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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
is featured today on the Hartley's Life With 3 Boys blog. (A must read blog for anyone dealing with or questioning SPD)
I know many of you have followed Cole's "journey through Autism" - I hope this can be helpful and encouraging to someone. Thanks for letting me share!
I Need To Tell You ....
Message edited 10/31/2010 1:16:47 PM.
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Posted 10/30/10 12:43 PM  |
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sapphire
LIF Adolescent
Member since 6/06 568 total posts
Name:
Elizabeth
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Re: Cole's Sensory Processing Disorder journey ...
Definitely a MUST READ !!! Thank you Lea for posting this :)
SPD is understood by so few and it's holding so many little ones back without the correct sensory input.
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| Posted 10/30/10 12:56 PM |
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TaraHutch
True beauty
Member since 10/07 9888 total posts
Name:
Tara
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Re: Cole's Sensory Processing Disorder journey ...
what an amazing story...you are an amazing, strong mom.  And what a wonderful mom to share her experience with you! I can only imagine how proud you must be of Cole...and you should be proud of yourself! You have done wonders for him!
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| Posted 10/30/10 1:10 PM |
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Janice
Sweet Jessie Quinn
Member since 5/05 27567 total posts
Name:
Janice
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Re: Cole's Sensory Processing Disorder journey ...
wow lea!!
loved reading this!!
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| Posted 10/30/10 1:16 PM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: Cole's Sensory Processing Disorder journey ...
Thanks girls! I've said it before, but the support you all show is so wonderful!
I feel a strong sense of responsibility to reach out to families going through Early Intervention. It's such an overwhelming and emotional time - especially not knowing what the outcome will be. I hope our story can encourage someone!
And just because I'll take any opportunity to show off my little loves ...
Image Attachment(s):
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| Posted 10/30/10 1:32 PM |
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Peainapod
Peanuts are here!
Member since 1/09 13591 total posts
Name:
Diana
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Re: Cole's Sensory Processing Disorder journey ...
this is very interesting stuff.
i recently found out my father's cousin's middle son is on the low end of the autism spectrum. he's 2 1/2 and non verbal. My father's brother's kid who is now in college was diagnosed as having Asperger's. We've been estranged from them for years, so i have no idea at what point in his schooling he was diagnosed. He's brilliant with math, science, etc. but has always been a little off.
Im a little afraid now that all these things are popping up on my fathers side, with the boys.
but this is a great read! thanks for sharing!
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| Posted 10/30/10 1:35 PM |
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Little-J-Mommy
I'm a Big Brother
Member since 5/06 8041 total posts
Name:
D
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Re: Cole's Sensory Processing Disorder journey ...
Thanks for sharing Lea
Would you mind sharing your sensory diet?
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| Posted 10/30/10 2:29 PM |
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annienyc
LIF Adult
Member since 10/06 1347 total posts
Name:
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Re: Cole's Sensory Processing Disorder journey ...
Thank you for sharing your story and your experiences with the world!! You are a wonderful, dedicated mother and your son is blessed to have you!!
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| Posted 10/30/10 2:37 PM |
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Goldi0218
My miracles!
Member since 12/05 23902 total posts
Name:
Leslie
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Re: Cole's Sensory Processing Disorder journey ...
Amazing story. Thanks for sharing with us. As a special educator, its a pleasure to see parents so active in their child's care.
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| Posted 10/30/10 2:48 PM |
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Charly
LOVE!
Member since 5/05 12578 total posts
Name:
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Re: Cole's Sensory Processing Disorder journey ...
Thank you so much for sharing your story!!! It's so wonderful to hear the progress he has made.
Message edited 10/30/2010 11:03:14 PM.
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| Posted 10/30/10 3:05 PM |
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InShock
life is good
Member since 10/06 9258 total posts
Name:
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Re: Cole's Sensory Processing Disorder journey ...
You and your son are such an inspiration.
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| Posted 10/30/10 4:15 PM |
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maybebaby
LIF Adult
Member since 11/05 6870 total posts
Name:
Maureen
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Re: Cole's Sensory Processing Disorder journey ...
The emotions you express throughout your journey really hit home for me. We've talked before, and you were a tremendous help and comfort to me while I was going through my journey w/Johnny.
Sounds as if he is doing wonderfully. I am so happy for you all.
They are GORGEOUS by the way. You make beautiful little boys!! Thanks so much for sharing...
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| Posted 10/30/10 4:39 PM |
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Mommy2Boys
My Boys!!!!
Member since 6/06 14437 total posts
Name:
C
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Re: Cole's Sensory Processing Disorder journey ...
Thank you so much for sharing your story!!! Cole has come such a long way and so much of that is attributed to you and how strong you are and the advocate you have been for him.
Your boys are beautiful!!! So happy to read a wonderful update.
Just curious, if you don't mind sharing, does your second son have any sensory issues?
Message edited 10/30/2010 8:54:43 PM.
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| Posted 10/30/10 8:53 PM |
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Sandra
LIF Adult
Member since 5/05 1185 total posts
Name:
Sandra
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Re: Cole's Sensory Processing Disorder journey ...
Hi,
Lea, Thank you for sharing....the story really moved me and I never knew....
You're a great mom !
xo
Sandra
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| Posted 10/30/10 9:35 PM |
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lbelle821
Arghhhhh
Member since 2/06 5285 total posts
Name:
Lisa
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Re: Cole's Sensory Processing Disorder journey ...
Thank you for sharing Lea!!!! Great story and he is so incredible (and so are you)
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| Posted 10/30/10 9:55 PM |
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dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
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Re: Cole's Sensory Processing Disorder journey ...
Thanks for sharing!
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| Posted 10/31/10 9:44 AM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: Cole's Sensory Processing Disorder journey ...
Posted by Little-J-Mommy
Thanks for sharing Lea
Would you mind sharing your sensory diet?
Sure! Cole's sensory diet has become second nature and gets incorporated into his everyday play. A typical day is like this:
Wake up, eat breakfast - breakfast always starts with crunchy foods - usually cereal without milk. I put it in a cup and let him walk around with it - he'll play or watch some tv. Then I make him a smoothie. Usually banana, orange juice, a handful of spinach and a bunch of supplements (omega 3s, DHA, probiotics and a spectrum formula) He drinks it out of a sippy cup with a small valve so its a lot of oral motor work.
Then we brush teeth with an electric toothbrush. We also "brush" (use the vibration) his outer jawline and near his ears.
Before he gets dressed we do a brushing/compression protocol and I do some massage with a scented lotion on his hands and feet.
We have a trampoline and a ball pit always set up in our living room, so if he's too hyper he goes to play in there.
About 10 minutes before getting in the car I put his backpack on (its pretty heavy already, if it werent I'd add a heavy book) and we sing a song or just march around and fill out his sticker reward chart for following his morning routine.
At school he's the helper and does heavy work by setting up the chairs around the table.
At lunch he gets more crunchy snacks with his regular meal and again is the helper and gets some more heavy work in. If he's too anxious his teacher will give him some playdough right before eating.
After school there's some sort of outside activity - he LOVES his scooter.
Dinner is the only meal at home that I really require him to sit at the table for - but sometimes we'll pull his small table and charis into the kitchen and let him sit there. We use really heavy silverware. If he's especially picky eating, I'll give him a yogurt to drink through a straw first.
After dinner is a bath - we use lavendar epsom salts and he plays with shaving cream in the bath. More massage and brushing/ compression when he gets out.
We read in his bed under a weighted blanket, talk about our day, and then I sing "the quiet song" which is a progressive relaxation routine.
Whew - it sounds like a lot when you write it out, but its really not -- it's just modifying the things you'd be doing everyday anyway. The thing is, IT WORKS. I mean, instantly, really, truly works. I can start a whole other post about how we do homework in a sensory friendly way - but not enough time now.
Please please please feel free to ask me any questions you may have. Another mother took the time to educate me and I would love nothing more than to do the same.
Message edited 11/8/2010 11:35:37 AM.
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| Posted 10/31/10 11:58 AM |
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sweetie101
you make me smile :o)
Member since 5/08 4419 total posts
Name:
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Re: Cole's Sensory Processing Disorder journey ...
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| Posted 10/31/10 12:03 PM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: Cole's Sensory Processing Disorder journey ...
THANks Lea for sharing your story. Those boys are so lucky to have such a wonderful mom. We have aslo incorporated a Sensory Diet his OT came up with, and it has made a HUGE difference.
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| Posted 10/31/10 12:07 PM |
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Janice
Sweet Jessie Quinn
Member since 5/05 27567 total posts
Name:
Janice
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Re: ***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
wow lea!!
look at you!
I am always so impressed when a mom becomes an expert in a new field she was thrown into. I feel like it is the best way for other moms to learn.
your post helped so many today, i am sure of it.
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| Posted 10/31/10 2:54 PM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: ***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
Posted by jellybean1420
Thank you so much for sharing your story!!! Cole has come such a long way and so much of that is attributed to you and how strong you are and the advocate you have been for him.
Your boys are beautiful!!! So happy to read a wonderful update.
Just curious, if you don't mind sharing, does your second son have any sensory issues?
Brady doesn't have any sensory issues - but we believe that all children learn best in a multisensory environment so he participates in the sensory diet as well. :)
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| Posted 11/1/10 10:00 AM |
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pugmama
April already?
Member since 3/06 5297 total posts
Name:
Erica
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Re: ***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
thanks for sharing~!
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| Posted 11/1/10 2:06 PM |
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colesmom
Brady's mom too!
Member since 5/05 1989 total posts
Name:
Lea
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Re: ***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
Bump for CJIK
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| Posted 11/8/10 10:53 AM |
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lullabella
LIF Adult
Member since 5/05 2246 total posts
Name:
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Re: ***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
Posted by colesmom
Thanks girls! I've said it before, but the support you all show is so wonderful!
I feel a strong sense of responsibility to reach out to families going through Early Intervention. It's such an overwhelming and emotional time - especially not knowing what the outcome will be. I hope our story can encourage someone!
And just because I'll take any opportunity to show off my little loves ...
They are ABSOLUTELY ADORABLE!
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| Posted 11/8/10 11:07 AM |
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Metsmomma
Happy Winter!
Member since 1/09 5351 total posts
Name:
Renee
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Re: ***Updated with Sensory Diet ***Cole's Sensory Processing Disorder journey ...
You are an amazing mom!!! My son has PDD as well.
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| Posted 11/8/10 11:31 AM |
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