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Last hope speciatlist today

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NYRangersgirl
LIF Infant

Member since 12/09

85 total posts

Name:

Last hope speciatlist today

So after over a very long year of not being able to swallow any food and being missdiagnosed the DR's finally told me I had achalasia (which is rare and means that my esophagus lost motility and the bottom closed up). I had the operation for it 4 years ago and of course ended up with the 5% chance of it not fully working. So here I am after 5 years of this and I get told that what we thought was my last hope other then operating again can not happen in NY. REALLY!!!! I am so frustrated and nervous at the same time. Now I am leaving in under an hour to go to what is my last hope at getting better to go to a specialist in Philly. Please just keep me in your thoughts that they have some idea of how to make me be able to eat like a normal person and not need over a gallon of water a day just to push my food down. TIA

Posted 4/14/11 8:52 AM
 

toddlerandtwins
LIF Infant

Member since 12/09

218 total posts

Name:

Re: Last hope speciatlist today

Good luck!!
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Posted 4/14/11 1:33 PM
 

Blu-ize
Plan B is Now Plan A

Member since 7/05

32475 total posts

Name:
Susan

Re: Last hope speciatlist today

Oh my. So sorry you are suffering.

I wish you the best of luck. I will definitely keep you in my thoughts and prayers as you embark on this journey.Chat Icon

Posted 4/14/11 3:01 PM
 

cj7305
=)

Member since 8/05

12296 total posts

Name:

Re: Last hope speciatlist today

How terrible. Best of luck to you!Chat Icon

Posted 4/14/11 6:05 PM
 

Sunny10
LIF Adult

Member since 10/10

1287 total posts

Name:

Re: Last hope speciatlist today

Wishing you the best with your trip. Chat Icon

Posted 4/14/11 7:05 PM
 

NYRangersgirl
LIF Infant

Member since 12/09

85 total posts

Name:

Re: Last hope speciatlist today

Thanks for the good thoughts. It actually went well and the DR. thinks he will be able to help me. Chat Icon Chat Icon

Posted 4/15/11 7:59 PM
 
 

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