My husband and I are both carriers for SMA type 1, a very rare but deadly genetic disease, Sophia has a 25% chance of having this disease and a 75% chance of being healthy, we are going in to LIJ Sneiders hospital tomorrow and 2pm to have Sophia's blood drawn so she can be tested, we have to wait 12 days after that for the results.....Please pray that she does not have this disease, babies usually dont live past 2 years old who have this...Thank you!!!!!!!!!!
