Thank you all for the kind words, thoughts, prayers and FMs. I'm sorry I haven't gotten back to each one but please know they mean a lot to us, it's just still very overwhelming.
We have created a blog where you can follow our story if you'd like. I probably won't be posting much more of it on here but feel free to share it as needed in the future (I know the 'someone FM me what's going on' posts will eventually crop up if there's mention ).
I am so so sorry for what you are going through. I will certainly keep Quinn and your whole family in my prayers. I can't even imagine what this must be like for you. Your first blog post was worded so beautifully. I wish you strength, peace, and comfort.
I am sorry, I am just so incredibly sorry. I wish I had better words to express my sadness over your post. I hope that your family is able to enjoy every precious moment of your child's life. Your family is in my thoughts and prayers.