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Does anyone know anything about getting kids with autism services in NYC?

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MorningCuppaCoffee
Tired!

Member since 12/07

16353 total posts

Name:
Allison

Does anyone know anything about getting kids with autism services in NYC?

This is to help a colleague of mine out.

Client has a son who is about 14. She's had people "helping" her to try to get a social worker/case manager for what seems like YEARS now. (I think she wants to get him on the OMRDD waiver).

My supervisor recommended contacting ACS to speed things along because the son is interferring with the mother (our client's) care and he feels like it's becoming a liability for our agency.

Any suggestions you have I will pass along. I don't normally work with kids and not so much in NYC anymore. They're in Brooklyn. He has special services through school during the year, but that's it. TIA!

Posted 7/30/10 4:40 PM
 
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ThinkingQuietly
LIF Infant

Member since 11/09

280 total posts

Name:

Re: Does anyone know anything about getting kids with autism services in NYC?

The "school district" is supposed to refer the child to OMRDD (NEW NAME this month- OPWDD) before graduation (usually age 21) They can refer as early as age 14 I believe. What he can get (maybe without the waiver, but definitely with it) is some sort of Respite after school, weekends and In-home Residential Habilitation. A service coordinator is ideal, and I am pretty sure kids have them too and he will need it for transitioning from school to the adult world later on. I work with Adults.

http://www.omr.state.ny.us/

http://www.omr.state.ny.us/document/hp_contacts.jsp

each region has their own DDSO - see link below - this is NYC's:
They should be able to direct them.

Metro NY Developmental Disabilities Services Office
75 Morton Street
New York, NY 10014
Phone: (212) 229-3000
Fax: (212) 924-0580
Counties served: Bronx & Manhattan
Acting Director: Janet Zampella


Edited to add: I quote school district because they don't always do this. The school should know to do it but they just don't for some reason.
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Message edited 7/30/2010 5:17:08 PM.

Posted 7/30/10 5:15 PM
 

EsquireFish
LIF Adult

Member since 3/09

1259 total posts

Name:
G

Re: Does anyone know anything about getting kids with autism services in NYC?

If you need a lawyer who specializes in this, FM me. One of my close friends from law school handles special needs students exclusively.

Posted 7/30/10 5:37 PM
 

Jacksmommy
My love muffin!

Member since 1/07

5819 total posts

Name:
Liz

Re: Does anyone know anything about getting kids with autism services in NYC?

What kind of services are u looking for? Is a school district involved?

Posted 7/30/10 5:40 PM
 

Jacksmommy
My love muffin!

Member since 1/07

5819 total posts

Name:
Liz

Re: Does anyone know anything about getting kids with autism services in NYC?

Posted by ThinkingQuietly

The "school district" is supposed to refer the child to OMRDD (NEW NAME this month- OPWDD) before graduation (usually age 21) They can refer as early as age 14 I believe. What he can get (maybe without the waiver, but definitely with it) is some sort of Respite after school, weekends and In-home Residential Habilitation. A service coordinator is ideal, and I am pretty sure kids have them too and he will need it for transitioning from school to the adult world later on. I work with Adults.

http://www.omr.state.ny.us/

http://www.omr.state.ny.us/document/hp_contacts.jsp

each region has their own DDSO - see link below - this is NYC's:
They should be able to direct them.

Metro NY Developmental Disabilities Services Office
75 Morton Street
New York, NY 10014
Phone: (212) 229-3000
Fax: (212) 924-0580
Counties served: Bronx & Manhattan
Acting Director: Janet Zampella


Edited to add: I quote school district because they don't always do this. The school should know to do it but they just don't for some reason.
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School districts refer children to VESID, not OMRDD.

Posted 7/30/10 5:41 PM
 

ThinkingQuietly
LIF Infant

Member since 11/09

280 total posts

Name:

Re: Does anyone know anything about getting kids with autism services in NYC?

Posted by Jacksmommy

Posted by ThinkingQuietly

The "school district" is supposed to refer the child to OMRDD (NEW NAME this month- OPWDD) before graduation (usually age 21) They can refer as early as age 14 I believe. What he can get (maybe without the waiver, but definitely with it) is some sort of Respite after school, weekends and In-home Residential Habilitation. A service coordinator is ideal, and I am pretty sure kids have them too and he will need it for transitioning from school to the adult world later on. I work with Adults.

http://www.omr.state.ny.us/

http://www.omr.state.ny.us/document/hp_contacts.jsp

each region has their own DDSO - see link below - this is NYC's:
They should be able to direct them.

Metro NY Developmental Disabilities Services Office
75 Morton Street
New York, NY 10014
Phone: (212) 229-3000
Fax: (212) 924-0580
Counties served: Bronx & Manhattan
Acting Director: Janet Zampella


Edited to add: I quote school district because they don't always do this. The school should know to do it but they just don't for some reason.
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School districts refer children to VESID, not OMRDD.




Maybe different in NYC? Long Island School districts need to refer their students with developmental disabilities to OMRDD (OPWDD) if they will need adult services after 21. Otherwise OMRDD will not know to expect them (budget) as they do not know who will be graduating (needing services) without the school district referral. They need to be waiver enrolled to receive day programs, res. hab, respite.... VESID is for jobs, but not every graduate needs that right after grad or are ready for it yet.

Posted 7/30/10 8:36 PM
 

Peainapod
Peanuts are here!

Member since 1/09

13591 total posts

Name:
Diana

Re: Does anyone know anything about getting kids with autism services in NYC?

Posted by EsquireFish

If you need a lawyer who specializes in this, FM me. One of my close friends from law school handles special needs students exclusively.



my coworker has a son who is bipolar and autistic; i think he's 12 now and in a special school in Hauppague.

She does have an education lawyer that has helped her through the paperwork that is the board of ed.

She also works closely with drs. at the NYU child study school. Your friend may want to check there.

Her son has an Autism Service Dog trained by Autism Service Dogs of America based in Oregon. We helped her raise 15,000 for the dog and it has DRAMATICALLY changed her son's life having this companion with him.

She is a single mom now. Her DH got tired of dealing with 2 boys that have developemental issues.

Posted 7/30/10 8:46 PM
 

Jacksmommy
My love muffin!

Member since 1/07

5819 total posts

Name:
Liz

Re: Does anyone know anything about getting kids with autism services in NYC?

Posted by ThinkingQuietly

Posted by Jacksmommy

Posted by ThinkingQuietly

The "school district" is supposed to refer the child to OMRDD (NEW NAME this month- OPWDD) before graduation (usually age 21) They can refer as early as age 14 I believe. What he can get (maybe without the waiver, but definitely with it) is some sort of Respite after school, weekends and In-home Residential Habilitation. A service coordinator is ideal, and I am pretty sure kids have them too and he will need it for transitioning from school to the adult world later on. I work with Adults.

http://www.omr.state.ny.us/

http://www.omr.state.ny.us/document/hp_contacts.jsp

each region has their own DDSO - see link below - this is NYC's:
They should be able to direct them.

Metro NY Developmental Disabilities Services Office
75 Morton Street
New York, NY 10014
Phone: (212) 229-3000
Fax: (212) 924-0580
Counties served: Bronx & Manhattan
Acting Director: Janet Zampella


Edited to add: I quote school district because they don't always do this. The school should know to do it but they just don't for some reason.
Chat Icon Chat Icon



School districts refer children to VESID, not OMRDD.




Maybe different in NYC? Long Island School districts need to refer their students with developmental disabilities to OMRDD (OPWDD) if they will need adult services after 21. Otherwise OMRDD will not know to expect them (budget) as they do not know who will be graduating (needing services) without the school district referral. They need to be waiver enrolled to receive day programs, res. hab, respite.... VESID is for jobs, but not every graduate needs that right after grad or are ready for it yet.



I teach in a Long Island School District. We legally do not need to refer to OPWDD but we do need to refer to VESID. There is a wait list of over 3 years for the Katie Beckett waiver last I heard and res hab/respite isn't usually available for individuals over 21. This is straight from Vesids website:
Vocational and Educational Services for Individuals with Disabilities (VESID) offers access to a full range of services that may be needed by persons with disabilities through their lives. Through its administration of vocational rehabilitation and independent living programs, VESID coordinates policy and services relating to:

transition services for students with disabilities from school to adult services;
vocational rehabilitation services for individuals with disabilities, ages 16 and older;
independent living services for people with disabilities of all ages; and
employer services for hiring a qualified diverse workforce.
The seeds of adult success are sown during the school years. The system established by the Board of Regents to administer education and vocational services for people with disabilities fosters this and has evolved into a national model, designed to focus on our customers and produce results.

To the OP: I thought about this more. It sounds like your client isn't "capable" of taking care of a child with autism if it is interfering with the care of the individual. I don't know if ACS will do anything, but maybe the parent needs to get an advocate also (not necessarily a lawyer because they might not be able to afford one) to determine what, if any, other services are available for the child. Unfortunately, there are a lot of services out there, but the parents have to be detectives in finding it out. I am going to FM you some agencies that may be available to help!

Posted 7/30/10 8:51 PM
 
 

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