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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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BTDT Plagiocephaly moms -- bumped for Donna
If you child was diagnosed with plagio and it corrected itself, at what age was it corrected by?
Message edited 9/2/2007 9:51:16 AM.
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Posted 5/10/07 12:39 PM  |
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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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Re: BTDT Plagiocephaly moms
nobody? I know there are a few of us out there.
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| Posted 5/10/07 8:10 PM |
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Kris
LIF Adult
Member since 5/05 1051 total posts
Name:
Kristine
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Re: BTDT Plagiocephaly moms
How old is DS? Don't trust your dr. that tells you it will "round out on its own". Go to a craniofacial surgeon for his/her opinion. You want to get banded (helmet therapy) ASAP, b/c the window of opportunity for correction is very small. I think if at 5 months, with AGGRESSIVE repositioning you see no improvement, INSIST upon a CT scan and a craniofacial specialist. You want to rule out synostosis and get the therapy asap. Their little heads grow the most from 4-6 months. After 6 months it slows down a little.
Trust me- our son just got his helmet at 11 months because we waited and trusted our ped. who said it would round out on its own. Most babies heads DO NOT, especially if it is a significant flattening.
FM me if you want more info.
Check out these boards too:
www.plagiocephaly.org
and there is a yahoo group too-
http://health.groups.yahoo.com/group/Plagiocephaly/
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| Posted 5/10/07 9:23 PM |
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Kris
LIF Adult
Member since 5/05 1051 total posts
Name:
Kristine
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Re: BTDT Plagiocephaly moms
Also, does DS have torticollis?
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| Posted 5/10/07 9:24 PM |
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yankinmanc
Happy Days!
Member since 8/05 18208 total posts
Name:
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Re: BTDT Plagiocephaly moms
Noah was seen for plagio when he was maybe 5 months old, the doctor at the hospital didn't feel it was something that would impair his development. He has developed completely normally and he was walking at 10 months, so we didn't worry too much about it.
He is now 16 months and his head does have a flat slope at the back, however my fathers head is flat in the same way. For us, we don't worry about it. We think round heads are over rated.
Good Luck!
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| Posted 5/11/07 4:21 AM |
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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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Re: BTDT Plagiocephaly moms
Posted by Kris
How old is DS? Don't trust your dr. that tells you it will "round out on its own". Go to a craniofacial surgeon for his/her opinion. You want to get banded (helmet therapy) ASAP, b/c the window of opportunity for correction is very small. I think if at 5 months, with AGGRESSIVE repositioning you see no improvement, INSIST upon a CT scan and a craniofacial specialist. You want to rule out synostosis and get the therapy asap. Their little heads grow the most from 4-6 months. After 6 months it slows down a little.
Trust me- our son just got his helmet at 11 months because we waited and trusted our ped. who said it would round out on its own. Most babies heads DO NOT, especially if it is a significant flattening.
FM me if you want more info.
Check out these boards too:
www.plagiocephaly.org
and there is a yahoo group too-
http://health.groups.yahoo.com/group/Plagiocephaly/
Thank you very much! And thank you too, Racheeeee! 
He does not have torticollis. He is 6 months old.
It is the ped. who sent us to the neurologist. His head has gotten better on it's own slightly, but not completely. The neurologist ruled out any developmental issues (which I knew). We now have to go to the neurosurgeon because they felt a slight ridgd, which is an indication of synostosis. So, we are so hoping it is not that! He will most likely need the helmet.
The reason I ask is because many people are telling me "don't worry, it will round out on it's own." The pediatrition and the neurologist said that it may improve a little more, but NOT 100% So, I am agreeing with the doctors that and he will most likely get the helmet. If it's not synostosis, which we hope it's not!
The thing is, this plagio has pushed his face forward. On the effected side, his ear is closer to his face and his eye is closer to the bridge of his nose. If it were only the back of his head, I might think twice about the helmet, but since his face has been effected we really want to try and fix this.
But, it is so frustrating because my mom keeps saying "you're jumping the gun. let it round out on it's own. the doctors don't know what they're talking about. you can't even notice." etc., etc. and it's really starting to wear on me!!! I know she is just trying to make me feel better, but you CAN notice it and the doctors DO know what they are talking about.
Thanks for letting me vent. 
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| Posted 5/11/07 9:41 AM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: BTDT Plagiocephaly moms
My PED was really concerned about Matthew's head and said he might need a helmet.
He also had torticollis.
His "did" correct itself, and we had to take him out of the swing.
When we put him in his crib and had him sleep on his belly, it got a lot better, and she wasnt concerned.
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| Posted 5/11/07 12:35 PM |
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pmpkn087
Life is good...
Member since 9/05 18504 total posts
Name:
Stephanie
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Re: BTDT Plagiocephaly moms
bump for Donna
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| Posted 9/2/07 9:50 AM |
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