Thoughts, Suggestions, Advice and/or comfort welcome 5/12 update

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DebG
Pick a cause & stand up for it

Member since 5/05

18602 total posts

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The cure IS worse!

Thoughts, Suggestions, Advice and/or comfort welcome 5/12 update

So, since the frist week of Feb I have been having a very odd thing happening to me. I have talked to multiple doctors about it and no one seems to know what it is and no one seems to have ever heard of anything like it before. I thought I would turn to my ladies here, you guys know everything!

I have this pressure that is behind my eye, it hurts almost all the time. It reallyl stinks and it effects my job! Chat Icon
Anyway, at the most random times it seems to pressure a nerve which causes the left side of my face to throb and go numb. The area affected is to the side of my nose, my check, my lip, my gum and the roof of my mouth. Only the left though.
The only way I can describe to others how it feels is to ask anyone who has ever gotten any kind of major dental work done to remember the feeling when the novacain started to go away so your mouth is still numb but you can feel the throbbing pain of the work.
Chat Icon This happens during work and during the night when I am trying to sleep. When it happens it usually lasts for about 40 minutes and sometimes happens multiple times in a row. For instance last night I was sleeping, woke up at about 130 with the pain and was up with it until a little after 2a. I fell asleep again and was up at 2:45 until 330...fell asleep and was up again at 515 Chat Icon it stinks! I can't figure out how to make it stop and I can't take anything for it.

Has anyone EVER heard of anything like this?

Update 3/27/2006
Went to the neuro opthamologist today and didn't receive many answers. He let me know the pain MIGHT be because of dry eye syndrome so he put a clog in the hole in my eyelid where your tears drain from. Now I wait for a referral to go and visit an ENT doctor.
I hate still not having answers and knowing I still will live in such pain and discomfort. Chat Icon

5/11 Update
FINALLY! I have FINALLY been diagnosed with something. Man it feels good to have a doctor finally believe you and to know that I am NOT crazy (ok ok, it took Darren calling the doctors office and demanding some stuff, but they finally looked at the x-ray and got back to me). Anyway it seems I have some polyps/cysts that are lining the left side of my face and THAT is what is causing all these problems.
I have to go in tomorrow and see what we can do about all of it. Its just nice to know that this is not all in my head!

5/12 update
I went in today and they put a scope upmy nose to check some stuff out. Gave me some new pills to take as well as a steriod spray. I go back in two weeks to see if its working. I REALLLLLY hope it does.
Thank you to everyone who has offered support and/or advice about this over the past few months, I really do appreciate it.

Message edited 5/12/2006 8:29:35 PM.

Posted 3/22/06 11:14 AM