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DandN
Twins are here!
Member since 3/06 3597 total posts
Name:
Deirdre
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Please sign this petition for a friend's sick child
If you have a moment, please sign this petition for research to study PHACE Syndrone, an extremely rare disorder that was only formally diagnosed in 1996. A friend of mine from another site has this devastating disease (I've posted about him before - the Mighty Quinn) and it is incredibly underresearched.
Thanks!
This was the original email from Jen (Quinn's mom)
Please sign this VERY important petition to the National Institute of Health for VITAL research that is proposed to study PHACE Syndrome. The study that is proposed is a comprehensive one that will be incredibly ground breaking and so needed for our kids.
Please visit this link and sign the petition in honour of Quinn and his brave journey with PHACE Syndrome. Please Please everyone sign this petition and pass it on. WE really need this for our kids and for Quinn.
petition for PHACES research
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Posted 12/8/08 1:41 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
My4GirlsMyLife
My 4 girlies
Member since 2/08 9702 total posts
Name:
Valerie
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Re: Please sign this petition for a friend's sick child
I signed it
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| Posted 12/8/08 1:51 PM |
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DandN
Twins are here!
Member since 3/06 3597 total posts
Name:
Deirdre
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Re: Please sign this petition for a friend's sick child
Thank you very much!!!!
The poor boy suffered a stroke in utero, has PHACES (cerebral, pulmonary and vascular problems) and was given an Autism diagnosis a few months ago. . . and yet his family keeps advocating for him and other children - and he keeps making progress -he's a miracle.
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| Posted 12/8/08 1:59 PM |
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CellarDweller
LIF Adult
Member since 11/05 1562 total posts
Name:
Jennifer
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Re: Please sign this petition for a friend's sick child
Signed!
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| Posted 12/8/08 2:08 PM |
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Celt
~~~~~~~~~~
Member since 4/08 7758 total posts
Name:
colette
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Re: Please sign this petition for a friend's sick child
SIGNED!!!!!
And a prayer for Quinn too 
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| Posted 12/8/08 2:10 PM |
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josie919
Here we go!
Member since 2/08 1108 total posts
Name:
Josie
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 2:41 PM |
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DmarieK
My loves!!
Member since 1/06 9203 total posts
Name:
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Re: Please sign this petition for a friend's sick child
I signed!!
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| Posted 12/8/08 2:44 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: Please sign this petition for a friend's sick child
I signed.
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| Posted 12/8/08 2:47 PM |
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chelle
It's a Good Life
Member since 8/06 15404 total posts
Name:
Isn't it obvious?
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Re: Please sign this petition for a friend's sick child
signed 
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| Posted 12/8/08 3:00 PM |
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mommy2bella
Where does time go?
Member since 12/05 9747 total posts
Name:
Kelly
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Re: Please sign this petition for a friend's sick child
Happy to sign it....
Thank you for the awareness...
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| Posted 12/8/08 3:07 PM |
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PrincessP
Big sister!!!!!!!!!!
Member since 12/05 17450 total posts
Name:
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 3:38 PM |
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littlejoy06
Love
Member since 3/07 6944 total posts
Name:
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 3:40 PM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 3:43 PM |
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Diana1215
Living on a prayer!!!
Member since 10/05 29450 total posts
Name:
Diana
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 3:45 PM |
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jessbaby
My boys!
Member since 1/06 5292 total posts
Name:
Jessica
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 3:50 PM |
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imyself
Member since 10/06 2938 total posts
Name:
me
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Re: Please sign this petition for a friend's sick child
signed
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| Posted 12/8/08 3:52 PM |
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