Keeping your little boy in my prayers. A friend of mine is just 3 weeks behind me and recently found out after amnio that her little boy has Downs and had a fetal echo and he too will need major open heart surgery. Her and her DH are a strong team and they are going to give him the best life they possibly could!
I hope and pray that everything works out for you, your Dh and your beautful boy. I can only imagine what you are going through and my heart goes out to you.
Tons of prayers for you. My friends DD had that same thing and her DD is 7 yrs old now and a healthy, happy little girl.
Dr. Jan Quaegebeur did her DD's surgery and he did mine. He specializes in congenital heart defects in infants. FM me if you want more info. MDDr. Jan Quaegebeur