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maybebaby
LIF Adult
Member since 11/05 6870 total posts
Name:
Maureen
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A family friends baby is very sick...
Listening to her talk about her son put a LOT in perspective.
She has 3 boys. The first two were colicky and had pretty bad reflux.
Throughout her third pregnancy, she prayed that this baby would be spared the colic the first two had and she joked about just wishing she had a child who would sleep through the night.
Well...her third son was born a few months ago, and was diagnosed with cystic fibrois. Both her and her husband are carriers (I believe they were unaware).
She told my mom at a benefit the other night for her son, that she feels tremendous guilt over wishing for a good sleeper as opposed to good health. My mom told her is she normal and it's a natural thing to wish for..who could have known this would happen? A baby with colic is not an easy thing, I don't blame her one bit.
He is a beautiful and wonderful child and they feel blessed to have him. They are taking every measure to keep him as healthy as possible but they have a VERY long road ahead for him...
Please keep our friend and their baby boy in your thoughts and prayers. It can't hurt!
This also serves as a reminder to those who like myself get very discouraged that their child can be a maniac and not the easy baby some others have....I feel extremely grateful he is healthy, that's all we can hope for!
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Posted 10/18/07 3:20 PM  |
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Long Island Weddings
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cgdg61606
Little Brother Christopher
Member since 2/07 6815 total posts
Name:
Christine
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Re: A family friends baby is very sick...
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| Posted 10/18/07 3:22 PM |
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Marcie
Complete Happiness :)
Member since 5/05 27789 total posts
Name:
LOVE being a Mommy!
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Re: A family friends baby is very sick...
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| Posted 10/18/07 3:22 PM |
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MelToddJulia
Love my Family!
Member since 7/05 29064 total posts
Name:
Mel
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Re: A family friends baby is very sick...
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| Posted 10/18/07 3:23 PM |
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DJJ914
LIF Adolescent
Member since 9/07 715 total posts
Name:
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Re: A family friends baby is very sick...
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| Posted 10/18/07 3:24 PM |
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LuvMyBoys
LIF Adult
Member since 4/07 927 total posts
Name:
MOMMY
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Re: A family friends baby is very sick...
I will keep them in my thoughts & prayers.
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| Posted 10/18/07 3:25 PM |
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jellybean78
:)
Member since 8/06 13103 total posts
Name:
Mommy
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Re: A family friends baby is very sick...
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| Posted 10/18/07 3:27 PM |
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ana6178
Praying for a miracle!
Member since 5/05 1536 total posts
Name:
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Re: A family friends baby is very sick...
they have made tremendous adavances in treating this horrible disease.
There is a pediatric specialy center on Deer park avenue in Babylon- it's supposed to be Excellent.
God bless this little one!
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| Posted 10/18/07 3:27 PM |
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maybebaby
LIF Adult
Member since 11/05 6870 total posts
Name:
Maureen
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Re: A family friends baby is very sick...
Posted by ana6178
they have made tremendous adavances in treating this horrible disease.
There is a pediatric specialy center on Deer park avenue in Babylon- it's supposed to be Excellent.
God bless this little one!
They told my mom the current life expectancy can be as high as 40. It used to be around 20 I believe.
They really can do a lot for it, but I was sick over thinking about what they all will go through...
Thank you everyone for your prayers!!!
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| Posted 10/18/07 3:28 PM |
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Colie
LIF Adolescent
Member since 7/07 507 total posts
Name:
Colie
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Re: A family friends baby is very sick...
They can do alot for people with Cystic Fibrosis now. An ex boyfriend of mine has it....... he is fine and he is 40 yrs old. People were given short life expectancies but now with new medications and more awareness... people are living alot longer.
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| Posted 10/18/07 4:26 PM |
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Briannasmommy
Love her so much <3
Member since 5/05 15567 total posts
Name:
Christina
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Re: A family friends baby is very sick...
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| Posted 10/18/07 4:29 PM |
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CkGm
They get so big, so fast :(
Member since 5/05 13848 total posts
Name:
Christine
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Re: A family friends baby is very sick...
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| Posted 10/18/07 4:36 PM |
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Claud
LIF Adolescent
Member since 6/05 759 total posts
Name:
Claudine
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Re: A family friends baby is very sick...
Ugh, so sad.  I think it IS normal and I can kind of understand this type of guilt.
My daughter had been a difficult infant, and there were plenty of times when I "wished" she was a different, easier type of baby. And when she was 18 months old, we had her tested for a battery of degenerative muscular diseases like Muscular Dystrophy, etc. and it was TERRIFYING to say the least and I felt so guilty. Total reality check.
So now when my beautiful, healthy daughter has a typical toddler "moment," I just let her be and thank God that she is who she is.
HUGS and PRAYERS for your friends.
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| Posted 10/18/07 4:38 PM |
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Tah-wee-ZAH
Kisses
Member since 5/05 15952 total posts
Name:
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Re: A family friends baby is very sick...
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| Posted 10/18/07 4:38 PM |
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Re: A family friends baby is very sick...
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| Posted 10/18/07 4:41 PM |
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2BEANS
wow time is going fast.
Member since 9/07 16106 total posts
Name:
Tina
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Re: A family friends baby is very sick...
My heart goes out to your friend and family..
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| Posted 10/18/07 4:50 PM |
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juanvi
Get Out!
Member since 10/06 4463 total posts
Name:
Christina
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Re: A family friends baby is very sick...
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| Posted 10/18/07 5:20 PM |
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jmf423
:)
Member since 5/05 6372 total posts
Name:
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Re: A family friends baby is very sick...
My heart goes out to them......I can only imagine what they are going through.
My very good friend has CF and she had a lung transplant almost 1 year ago and next month she will be turning 30!!!! The advances in medicine have been tremendous and they say now that most children born with CF will never advance to the stage of needing a transplant....lets pray that is true!!
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| Posted 10/18/07 5:38 PM |
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sunny
Life is good!
Member since 5/05 8369 total posts
Name:
Stephanie
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Re: A family friends baby is very sick...
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| Posted 10/18/07 5:40 PM |
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Tracey
***********
Member since 5/05 6297 total posts
Name:
Tracey - brideinapril
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Re: A family friends baby is very sick...
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| Posted 10/18/07 5:47 PM |
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V-S03
LIF Infant
Member since 7/06 334 total posts
Name:
Stephanie
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Re: A family friends baby is very sick...
Send her lots of
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| Posted 10/18/07 6:25 PM |
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sometimesmommy
Always in my heart.....
Member since 11/06 6686 total posts
Name:
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Re: A family friends baby is very sick...
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| Posted 10/18/07 6:58 PM |
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IrishTracy
Believe!!
Member since 5/05 15167 total posts
Name:
Tracy
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Re: A family friends baby is very sick...
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| Posted 10/18/07 7:01 PM |
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nymommy2be
I love the summer
Member since 1/06 2063 total posts
Name:
Kara
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Re: A family friends baby is very sick...
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| Posted 10/18/07 7:07 PM |
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Moehick
Ready for the sun!
Member since 5/05 30339 total posts
Name:
Properly perfect™
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Re: A family friends baby is very sick...
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| Posted 10/18/07 7:08 PM |
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