Thanks girls for your prayers for Jacen (UPDATE #2)

Hey everyone!

Yesterday when i came home from work for lunch my husband was feeding Jacen and i noticed his hands were purple. So i took him to take his temperature (rectal) and i noticed that his legs were purple. I immediately had my husband call MCL916 (who lives across the street) to come over and listen to his lungs. She advised us that we should go to the hospital.

Jacen did well at the hospital for the most part. It took them 4 people to find a vein on my chunky monkey. But he was certainly the hit of the hospital and he loved it all.

We're still waiting on the blood cultures to come back. But he has RSV- bronchitis. So they wanted to admit him overnight to observe him.

So we finally got a room around 6pm (his bedtime) and the nurse hooked up a heart rate monitor thingy to his toe. Well he was miserable the whole time. I couldn't get him to sleep at all. The monitor kept beeping the whole time. I was miserable. He was miserable. When my husband came back with all of our stuff... he was miserable.

Well after i turned off the machine myself, we decided we were going to go home. They weren't going to give him any antibiotics and they were only going to give him a nebulizer if needed. They weren't even going to give him tylenol. So there was no point in being there. We'd rather be miserable at home.

We had the respiratory therapist come check him out first. She said he sounded good. She did give him another nebulizer treatment before we left just in case. A few of the nurses said that they would do the same thing as us.

As soon as we got in the car, he fell asleep. He slept until 11:30pm. Went back down after a feeding until 3:30am. Same thing until 6:30am. So he got some rest.

He's much happier this morning. His appetite is returning.

We're bringing him to the ped this morning.

However just before he did start to turn purple again. I immediately wrapped him up in a blanket and cuddled with him. His color returned. Not sure if this is happening because he's cold because he's fighting the bronchitis or not. But we're certainly going to try and get some answers today. The hospital didn't really have any as far as his color changing. So we'll see.

Thanks girls for your prayers for my little man. It was a bit scary yesterday. Thanks MCL916 for everything, CHELLE and ZETA1996!!!!! Love you girls!

UPDATE #2

Jacen turned purple again yesterday, twice within an hours time. The ped office was useless (but that's another story) and we took Jacen to Stonybrook hospital just to be sure.

They were EXCELLENT. Much more helpful in the hour we were there than in the 9 hours at Southampton. They explained everything to us fully. They gave us a script for a nebulizer for home. They gave him a treatment while we were there. They also explained that him turning purple is normal in some infants. Basically his vessels are working overtime (spasms) and that it's nothing to be concerned about. The only cause for concern is if his torso, face or particularly his lips turn purple.

Yesterday Jacen was doing much better. Came home happy. He did fight me going to bed and then woke up 2 hours later screaming bloody murder. It took an hour to get him to calm down and go back to sleep. The rest of the night he woke up twice with no problems. He did throw up last night, but that's a good thing. That means it's breaking up and getting out of his system.

However, i woke up this morning and i'm now getting bronchitis. figures right! But Jacen is doing well and is probably much better than his parents are right now!

Thanks wannabeamom for the article you FM'ed me. It was a relief to know that what our doctors told us, is the same as what others have heard. Because my god, is it scary when it happens.

Message edited 12/24/2008 10:25:58 AM.

Re: Thanks girls for your prayers for Jacen (UPDATE)

Posted by aliwnec10
Thanks girls for your prayers for my little man. It was a bit scary yesterday. Thanks MCL916 for everything, CHELLE and ZETA1996!!!!! Love you girls!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Love you guys too!!! Let me know if you need anything today....we are going shopping in BH, so if you need something let me know!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Oh no! What a past few days you have had...I really hope he feels better and you get some answers today!!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Glad things are getting better!!!! DD had bronchitis at 6 months and the nebulizer worked really well. I hope things go well at the dr.

Re: Thanks girls for your prayers for Jacen (UPDATE)

glad to see this update!~ was looking for one ;)
hugs to your lil boy, hope hes feeling better soon!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Hope he feels better soon.

Re: Thanks girls for your prayers for Jacen (UPDATE)

So glad he is feeling better. He better learn not to scare us like that anymore!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

This is what my DS had as well. I am upset with your pediatrician for not seeing the red flags sooner From what you typed here it was apparent to me he needed a nebulizer. I am glad he is ok now but what a huge scare for you guys Poor little guy. Hope he feels better soon!

Message edited 12/23/2008 9:28:13 AM.

Re: Thanks girls for your prayers for Jacen (UPDATE)

Sorry I missed the post yesterday, but I'm so happy Jacen is feeling better today!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Awww poor thing. I hope he has a speedy recovery and feels better soon

Re: Thanks girls for your prayers for Jacen (UPDATE)

Glad Jacen is getting better!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Thank you for the update. So incredibly happy to hear that he is okay!



Lucas' hands get bluish/purple when he is cold. Has since he was little and even though we've been through this with him I still get scared each time. No explanation as to why...just that he gets cold easily. Warming him up makes the color change so no one seems alarmed but me. As he has gotten older it has gotten better...plus he can walk up to get his blanket or cuddle with someone to get warm.

Not to say that this is the same but reading your story made my heart jump.

Re: Thanks girls for your prayers for Jacen (UPDATE)

G had RSV at 9 mos old. He also had discolouration under his finger and toe nails.

I am glad you were able to take him home & have somewhat of a better night!

Re: Thanks girls for your prayers for Jacen (UPDATE)

hope everything turns out fine

Re: Thanks girls for your prayers for Jacen (UPDATE)

Glad to hear he is feeling better!!!!!!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Glad you're home and hope everything goes well at the peds!

Re: Thanks girls for your prayers for Jacen (UPDATE)

Thank you for the update on Jacen! What a scary situation to find yourself in. I hope your little man continues to improve by leaps and bounds

Please update us again after you see his pediatrician.

Re: Thanks girls for your prayers for Jacen (UPDATE)

hope he feels better soon

Re: Thanks girls for your prayers for Jacen (UPDATE)

So glad he is feeling better!!!!! How scary that must have been!

Re: Thanks girls for your prayers for Jacen (UPDATE)

So glad you got some answers! Hope he gets better soon!

Re: Thanks girls for your prayers for Jacen (UPDATE)

I'm so glad he's getting better!!

Re: Thanks girls for your prayers for Jacen (UPDATE)

So glad he is well! How scary!

Re: Thanks girls for your prayers for Jacen (UPDATE)

I'm so glad to hear that he's home and doing better.

Re: Thanks girls for your prayers for Jacen (UPDATE)

My prayers for your lil one..I'm so happy he is feeling better...