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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Oh for the love of Pete...Cushings?
Doctor is now testing my cortisol levels...
Does anyone have/know someone/familiar with Cushings?
TIA
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Posted 1/10/09 3:03 PM  |
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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Re: Oh for the love of Pete...Cushings?
I remember being tested for it.
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| Posted 1/11/09 3:23 AM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
meeeeee (again)
I had high Cortisol and they suspected cushings...but I was cleared. There are diets and foods that are naturally supposed to lower your cortisol levels - I know cucumbers are one.
Honestly, I think all of my autoimmune issues were branches of my PCOS, because now that I'm PG and my PCOS is not active, I haven't had any issues at all.
Message edited 1/11/2009 11:56:29 AM.
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| Posted 1/11/09 11:55 AM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
Posted by Shorty
meeeeee (again)
I had high Cortisol and they suspected cushings...but I was cleared. There are diets and foods that are naturally supposed to lower your cortisol levels - I know cucumbers are one.
Honestly, I think all of my autoimmune issues were branches of my PCOS, because now that I'm PG and my PCOS is not active, I haven't had any issues at all.
See they say I dont have PCOS b/c I never had any fertility issues..But I honestly question that.
Why did they suspect Cushings? If you look at pics of me from just a few years ago...even a year ago...there is quite a difference...Ive gained 50lbs in 3 years. I lost all of the preggo weight within the first couple of months...BUT since last Januray ive put another 20lbs. This just isnt right....
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| Posted 1/11/09 4:38 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
insanely fast weight gain, high levels of cortisol in my blood, skin rashes/hives were all contributing factors.
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| Posted 1/11/09 5:43 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
Posted by Shorty
insanely fast weight gain, high levels of cortisol in my blood, skin rashes/hives were all contributing factors.
WAIT....did they tell you that the rash can be a part of the symptoms? Of Cushing's..our rash..that rash...My GP said that it wasnt related..although I dont believe him. I think I need a new GP. (And Ive been getting hives for years..)
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| Posted 1/11/09 6:53 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
yes yes yes
the rash was a big sign!
I started seeing an allergist/immunologist...that's when I started getting answers.
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| Posted 1/11/09 7:29 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
Message edited 6/2/2017 1:44:10 PM.
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| Posted 1/11/09 7:53 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
Posted by Shorty
yes yes yes
the rash was a big sign!
I started seeing an allergist/immunologist...that's when I started getting answers.
OK...this rash with the circles right? This rash that they want the rheumatologist to see before they will treat it...right? You had the circles??!!!!
So then I should make another appointment with another doctor? Couldnt hurt right?
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| Posted 1/11/09 7:56 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
YES - I had the circles!! that's how it all started for me.
Red/purple circles. After a few weeks, the red/purple circles started growing huge pink hives in them.
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| Posted 1/11/09 7:58 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
I posted on here...a few months or so ago...asking if anyone else got hives from contact with WATER...I had forgotten about thoses hives...
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| Posted 1/11/09 8:00 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
yup, my hives got worse after showers...worse after wearing a bra/tight fitting clothing, UGH I'm seriously terrified if this is going to come back after the babies are out.
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| Posted 1/11/09 8:01 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
Posted by Shorty
YES - I had the circles!! that's how it all started for me.
Red/purple circles. After a few weeks, the red/purple circles started growing huge pink hives in them.
They looked like this...
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| Posted 1/11/09 8:02 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
that's exactly how they started for me - AND how every single one of my hives looked when the swelling went down. the red/purple circle lasted for a few hours after the swelling.
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| Posted 1/11/09 8:05 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
just to clarify - i DID NOT have cushings (confirmed my ct scan of my brain) - but my symptoms were very very similar. (especially the high cortisol)
I went through a lot of time, money and energy with this whole rash thing. A LOT. I'm sure I'd still be dealing with it had I not become PG. In fact, the next step for me was to try a medication called Cellcept...not covered by my insurance, and costly (and a little scary! drug facts). You absolutely CANNOT take this med while PG, but I didn't need it anyway.
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| Posted 1/11/09 8:11 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
Posted by Shorty
just to clarify - i DID NOT have cushings (confirmed my ct scan of my brain) - but my symptoms were very very similar. (especially the high cortisol)
I went through a lot of time, money and energy with this whole rash thing. A LOT. I'm sure I'd still be dealing with it had I not become PG. In fact, the next step for me was to try a medication called Cellcept...not covered by my insurance, and costly (and a little scary! drug facts). You absolutely CANNOT take this med while PG, but I didn't need it anyway.
What is the reason behind your high cortisol?
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| Posted 1/11/09 9:44 PM |
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Shorty
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Member since 5/05 30390 total posts
Name:
really
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Re: Oh for the love of Pete...Cushings?
a big fat unknown.
I really am a mess!
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| Posted 1/11/09 10:14 PM |
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hbugal
Lesigh
Member since 2/07 15928 total posts
Name:
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Re: Oh for the love of Pete...Cushings?
Posted by Shorty
a big fat unknown.
I really am a mess!
Did they only check to see if you had a pituitart tumor? Cant the tumor be somewhere else? I know it's rare....but so is Cushings
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| Posted 1/11/09 11:28 PM |
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