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Sassyz75
Turning a new page
Member since 5/05 9731 total posts
Name:
Dina
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Cystic Fibrosis
Because of the whole baby dylan thing (my cousin) having CF- I am going to get testing tomorrow.
In order to have a child with CF, both parents need to be carriers.. so even if I turn out to be a carrier, DH would need to be one too.
I want to do this b/f we get PG....
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Posted 6/2/05 2:08 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
Elbee
Zanzibar
Member since 5/05 10767 total posts
Name:
Me
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Re: Cystic Fibrosis
My friend and his wife found out the hard way that they were both carriers of the genes.
I'll say a prayer for you
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| Posted 6/2/05 2:12 PM |
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MrsJ
I love my Katie Bug
Member since 5/05 11357 total posts
Name:
Kathy
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Re: Cystic Fibrosis
I'm sorry you have to go through this. I hope you are both not carriers
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| Posted 6/2/05 2:14 PM |
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Crazeddiva
LIF Adolescent
Member since 5/05 588 total posts
Name:
Maddy
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Re: Cystic Fibrosis
Good Luck on your test. I hope it all works out.
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| Posted 6/2/05 2:17 PM |
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FeliciaDP
♥
Member since 5/05 18599 total posts
Name:
Mommy
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Re: Cystic Fibrosis
Good luck on your tests, Dina .. hoping that it all works out for you!!
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| Posted 6/2/05 2:19 PM |
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DebG
Pick a cause & stand up for it
Member since 5/05 18602 total posts
Name:
The cure IS worse!
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Re: Cystic Fibrosis
Best of luck on your tests.
Hope all turns out well.
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| Posted 6/2/05 2:27 PM |
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Sassyz75
Turning a new page
Member since 5/05 9731 total posts
Name:
Dina
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Re: Cystic Fibrosis
Thanks everyone...
I'm not freaking out about it...
yet...
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| Posted 6/2/05 3:59 PM |
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Ambersmom
Straight up nasty
Member since 5/05 7740 total posts
Name:
Sharon
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Re: Cystic Fibrosis
My prayers are with you...
Actually, it's very, very common to have one parent be a carrier for C/F. When I came back a carrier, it was like the floor fell out from beneath me.
We went to a genetic consultant who ran tests. Bob was cleared but they told us there is still like 1 in 1,000 chance if one is a carrier, that the baby can have C/F. I didn't opt for an amnio. C/F or not, I was having her. Let me tell you, I'm still freaked when I hear her cough or fake cough (she does that like clearing her throat thing for attention) like maybe she does have it. But thankfully she's fine..
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| Posted 6/2/05 5:06 PM |
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CaseyGirl
Mommy to 3 Boys :)
Member since 5/05 19978 total posts
Name:
Jen - counting my blessings...
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Re: Cystic Fibrosis
good luck dina
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| Posted 6/2/05 6:51 PM |
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Sassyz75
Turning a new page
Member since 5/05 9731 total posts
Name:
Dina
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Re: Cystic Fibrosis
Posted by ambersmom
My prayers are with you...
Actually, it's very, very common to have one parent be a carrier for C/F. When I came back a carrier, it was like the floor fell out from beneath me.
We went to a genetic consultant who ran tests. Bob was cleared but they told us there is still like 1 in 1,000 chance if one is a carrier, that the baby can have C/F. I didn't opt for an amnio. C/F or not, I was having her. Let me tell you, I'm still freaked when I hear her cough or fake cough (she does that like clearing her throat thing for attention) like maybe she does have it. But thankfully she's fine..
Thank you.
I know it is sort of rare that we are BOTH carriers... but I decided we had to get tested- b/c if, as you said, the baby started coughing or had mucus we'd go bananas.. that is exactly what happened with my cousin & it took them 4 months to figure out it was CF.
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| Posted 6/3/05 9:38 AM |
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betty
My boys
Member since 5/05 4380 total posts
Name:
Beth
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Re: Cystic Fibrosis
I think it's a good idea for you to be tested. It's no big deal, simple blood test. I know my doctor tested at the very beginning of my pregnancy, I don't know why all doctors don't test for this. My brother and SIL just had a scare b.c she tested positive but luckily my brother tested neg.
Good Luck!
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| Posted 6/3/05 12:08 PM |
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Sassyz75
Turning a new page
Member since 5/05 9731 total posts
Name:
Dina
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Re: Cystic Fibrosis
I don't know why either.
Unfortunately, they don't test the baby unless the mom is 35+.. which makes no sense to me.
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| Posted 6/3/05 12:36 PM |
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