it turns out.
I was told that there is a 7% chance she could have it because they only screened me for 23 mutations of CF while I was preggo and there are over 1000 mutations. 
Thanks for all the 's and  'ers, I'll write an update after I know the results. I am not overly concerned, but still a little worried.
UPDATE 5:30PM: Gracie does not have CF!!! THANK GOD!!!! The test results were negative as the doctor, DH & I expected. I am so relived. Thanks again for all the prayers. 
Message edited 6/27/2006 5:37:24 PM.
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Posted 6/27/06 7:31 AM  |
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bellarina
She's my dancing queen!
Member since 5/05 1752 total posts
Name:
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Re: My DD has to get a sweat test this morning...
I just want to give you and your DD many
I hope everything comes out fine!
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| Posted 6/27/06 8:19 AM |
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Sassyz75
Turning a new page
Member since 5/05 9731 total posts
Name:
Dina
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Re: My DD has to get a sweat test this morning...
I just want to give you my nephew has CF- and he had to go through the sweat test as well- it is awful- but it is better to know.
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| Posted 6/27/06 10:51 AM |
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JRG71
*****************
Member since 5/05 5025 total posts
Name:
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Re: My DD has to get a sweat test this morning...
Many 's
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| Posted 6/27/06 11:06 AM |
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Ambersmom
Straight up nasty
Member since 5/05 7740 total posts
Name:
Sharon
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Re: My DD has to get a sweat test this morning...
Praying everything goes alright
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| Posted 6/27/06 11:17 AM |
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Elizabeth
Mom of Three
Member since 9/05 7900 total posts
Name:
"MOMMY!!!"
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Re: My DD has to get a sweat test this morning...
My older son had to get the sweat test due to abnormalities on his newborn screening. They only started giving the parents the CF test after I had him. The sweat test he got was at Schneiders Childrens hospital and they just isolated an area of his arm with plastic - literally a 2x2 square. This was in 2002 so I dont know if they no longer give the test that way, the dressing in layers and sweating certainly doesnt sound like much fun for everyone. DId she need to go for the tet based on the state newborn screening test? They dont qualify the abnormalities so it makes it even worse, it can be such a small indication and you have to put them through it (and yourself worrying) for nothing. I hope all is well with her.
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| Posted 6/27/06 12:11 PM |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: My DD has to get a sweat test this morning...
Neither of my kids had to go through it.  to you both!
I did stop a spinal tap on Maddie when she was a few weeks old. They had punctured 6+ times & failed to get a good sample. I said that's enough, grabbed her from the table & held her tight. No one was getting her away from me at that point.
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| Posted 6/27/06 1:59 PM |
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JavaJunkie
Someday, Somehow
Member since 6/05 5857 total posts
Name:
Lois
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Re: My DD has to get a sweat test this morning...
My DS had two sweat tests at Schneider's done this way....good luck, I know how you feel.
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| Posted 6/27/06 2:36 PM |
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my3bugs
Mom of 2 Boys
Member since 5/05 4381 total posts
Name:
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Re: My DD has to get a sweat test this morning...
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| Posted 6/27/06 3:01 PM |
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AimeeE2006
Time flies!
Member since 1/06 5698 total posts
Name:
Aimee
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Re: My DD has to get a sweat test this morning...
Hope everything went okay Dina!!!
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| Posted 6/27/06 3:31 PM |
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SoinLove
Making big changes
Member since 5/05 16541 total posts
Name:
Kristin
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Re: My DD has to get a sweat test this morning...
Hopefully everything went okay
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| Posted 6/27/06 3:54 PM |
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nrthshgrl
It goes fast. Pay attention.
Member since 7/05 57538 total posts
Name:
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Re: My DD has to get a sweat test this morning...
Any update? BTW when does the test results come back?
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| Posted 6/27/06 4:01 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: My DD has to get a sweat test this morning...
Updated in first post.
Message edited 6/27/2006 5:37:43 PM.
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| Posted 6/27/06 4:01 PM |
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dandr10199
Grace is growing up too fast!
Member since 10/05 11561 total posts
Name:
Dina
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
BUMP
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| Posted 6/27/06 5:37 PM |
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AimeeE2006
Time flies!
Member since 1/06 5698 total posts
Name:
Aimee
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
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| Posted 6/27/06 5:39 PM |
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sunny
Life is good!
Member since 5/05 8369 total posts
Name:
Stephanie
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
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| Posted 6/27/06 5:46 PM |
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AndreaLMT
:)
Member since 5/05 6856 total posts
Name:
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
Glad the news was GOOD!!!
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| Posted 6/27/06 5:57 PM |
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pnm1654
Mommy to 2 boys!
Member since 5/05 4565 total posts
Name:
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
THANK GOD
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| Posted 6/27/06 6:17 PM |
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jcndd
The man of my dreams...
Member since 5/05 1706 total posts
Name:
Danielle
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
Happy to hear all is well!
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| Posted 6/27/06 6:21 PM |
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MelToddJulia
Love my Family!
Member since 7/05 29064 total posts
Name:
Mel
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
Glad to hear she is ok!!
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| Posted 6/27/06 6:40 PM |
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aja
my princess
Member since 10/05 2936 total posts
Name:
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
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| Posted 6/27/06 7:25 PM |
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lmb03
Stop kissing me!
Member since 5/05 2636 total posts
Name:
L
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
Glad to hear all is well
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| Posted 6/27/06 8:56 PM |
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Eireann
Two ladies and a gentleman!
Member since 5/05 12165 total posts
Name:
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
So glad to hear she's OK!!
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| Posted 6/27/06 9:05 PM |
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Tammy503
LIF Infant
Member since 6/06 263 total posts
Name:
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
That's wonderful news.
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| Posted 6/27/06 9:06 PM |
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michele31
LIF Adult
Member since 5/05 3372 total posts
Name:
Michele
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Re: My DD has to get a sweat test this morning...(UPDATED 6/27 @ 5:30PM)
That is great news!!
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| Posted 6/27/06 9:11 PM |
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