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maiden
Whoa!
Member since 5/08 1814 total posts
Name:
T
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Blood clotting issues (Protein S deficiency, etc)
Has anyone had any issues with blood clots? Apparently I have a disorder, not sure if it is brought on by pregnancy or just something i have, and it looks like i may be predisposed to blood clots. i did have a blood clot (or some type of blockage) a few years ago and almost lost my vision in my left eye. However, doctors did not find any reason why i would have a blood clot. Now, i have some issues with my protein s level, which relates to blood clots. I will see a perinatologist in a few days.
Anyone have any issues like this or similar?
TIA
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Posted 11/9/08 9:18 PM  |
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randella
Love my little man
Member since 8/05 16290 total posts
Name:
Randi
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Re: Blood clotting issues (Protein S deficiency, etc)
When I had a TON of bloodwork done at the RE, my Protein S came up low. HOWEVER, your Protein S drops when you are pregnant, and I had bloodwork done the day after I O'd, and I was already PG (didn't know yet). Even though I was barely pregnant, it should not have really affected the results.
I just take a baby aspirin every day per my OB-- but a hematologist told me that I didn't need to because it was borderline, etc.
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| Posted 11/9/08 9:24 PM |
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maiden
Whoa!
Member since 5/08 1814 total posts
Name:
T
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by randella
When I had a TON of bloodwork done at the RE, my Protein S came up low. HOWEVER, your Protein S drops when you are pregnant, and I had bloodwork done the day after I O'd, and I was already PG (didn't know yet). Even though I was barely pregnant, it should not have really affected the results.
I just take a baby aspirin every day per my OB-- but a hematologist told me that I didn't need to because it was borderline, etc.
Do you remember what your levels were? I really would hate to take meds during the pregnancy. I took baby asprin before i was pregnant, but stopped b/c it made me sick.
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| Posted 11/9/08 9:27 PM |
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jmf423
:)
Member since 5/05 6372 total posts
Name:
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Re: Blood clotting issues (Protein S deficiency, etc)
I have a protein s deficiency, but a mild one. I saw a hematologist and high risk OB before I was pregnant and they put me on aspirin and monitored my while I was pregnant. Luckily, I never needed anything more than the aspirin.
My SIL has a different clotting issue and had to take lovenox shots while she was pregnant.
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| Posted 11/9/08 9:28 PM |
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randella
Love my little man
Member since 8/05 16290 total posts
Name:
Randi
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by maiden
Posted by randella
When I had a TON of bloodwork done at the RE, my Protein S came up low. HOWEVER, your Protein S drops when you are pregnant, and I had bloodwork done the day after I O'd, and I was already PG (didn't know yet). Even though I was barely pregnant, it should not have really affected the results.
I just take a baby aspirin every day per my OB-- but a hematologist told me that I didn't need to because it was borderline, etc.
Do you remember what your levels were? I really would hate to take meds during the pregnancy. I took baby asprin before i was pregnant, but stopped b/c it made me sick.
I believe it was 52-- borderline.
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| Posted 11/9/08 9:41 PM |
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maiden
Whoa!
Member since 5/08 1814 total posts
Name:
T
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by jmf423
I have a protein s deficiency, but a mild one. I saw a hematologist and high risk OB before I was pregnant and they put me on aspirin and monitored my while I was pregnant. Luckily, I never needed anything more than the aspirin.
My SIL has a different clotting issue and had to take lovenox shots while she was pregnant.
Eek. The dr said i may need shots. do you know your protein s levels? I think mine is 45.
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| Posted 11/9/08 9:45 PM |
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maiden
Whoa!
Member since 5/08 1814 total posts
Name:
T
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by randella
I believe it was 52-- borderline.
Thanks. Glad to hear its not too bad. I think mine is something like 45.
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| Posted 11/9/08 9:46 PM |
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mia818
LIF Adult
Member since 12/07 2197 total posts
Name:
Mia
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Re: Blood clotting issues (Protein S deficiency, etc)
I have a borderline Protein-S defieciency as well. My hematologist has been watching this for 2 years prior to my pregnancy. My OB and hematologist both decided to put me on lovenox a blood thinner. I am supposed to start heparin now and then switch back to lovenox after delivery.
IMO...since you had a blood clot I would feel more confident being on one. The lovenox is no big deal at all, except that you have to get used to injections but that you get over quick.
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| Posted 11/9/08 9:53 PM |
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Diana712
RIP my beloved Brother Richard
Member since 5/07 6710 total posts
Name:
Diana
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Re: Blood clotting issues (Protein S deficiency, etc)
Yes I have the disorder.. I was told it can damage your placenta and cause miscarriages.. I have have 2 prior m/c before being treated.. I am 8 weeks pregnant now and on baby asprin an 2 shots 40ml lovenox per day.. See a specialist and get diagnosed.. Also I plan on remaining on baby asprin for the rest of my life just to be sure..
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| Posted 11/9/08 10:36 PM |
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DNR
LIF Adult
Member since 2/08 909 total posts
Name:
Donna
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by dilb712
Yes I have the disorder.. I was told it can damage your placenta and cause miscarriages.. I have have 2 prior m/c before being treated.. I am 8 weeks pregnant now and on baby asprin an 2 shots 40ml lovenox per day.. See a specialist and get diagnosed.. Also I plan on remaining on baby asprin for the rest of my life just to be sure..
I have the same as above. I am 21 weeks preg. and been giving myself shots 2x per day since 11 weeks. My placentas were damaged but are looking good now!!
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| Posted 11/9/08 11:19 PM |
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CrankyPants
I'm cranky
Member since 7/06 18178 total posts
Name:
Mama Cranky
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Re: Blood clotting issues (Protein S deficiency, etc)
Definitely talk to your doctor. Blood clotting can cause miscarriages if left untreated. I don't want to scare anyone, but definitely talk to your doctor about it. You may require nothing, or aspirin or a blood thinner like Lovenox (no coumadin or plavix during pregnancy). I will always be on Lovenox/heprin when pregnant and baby aspirin when not.
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| Posted 11/10/08 9:40 AM |
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SweetTooth
I'm a tired mommy!
Member since 12/05 20105 total posts
Name:
Lauren
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Re: Blood clotting issues (Protein S deficiency, etc)
I have a protein S deficiency. My hematologist is not convinced I "really" have it, since my bw was done 6 weeks after having a miscarriage, she thinks it might have been still low from the pregnancy. However, she didn't want to take any chances and I am on low-dose lovenox - 40mg/day. I was on baby aspirin till about 8 weeks, and then my RE, OB, and hematologist decided it was a good idea to come off it and just continue with lovenox.
I have had no complications with this pregnancy. I'll be tested again after the babies are born to see where my levels are at.
I don't remember what my specific numbers were.
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| Posted 11/10/08 9:51 AM |
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pinkandblue
Our family is complete, maybe
Member since 9/05 32436 total posts
Name:
Stephanie
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Re: Blood clotting issues (Protein S deficiency, etc)
I was diagnosed with homozygous MTHFR when I was pregnant which basicall means my blood clots too much. I was on Lovenox during my pregnancy and then for 6 weeks after delivery 
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| Posted 11/10/08 9:59 AM |
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maiden
Whoa!
Member since 5/08 1814 total posts
Name:
T
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Re: Blood clotting issues (Protein S deficiency, etc)
Thanks for the replies everyone. I really didn't think anyone was going to reply, so I feel better knowing i am not the only one with this issue.
If anyone has a great OB, high risk dr., or hematologist to recommend, I would appreciate it. So far I am ok with who i have, but I am always looking for good names.
I don't have a hematologist and I may need one. Turns out i have some kind of MTHFR genetic mutation as well. 
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| Posted 11/10/08 6:05 PM |
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DNR
LIF Adult
Member since 2/08 909 total posts
Name:
Donna
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Re: Blood clotting issues (Protein S deficiency, etc)
My high risk perinatalogist is Dr. Kofinas in Garden City. He is excellent!!
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| Posted 11/10/08 6:21 PM |
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SweetTooth
I'm a tired mommy!
Member since 12/05 20105 total posts
Name:
Lauren
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by maiden
Thanks for the replies everyone. I really didn't think anyone was going to reply, so I feel better knowing i am not the only one with this issue.
If anyone has a great OB, high risk dr., or hematologist to recommend, I would appreciate it. So far I am ok with who i have, but I am always looking for good names.
I don't have a hematologist and I may need one. Turns out i have some kind of MTHFR genetic mutation as well.
Where are you located?
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| Posted 11/10/08 7:07 PM |
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randella
Love my little man
Member since 8/05 16290 total posts
Name:
Randi
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Re: Blood clotting issues (Protein S deficiency, etc)
I have one copy of the MTHFR mutation as well-- for which I take additional folic acid. Although, the hemotologist told me that my homocystine levels canceled out the mutation-- so, again not really a big deal.
I have some docs in Manhattan if you are interested-- all at Cornell NY Presbyterian at 68th & York.
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| Posted 11/10/08 7:12 PM |
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maiden
Whoa!
Member since 5/08 1814 total posts
Name:
T
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Re: Blood clotting issues (Protein S deficiency, etc)
I live in nassau, but i am willing to travel for a good doctor. I will take whatever names you have. thanks.
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| Posted 11/11/08 3:07 PM |
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lakadema
LIF Adult
Member since 5/08 1180 total posts
Name:
Danielle
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Re: Blood clotting issues (Protein S deficiency, etc)
I have thrombophyllia which is a type of clotting disorder. I am on lovenox and see Dr. Kofinas in Garden City. He has been wonderful.
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| Posted 11/11/08 3:15 PM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: Blood clotting issues (Protein S deficiency, etc)
Posted by dilb712
Yes I have the disorder.. I was told it can damage your placenta and cause miscarriages.. I have have 2 prior m/c before being treated.. I am 8 weeks pregnant now and on baby asprin an 2 shots 40ml lovenox per day.. See a specialist and get diagnosed.. Also I plan on remaining on baby asprin for the rest of my life just to be sure..
I have MTHFR and was also on this treatment with no ill effects. I recently switched to haparin to prepare for delivery.
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| Posted 11/11/08 4:02 PM |
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