the phone rang. At that hour it can only be bad news - and it was. My SIL's battle with Huntington's Disease came to an end.
As I made the calls to people that needed to know this morning, I found out that my nephew's condition has deteriorated so much Columbia has told my brother to find a nursing home for his son.
As my nephew mourns the final loss of his mother, he is also mourning his own inevitable death from this horrible disease.
I don't know what kind of prayers to ask for on behalf of my nephew - so I guess I'll ask for prayers for Easter Sunday when the entire family will get together for what in all likelihood will be the last time before my nephew will enter a nursing home.
** Easter Sunday Update **
I cannot believe how advanced the Huntington's Disease is in my nephew. The uncontrolled movements are so painful to watch, as they serve as a constant reminder of this horrible horrible disease. His speech is practically unintelligible. There is little doubt in my mind that by Thanksgiving he will be in a nursing home.
oh my goodness darlene... i am so very sorry. it doesn't seem fair that one family should experience so much heartache. you and your family are in my prayers.
