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Please help me reach my goal and find a cure for NF!

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staceyd
LIF Adult

Member since 8/08

2052 total posts

Name:
stacey

Please help me reach my goal and find a cure for NF!

I am currently less than 500 dollars from my goal of fundraising for the cupids undie run.... a fun race that helps to fund research to end Neurofibromatosis, the disorder my son currently has. NF causes tumors to grow throughout his body... at nly 6 weeks he was diagnosed iwth a large group of tumors already. NF can be deforming, can cause learning disabilites, can cause deafness and blindness, can be debilitating, cause pain... the list goes on and on.. with the final and scariest possibility that the tumors can turn to cancer. It is also the leading genetic disorder affecting 1 in every 3000 birth... and 50% of all cases are mutations, like my son... this can happen to any of us.. and this is why I run and fundraise every year for this cause. Please.. even if its 5 dollars.. you are helping us get closer to a cure and treatment for this disorder. The link is below. Thank you


Cupids Undie Run

Posted 2/14/14 1:55 PM
 
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Mtk1605
LIF Toddler

Member since 12/11

460 total posts

Name:

Please help me reach my goal and find a cure for NF!

I have NF2 - thank you for doing this :) Its very rare you see NF fundraisers. I will donate as soon as I get home, and I will forward to my family members too.

Posted 2/14/14 2:40 PM
 

staceyd
LIF Adult

Member since 8/08

2052 total posts

Name:
stacey

Re: Please help me reach my goal and find a cure for NF!

THANK YOU! And I hope you are doing well!! My son has NF 1... And you are right, I am glad to do whatever I can to help find a cure!!!!!!

Posted 2/14/14 3:04 PM
 

Mtk1605
LIF Toddler

Member since 12/11

460 total posts

Name:

Please help me reach my goal and find a cure for NF!

Done. I shared on my FB page :) hopefully it will help you reach your goal

Posted 2/14/14 3:47 PM
 

staceyd
LIF Adult

Member since 8/08

2052 total posts

Name:
stacey

Re: Please help me reach my goal and find a cure for NF!

Bump for night crew! I'm only 417 away from my goal!!

Posted 2/14/14 7:36 PM
 
 

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