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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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anyone have menieres disease?
if so would love to hear from you here or fm about your experiences. its soo coming and going with me for years and when it hits not only is it scary but i feel so alone. tia!
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Posted 3/25/12 9:08 PM  |
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Ian&EmmesMommy23
My family is complete!
Member since 11/08 12970 total posts
Name:
Diana
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Re: anyone have menieres disease?
my sister has this. the worst part is she is deaf in her left ear and has menieres in her right! so if she eats too much salt she's practically deaf. she had to limit salt from her diet and has been good.
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| Posted 3/26/12 12:09 PM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: anyone have menieres disease?
Posted by IansMommy23
my sister has this. the worst part is she is deaf in her left ear and has menieres in her right! so if she eats too much salt she's practically deaf. she had to limit salt from her diet and has been good.
usually my hearing is excellent then i go deaf for a few seconds here and there. the worst for me is the vertigo and dizziness!! gah!
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| Posted 3/26/12 1:40 PM |
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Mushesgirl
Too blessed to be stressed
Member since 4/09 6691 total posts
Name:
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Re: anyone have menieres disease?
Not sure if youve ever had treatment for it but NYU has one of the top vestibular PT clinics in the country (I was a student there, learned a lot).
Feel better!
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| Posted 3/26/12 9:30 PM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: anyone have menieres disease?
i cant afford to go into the city for pt time or moneywise but thank you !
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| Posted 3/26/12 9:43 PM |
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Re: anyone have menieres disease?
I have it. I've been really sick since November. (after having pneumonia) This winter has been the worst one ever for me. I've actually been dizzy for 5 months with only a few good days. The first time was 2 months, the last time 3. I can't wait to feel better. I take anti-vert twice a day, it helps a little. They also gave me water pills which I haven't tried yet.
Do you take anything?
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| Posted 3/27/12 11:12 AM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: anyone have menieres disease?
right now i cant bc i am preg and hopefully when i give birth i can see the ent again.
i get these spells where its almost like i am going to faint bc i turn my head and the rooms swims and i get soo scared! and each time i really think something is wrong...adn when its done i go duuuuh menieres!!!
i used to be able to take sudafed but even that wasnt helping anymore ....sorry ou ahve had such a rough winter!!!
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| Posted 3/27/12 5:36 PM |
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Mushesgirl
Too blessed to be stressed
Member since 4/09 6691 total posts
Name:
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Re: anyone have menieres disease?
I know of some former NYU PTs now working on LI i could try and find out where they're working if it would help you.
Has your dr recommended PT for this in the past or only given meds?
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| Posted 3/27/12 8:44 PM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: anyone have menieres disease?
Posted by Mushesgirl
I know of some former NYU PTs now working on LI i could try and find out where they're working if it would help you.
Has your dr recommended PT for this in the past or only given meds?[/QUOTE i did pt a few years ago but couldnt afford to go 2 times a week with copays...but i did it for a few months.
i never did much meds besides antivert or sudafed and was iffy.
my big concern now is ...i cant do pt bc i will have a newborn.....and dont have someone to watch the baby kwim?
one of my docs mentioned maybe a tube in my left ear?
not really sure. all i know is when i get bouts...i try to trouble shoot ie...salt stress...cant find a ryme or reason.
i would love to hear of anyone on long island to put in my aresenal . my current ent is goldofsky in greatneck but only seen him once.
ty for helping!!!
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| Posted 3/27/12 8:58 PM |
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Ian&EmmesMommy23
My family is complete!
Member since 11/08 12970 total posts
Name:
Diana
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Re: anyone have menieres disease?
i always recommend Dr. Warren Zelman in Garden City. he really is a wonderful doctor.
ETA...he did my ear surgery in 2004. I was deaf in my left ear from lots of ear infections as a kid. i went to him for a sinus infection and when he looked in my ear he said he could fix me...and he did! now i have 100% hearing in that ear. He's a genius!
Message edited 3/28/2012 8:57:19 AM.
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| Posted 3/28/12 8:56 AM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: anyone have menieres disease?
Posted by IansMommy23
i always recommend Dr. Warren Zelman in Garden City. he really is a wonderful doctor.
ETA...he did my ear surgery in 2004. I was deaf in my left ear from lots of ear infections as a kid. i went to him for a sinus infection and when he looked in my ear he said he could fix me...and he did! now i have 100% hearing in that ear. He's a genius!
he hated me!!! he told me just to stay away from salt and "there is nothing you can do about it anyways"
but i know alot of people who had to have surgery loved him!!!
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| Posted 3/28/12 4:57 PM |
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Re: anyone have menieres disease?
I would recommend Dr. Schessel at Stony Brook Surgical ENT. He's the chief ENT at SB and is amazing!! I absolutely adored him when I saw him a few months ago and it has gotten better, btu I do watch my salt intake somewhat.
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| Posted 3/29/12 4:24 PM |
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prunepie
LIF Adult
Member since 7/06 4357 total posts
Name:
jennifer
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Re: anyone have menieres disease?
Posted by WannaBMom2013
I would recommend Dr. Schessel at Stony Brook Surgical ENT. He's the chief ENT at SB and is amazing!! I absolutely adored him when I saw him a few months ago and it has gotten better, btu I do watch my salt intake somewhat.
thanks...how did he help? meds?
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| Posted 3/29/12 9:21 PM |
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Re: anyone have menieres disease?
not meds although he did give me a drop for my ears as they were always itching. He gave me some diet tips and sent me for extensive tests---mri and I had to go to a neuroopthamologist. I have a friend with severe Meniere's and he recommended him. he's the chief of the ENT dept at SB.
It's stony brook surgical 631-455-4545 he was just so awesome to talk to and he really spent time with me..i think my first appointment he spent an hour with me and did an extensive medical history/evaluation.
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| Posted 4/15/12 3:06 PM |
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aim
LIF Adult
Member since 4/11 1321 total posts
Name:
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Re: anyone have menieres disease?
I have nerve hearing loss, hyperacusis and tinnitus. No dizziness or vertigo. However, thought menieres could be something I am dealing with. I am headed to a neurotologist soon. The pain, ear pressure and inability to hear is horrible.
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| Posted 4/16/12 3:11 PM |
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