Re: One of our moms needs a ton of prayers - Xpost
I just saw that post and commented on that thread, but my heart is just hurting for this family. I have been researching for the past hour on the disease, and I am so so sorry she has been afflicted with it. They are definetely in my prayers, and I hope there is a way we can help if they need us.
Re: One of our moms needs a ton of prayers - Xpost
Posted by lulugrrl
I just saw that post and commented on that thread, but my heart is just hurting for this family. I have been researching for the past hour on the disease, and I am so so sorry she has been afflicted with it. They are definetely in my prayers, and I hope there is a way we can help if they need us.
I have too I am crying at my desk right now I am so so sorry... please tell us if you need absolutely anything
Re: One of our moms needs a ton of prayers - Xpost
You are in my thoughts and prayers...
Are they able to tell you yet what type?
My daughter went to school with a child who had Kugelberg-Welander disease. Which is type III I think. I lost touch with the parents long ago but they were very inspirational.
Re: One of our moms needs a ton of prayers - Xpost
I'm so upset for you and your family... I'm bawling over here and I don't even know you or your little one. My prayers go out to you in this difficult time. Please let us know if we can do anything to help you in any way.