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Porrruss
Nya nya nya
Member since 5/05 11618 total posts
Name:
Amy
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Re: My daughters stuggle and story
I work with a woman who's DD is allergic to virtually everything. I'm wondering if it's the same disorder. Her DD is elementary aged and is very well liked by other kids. She really handles her food allergies in stride. It's made her very mature, but she doesn't seem to "miss out" on anything.
I'll talk to this teacher tomorrow and ask her.
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Posted 4/5/10 9:54 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
monkeybride
My Everything
Member since 5/05 20541 total posts
Name:
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Re: My daughters stuggle and story
Vent away.
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| Posted 4/5/10 9:57 PM |
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Stacey1403
Where it all began....
Member since 5/05 24065 total posts
Name:
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Re: My daughters stuggle and story
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| Posted 4/5/10 10:06 PM |
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SweetCin
My green-eyed boy
Member since 5/05 13499 total posts
Name:
Cin
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Re: My daughters stuggle and story
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| Posted 4/5/10 10:08 PM |
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lvdolphins
My Loves!
Member since 5/05 46292 total posts
Name:
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Re: My daughters stuggle and story
I am so sorry.
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| Posted 4/5/10 10:09 PM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: My daughters stuggle and story
I'm so sorry you and your little girl are going through this. My son has (minor) food allergies and we have it pretty much in hand so I don't have experience, but wish you the best
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| Posted 4/5/10 10:09 PM |
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CathyB
Member since 5/05 19403 total posts
Name:
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Re: My daughters stuggle and story
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| Posted 4/5/10 10:17 PM |
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nbc188
Best friends!
Member since 12/06 23090 total posts
Name:
C
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Re: My daughters stuggle and story
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| Posted 4/5/10 10:21 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: My daughters stuggle and story
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| Posted 4/5/10 10:23 PM |
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Little-J-Mommy
I'm a Big Brother
Member since 5/06 8041 total posts
Name:
D
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Re: My daughters stuggle and story
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| Posted 4/5/10 10:24 PM |
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julz33
i run for bacon
Member since 5/05 20584 total posts
Name:
julz
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Re: My daughters stuggle and story
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| Posted 4/6/10 8:18 AM |
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sweetie101
you make me smile :o)
Member since 5/08 4419 total posts
Name:
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Re: My daughters stuggle and story
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| Posted 4/6/10 8:42 AM |
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DancinBarefoot
06ers Rock!!
Member since 1/07 9534 total posts
Name:
The One My Mother Gave Me ;-)
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Re: My daughters stuggle and story
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| Posted 4/6/10 10:49 AM |
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jxnoscar
Baby Delicious!
Member since 8/06 4156 total posts
Name:
Nancy
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Re: My daughters stuggle and story
My cousin had this. My aunt would make special bday cakes/cookies that weren't really cakes at all. I will try and get the recipes for you
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| Posted 4/6/10 10:50 AM |
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EricaAlt
LIF Adult
Member since 7/08 22665 total posts
Name:
Erica
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Re: My daughters stuggle and story
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| Posted 4/6/10 10:51 AM |
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Aga
hello baby Albert
Member since 9/05 7750 total posts
Name:
Aga
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Re: My daughters stuggle and story
this is a good place to vent, lots of hugs for you and your family
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| Posted 4/6/10 10:54 AM |
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Kidsaplenty
Sister love
Member since 2/06 5971 total posts
Name:
Stephanie
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Re: My daughters stuggle and story
I can't even begin to imagine how difficult this is for you.
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| Posted 4/6/10 10:57 AM |
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MM2004
...
Member since 5/05 1854 total posts
Name:
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Re: My daughters stuggle and story
PAK - Protect Allergic Kids is a Long Island based support group for parts of kid with food allergies and EE.
They have meetings usually everyother month in Holbrook but you can be a "virtual member" and get information sent to you by e-mail.
The women who run it are amazing and have so much knowledge about help children live with food allergies and EE.
My son is allergic to milk and it is so scary as he will be going to Kindergarten next year and I am so scared something will happen to him.
http://www.protectallergickids.com/
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| Posted 4/6/10 7:54 PM |
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Lola
LIF Adult
Member since 1/07 1854 total posts
Name:
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Re: My daughters stuggle and story
I know of children who are on extremely restricted diets and it becomes normal for them since they don't know any other way. They don't really seem to miss out on the foods they can't eat.
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| Posted 4/6/10 8:18 PM |
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MaMaTeenie
Party of 5
Member since 4/08 6489 total posts
Name:
Mommy
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Re: My daughters stuggle and story
What happened? I thought her allergy tests were coming back negative! You are strong, you will get thru it and you will raise a strong daughter who can and will live a very normal life with a restricted diet. Its a little easier that she won't really know what she is missing. But I know it will break your heart. My friends nephew has very severe allergies to everything and had to be fed thru a tube for the first 4 yrs of his life. I know what she went thru and its heart breaking, not that that is in J's future, but you can over come it. Over the last year and 1/2 I have learned that reaching out to people who are going thru the same thing can be very helpful. love you! You know I'm always here
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| Posted 4/6/10 8:39 PM |
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nancygrace
I'm 2!
Member since 9/05 6616 total posts
Name:
Live*Love*Laugh
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Re: My daughters stuggle and story
Posted by MaMaTeenie
What happened? I thought her allergy tests were coming back negative! You are strong, you will get thru it and you will raise a strong daughter who can and will live a very normal life with a restricted diet. Its a little easier that she won't really know what she is missing. But I know it will break your heart. My friends nephew has very severe allergies to everything and had to be fed thru a tube for the first 4 yrs of his life. I know what she went thru and its heart breaking, not that that is in J's future, but you can over come it. Over the last year and 1/2 I have learned that reaching out to people who are going thru the same thing can be very helpful. love you! You know I'm always here
thanks mamateenie... no the last patch testing came back good of some fruits and veggies. but the one before that found lots of allergies such as corn, eggs, peanuts, oat, rye...the list goes on... the messed up thing is high fructose corn syrup and corn starch is in EVERYTHING!! and so is eggs but were moving along... starting an invasive food introduction after scope this month. its a longer haul then i could of ever imagined. thank god for the suport i have so far.
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| Posted 4/6/10 9:16 PM |
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nancygrace
I'm 2!
Member since 9/05 6616 total posts
Name:
Live*Love*Laugh
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Re: My daughters stuggle and story
Posted by MM2004
PAK - Protect Allergic Kids is a Long Island based support group for parts of kid with food allergies and EE.
They have meetings usually everyother month in Holbrook but you can be a "virtual member" and get information sent to you by e-mail.
The women who run it are amazing and have so much knowledge about help children live with food allergies and EE.
My son is allergic to milk and it is so scary as he will be going to Kindergarten next year and I am so scared something will happen to him.
http://www.protectallergickids.com/
thank you
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| Posted 4/6/10 9:17 PM |
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MaMaTeenie
Party of 5
Member since 4/08 6489 total posts
Name:
Mommy
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Re: My daughters stuggle and story
Posted by nancygrace
Posted by MaMaTeenie
What happened? I thought her allergy tests were coming back negative! You are strong, you will get thru it and you will raise a strong daughter who can and will live a very normal life with a restricted diet. Its a little easier that she won't really know what she is missing. But I know it will break your heart. My friends nephew has very severe allergies to everything and had to be fed thru a tube for the first 4 yrs of his life. I know what she went thru and its heart breaking, not that that is in J's future, but you can over come it. Over the last year and 1/2 I have learned that reaching out to people who are going thru the same thing can be very helpful. love you! You know I'm always here
thanks mamateenie... no the last patch testing came back good of some fruits and veggies. but the one before that found lots of allergies such as corn, eggs, peanuts, oat, rye...the list goes on... the messed up thing is high fructose corn syrup and corn starch is in EVERYTHING!! and so is eggs but were moving along... starting an invasive food introduction after scope this month. its a longer haul then i could of ever imagined. thank god for the suport i have so far.
Oh Geez Nance! Yes, between eggs and corn syrup alone they are in everything will they give you the help of a nutritionist? When does she have the scope?
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| Posted 4/6/10 9:23 PM |
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nancygrace
I'm 2!
Member since 9/05 6616 total posts
Name:
Live*Love*Laugh
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Re: My daughters stuggle and story
Posted by MaMaTeenie
Posted by nancygrace
Posted by MaMaTeenie
What happened? I thought her allergy tests were coming back negative! You are strong, you will get thru it and you will raise a strong daughter who can and will live a very normal life with a restricted diet. Its a little easier that she won't really know what she is missing. But I know it will break your heart. My friends nephew has very severe allergies to everything and had to be fed thru a tube for the first 4 yrs of his life. I know what she went thru and its heart breaking, not that that is in J's future, but you can over come it. Over the last year and 1/2 I have learned that reaching out to people who are going thru the same thing can be very helpful. love you! You know I'm always here
thanks mamateenie... no the last patch testing came back good of some fruits and veggies. but the one before that found lots of allergies such as corn, eggs, peanuts, oat, rye...the list goes on... the messed up thing is high fructose corn syrup and corn starch is in EVERYTHING!! and so is eggs but were moving along... starting an invasive food introduction after scope this month. its a longer haul then i could of ever imagined. thank god for the suport i have so far.
Oh Geez Nance! Yes, between eggs and corn syrup alone they are in everything will they give you the help of a nutritionist? When does she have the scope?
scope is on the 23rd... after that we will be switching to mount sinai after the childrens hospital in Philly review her records.. from that point on i believe all her dr's may change. I have alot of research goin on to find the best care fro her right now.. But a nutritionist is a definate
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| Posted 4/6/10 9:31 PM |
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MamaB17
Back for baby #3
Member since 5/09 4065 total posts
Name:
N
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Re: My daughters stuggle and story
I can't imagine how difficult this must be for you. My MIL has severe food allergies, but was never able to be given a clear diagnosis by any doctors. She developed them later in life after her second pregnancy (w/ my DH). It sounds similar to what you are dealing with. She is only able to eat a limited amount of things, and can never eat out. I think she handles it better than the rest of us. I always feel bad when we have a function to go to, and she can't eat, but she takes it all in stride. She is a tough cookie. At our wedding she had to bring food, and my BIL took it into the kitchen to warm it up. It stinks, but she manages. Hopefully your dd will out grow some of it. Keep up the great work!
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| Posted 4/6/10 10:06 PM |
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