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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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PET scan
I originally posted in my GERD thread, but it's since morphed to something else. I assume GERD is just a side effect of something bigger happening. I'm having a PET scan tomorrow, along with various other appointments with lung specialists. I'm glad they're not doing a biopsy on just the mass since the PET scan will look at other areas around the chest.
I'm really hoping they figure it out because symptoms seem to change every few days. Some days I feel fine, and others I feel rotten and I'm swimmy headed. The discomfort in my chest comes and goes - I can go days without issues and then one night I'll have a lot of discomfort. Saturday was the first day that I was winded just by cleaning up the playroom. I'm telling myself that the mass has just grown b/c of hormones related to perimenopause and it'll be easy peasy to remove. Send good thoughts that it's not something really bad.
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Posted 8/31/20 4:50 PM  |
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PhyllisNJoe
My Box Is Broken
Member since 6/11 9145 total posts
Name:
Phyllis
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Re: PET scan
Oh my!
I’m kinda surprised they are sending you for a PET scan without other testing pointing to needing it.
I’ll keep you in my thoughts 
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| Posted 8/31/20 9:04 PM |
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M514
Hi
Member since 8/10 6011 total posts
Name:
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PET scan
Will be thinking of you!
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| Posted 9/1/20 8:15 AM |
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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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PET scan
Well - it’s not good. The PET scan showed that the thymoma has a very high likelihood that it’s cancer. :( They’ll schedule me soon for a biopsy to verify. I’m so scared - I don’t even know how to process it.
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| Posted 9/1/20 4:39 PM |
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M514
Hi
Member since 8/10 6011 total posts
Name:
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PET scan
Omg I am so sorry! My thoughts are with you and I hope you get definitive answers soon.
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| Posted 9/1/20 7:07 PM |
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PhyllisNJoe
My Box Is Broken
Member since 6/11 9145 total posts
Name:
Phyllis
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Re: PET scan
Posted by Funkybutt
Well - it’s not good. The PET scan showed that the thymoma has a very high likelihood that it’s cancer. :( They’ll schedule me soon for a biopsy to verify. I’m so scared - I don’t even know how to process it.
I am so sorry. You are in my thoughts. If you need to get stuff off your mind at any time, we are here.
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| Posted 9/1/20 9:37 PM |
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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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Re: PET scan
Posted by PhyllisNJoe
I am so sorry. You are in my thoughts. If you need to get stuff off your mind at any time, we are here.
Thanks! This is really weird. It's hard to process while still going on with regular life.
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| Posted 9/2/20 11:01 AM |
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StaceyWill
It's a girl!!!
Member since 6/10 21539 total posts
Name:
Stacey
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PET scan
I'm so sorry to hear this. Many, many prayers and hugs.
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| Posted 9/2/20 5:36 PM |
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BAK217
LIF Infant
Member since 8/14 328 total posts
Name:
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Re: PET scan
Praying for you and the best possible outcome.
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| Posted 9/3/20 4:47 PM |
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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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PET scan
Got preliminary update from the biopsy - it’s not a thymoma, it’s actually non-Hodgkin’s lymphoma. Seems like it hasn’t spread past the thymus gland but I’ll have to start chemo soon. Will be meeting with the oncologist next week to find out the full plan.
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| Posted 9/22/20 4:18 PM |
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brooke23
LIF Toddler
Member since 3/11 482 total posts
Name:
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PET scan
I'm so sorry to hear this, hearing cancer is devestating -- and I'm wishing you the best. Chemo, though scary, wasnt as bad as I thought it would be -- not everybody is the same, so I cant say of course how you'll react, but know that it is possible to get through it relatively unscathed....I'm not sure where you are located or where you are planning on being seen, but I had chemo at Monter Cancer center (northwell) and was very happy there. The facility is great, everything is integrated so all my drs see it all and my oncologist is great (he sees breast cancer patients maybe only? -- he did his fellowship at MSK and trained well etc.....I think many of them are) -- and the other staff members could not have been nicer --
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| Posted 9/22/20 4:48 PM |
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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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PET scan
Thanks! My dad had a lymphoma in his neck and he said the chemo wasn’t so bad for him. The radiation is what was more difficult.
I’ll be going to Duke Hospital. They have an awesome cancer center so I know I’m in good hands.
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| Posted 9/22/20 5:41 PM |
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mrsdukes
LIF Adult
Member since 1/09 943 total posts
Name:
Liz
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PET scan
Sending you prayers and good wishes for a complete recovery. I hope the treatment is not too bad for you. You are in the very best of hands at Duke.
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| Posted 9/30/20 9:54 PM |
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PhyllisNJoe
My Box Is Broken
Member since 6/11 9145 total posts
Name:
Phyllis
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Re: PET scan
just thinking of you. Hope you’re doing as well as you can.
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| Posted 10/1/20 6:44 AM |
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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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PET scan
Thanks! I finally talked to the oncologist yesterday and treatment is going to be brutal. 5 days in the hospital overnight to get constant chemo, then 2 weeks home. Then 5 days in the hospital, etc - for a total of 6 times in the hospital. Apparently it’s common for my type of lymphoma and it usually responds really well.
Thankfully my ex and I are amicable so he’s willing to do whatever is needed to cover my time with our son if I’m not feeling well.
On the plus side, I don’t have to cook meals for those 5 days. :D
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| Posted 10/1/20 8:00 AM |
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Funkybutt
LIF Adult
Member since 4/15 3049 total posts
Name:
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PET scan
Oh and the other good thing is that there won’t be any surgery or radiation.
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| Posted 10/1/20 8:00 AM |
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LuckyStar
LIF Adult
Member since 7/14 7274 total posts
Name:
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PET scan
Duke is fantastic. I'm sorry to hear about your diagnosis, but you are right- outcomes for non-hodgkin lymphoma are excellent. Best of luck to you!
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| Posted 10/1/20 9:20 AM |
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