LIFamilies.com - Long Island, NY


RSS
Articles Business Directory Blog Real Estate Community Forum Shop My Family Contests

Log In Chat Index Search Rules Lingo Create Account

Quick navigation:   

Autism diagnosis

Posted By Message

Mommyx03
LIF Infant

Member since 5/15

283 total posts

Name:

Autism diagnosis

My DD is 2.5 and was diagnosed with autism last week by a psychologist. I have been noticing some things with her lately like a preference to play alone, not responding to her name, excessive babbling and not progressing with her language. While I knew she needed services I was not expecting the diagnosis. I worked in special ed and taught children with for 10 years, but I just didn't think she fit the criteria. Now that she has the diagnosis I see it in some ways and in other ways I am not sure the diagnosis is accurate. In any case I am glad she is going to get services.

What has been your experience with ABA and speech? I know she will make progress but I am so scared. I worked with the very severe end of the spectrum and I am so worried about her and what the future holds for us.

I am not sure what I'm looking for here. I just feel lost Chat Icon

Posted 4/12/16 12:59 PM
 

JDubs
different, not less

Member since 7/09

13160 total posts

Name:

Re: Autism diagnosis

I have been in your shoes. Except my son was 19 months when he was diagnosed. I got him tested initially for speech but then I noticed other "red flags" such as not responding to his name, fascination with doors and cabinets, not following one step directions so I asked for a psych eval. It is not easy to hear when you get the diagnosis, in fact at first my husband was angry with me that I brought the psychologist in to get him tested and was in denial about his diagnosis but over time he came to accept it....The positive is now that your child is diagnosed, she will qualify for the therapies she needs that can help her. Every child is different- my son is on the lower end of the spectrum so he is still non verbal but I have seen some improvements in other areas. Right now he attends a special needs full day pre-k program where he gets ABA in the classroom (in the morning I believe) and then gets pulled out for speech, OT and PT. I can't worry about what is going to happen in the future because then I will drive myself crazy, I can only take it one day at a time and hope over time he will improve in all areas. PM me if you ever need to talk. I find it helpful to talk to other parents that have BTDT if I find that I need to hear other's experiences or have questions. Chat Icon

Posted 4/12/16 2:24 PM
 

MichLiz213
Life is Good!

Member since 7/07

7979 total posts

Name:

Autism diagnosis

I thought my son had a speech delay. He had none of the other classic "symptoms." At 3 years old, they told us they would've diagnosed him with PDD-NOS if it were still a diagnosis, and we are preparing ourselves for an inevitable Autism diagnosis. I was floored. I have a sibling with Autism. I lived with it right in front of me. How the heck did I not notice this?!

That being said, the services have been amazing. He is definitely closer to Asperger's, so we have not done ABA. As for his first speech teacher, I will be singing her praises forever. She was incredible. He is attending an integrated program this year, and we are very happy with his school. I was scared to death at parent/teacher conferences that they were going to look at me and say, "How could you not tell he had Autism?" But they were incredibly kind and gentle about taking him to a developmental ped to continue services for Kindergarten. We were all on the same page.

It's an incredibly isolating feeling. My friends have been incredibly supportive and my mother, having gone through it herself, has been a godsend. But it still can feel very lonely. Feel free to PM if you need to talk!

Posted 4/12/16 5:20 PM
 

Mommyx03
LIF Infant

Member since 5/15

283 total posts

Name:

Autism diagnosis

Thank you both. It's helpful to know I'm not alone. We have her meeting on Wednesday and I'm hoping services will be starting soon after. DD is verbal and interacts with her 3.5 year old brother. But doesn't interact much with other people outside of us. She will get ABA but it won't be typical discrete trials. Thanks for sharing your stories with me. I have told my family and a few close friends but I'm not ready for everyone to know yet.

Posted 4/13/16 1:41 PM
 

islandersgirl74
Love Being A Mommy!

Member since 6/06

5804 total posts

Name:
Michelle

Re: Autism diagnosis

I am still convinced my daughter is misdiagnosed with autism. Her ABA therapist told me the first time she met my daughter she did not think she is autistic and if she is, it is as minimal as it can get. It did get her mores services. She gets speech and ABA but her aBa has been completely modified and is not a traditional ABA program. It's more or less a checklist and not discrete trials. All my friends that have backgrounds in special Ed have been floored k owing she has a diagnosis. I am ok with it though because she would have lost speech without it and that was her main area of concern.

Posted 4/13/16 10:42 PM
 

Mommyx03
LIF Infant

Member since 5/15

283 total posts

Name:

Re: Autism diagnosis

Posted by islandersgirl74

I am still convinced my daughter is misdiagnosed with autism. Her ABA therapist told me the first time she met my daughter she did not think she is autistic and if she is, it is as minimal as it can get. It did get her mores services. She gets speech and ABA but her aBa has been completely modified and is not a traditional ABA program. It's more or less a checklist and not discrete trials. All my friends that have backgrounds in special Ed have been floored k owing she has a diagnosis. I am ok with it though because she would have lost speech without it and that was her main area of concern.



This is how I feel also. But I'm also not sure if this is the denial phase for me!! How is your DD socially? This is where my DD struggles. When we have playdates she prefers to play alone. If the kids are running around she will join in though. How old is your DD if you don't mind me asking.

Posted 4/13/16 10:54 PM
 

islandersgirl74
Love Being A Mommy!

Member since 6/06

5804 total posts

Name:
Michelle

Re: Autism diagnosis

Posted by Mommyx03

Posted by islandersgirl74

I am still convinced my daughter is misdiagnosed with autism. Her ABA therapist told me the first time she met my daughter she did not think she is autistic and if she is, it is as minimal as it can get. It did get her mores services. She gets speech and ABA but her aBa has been completely modified and is not a traditional ABA program. It's more or less a checklist and not discrete trials. All my friends that have backgrounds in special Ed have been floored k owing she has a diagnosis. I am ok with it though because she would have lost speech without it and that was her main area of concern.



This is how I feel also. But I'm also not sure if this is the denial phase for me!! How is your DD socially? This is where my DD struggles. When we have playdates she prefers to play alone. If the kids are running around she will join in though. How old is your DD if you don't mind me asking.



My daughter just turned 3. Socially, she is great. She loves being around other kids. For a short time, I felt like I was in the denial phase. But when her ABA therapist, friends, and people I'm around in the spec Ed field even tell me they dint see the signs, I know it's not me in denial. Believe me, I am all for services and EI. But I do think now, autism is diagnosed more frequently and quickly than years ago..

Posted 4/14/16 10:42 PM
 
 

Potentially Related Topics:

Topic Posted By Started Replies Forum
Autism diagnosis that was dropped or changed because of misdiagnosis. adeline27 4/5/14 2 Children With Special Needs
Autism diagnosis islandersgirl74 9/9/15 5 Children With Special Needs
I think we're heading towards an autism diagnosis.. Bluepixie 12/27/10 13 Children With Special Needs
Found an interesting article: "Proposed autism diagnosis changes anger "Aspies"" smdl 2/12/10 12 Children With Special Needs
Xpost: DC who have a PDD/Autism diagnosis mom2aidan 1/23/10 0 Parenting
Just curious - kids with a PDD/Autism diagnosis.... mom2aidan 1/23/10 12 Children With Special Needs
 
Quick navigation:   
Currently 449677 users on the LIFamilies.com Chat
New Businesses
1 More Rep
Carleton Hall of East Islip
J&A Building Services
LaraMae Health Coaching
Sonic Wellness
Julbaby Photography LLC
Ideal Uniforms
Teresa Geraghty Photography
Camelot Dream Homes
Long Island Wedding Boutique
MB Febus- Rodan & Fields
Camp Harbor
Market America-Shop.com
ACM Basement Waterproofing
Travel Tom

      Follow LIWeddings on Facebook

      Follow LIFamilies on Twitter
Long Island Bridal Shows