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sperminated
LIF Infant
Member since 7/10 74 total posts
Name:
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Re: Devastated Beyond Belief
i am so sorry!!! no mother should watch their child go through this!!
i pray you find the strength to get through this and that your daughter gets the very BEST medical treatment there is!!
 
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Posted 8/9/10 4:10 PM  |
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Long Island Weddings
Long Island's Largest Bridal Resource |
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Re: Devastated Beyond Belief
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| Posted 8/9/10 4:24 PM |
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EckoRed81504
We are complete <3
Member since 12/07 6299 total posts
Name:
April
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Re: Devastated Beyond Belief
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| Posted 8/9/10 4:28 PM |
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MrsSchwags
Soccer Baseball Lax Mom
Member since 10/05 11240 total posts
Name:
Jennifer
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Re: Devastated Beyond Belief
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| Posted 8/9/10 5:02 PM |
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MissJones
I need a nap!
Member since 5/05 22136 total posts
Name:
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Re: Devastated Beyond Belief
To the OP, my heart goes out to you. Your daughter will most certainly by in my thoughts and prayers.
Once this has sunk in, however, I do suggest that you start beginning therapy that will get her acclimated to her new life. I know a little girl who was diagnosed with something similar and is probably about 80% blind right now. The best thing her parents did for her was get her prepared. She is learning braille now while it is easiest, is learning to use her other senses to get around, etc.
Hopefully your daughter will be lucky. I hope she never loses her vision.
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| Posted 8/9/10 5:34 PM |
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Re: Devastated Beyond Belief
I have no idea how to respond to this post because I don't have any children and I cannot imagine how difficult this must be. I know that I, too, tend to think of the worst possible scenarios and that my DH is similar to yours in that he thinks in the positive. But sometimes that doesn't help because you just want someone to understand what you're feeling and the anxieties you are going through. I have two cats and when one of them got sick shortly before I adopted her, I felt sick to my stomach. And that was my KITTEN. Having a child is obviously not even comparable so I can't even begin to understand how terrified you must feel. I'm sure you must just want to know the results ASAP and are praying for the best. I really do believe in the power of prayer and I will be praying for you. I hope that everyone else who reads your post does the same. Feel free to FM me if you need someone to talk to. I am so sorry you are going through this.
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| Posted 8/9/10 5:41 PM |
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DeniseMarie
<3
Member since 8/07 10682 total posts
Name:
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Re: Devastated Beyond Belief
i am so sorry
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| Posted 8/9/10 6:01 PM |
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Re: Devastated Beyond Belief
I pray for a cure for your DD. I cannot imagine what you are going through right now. 
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| Posted 8/9/10 6:12 PM |
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luvsbob4603
To a healthy 2013
Member since 5/05 21840 total posts
Name:
To a brand new year to a healthier me
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Re: Devastated Beyond Belief
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| Posted 8/9/10 7:54 PM |
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MrsRitaB
Love of my life! <3
Member since 4/10 4669 total posts
Name:
Ri
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Re: Devastated Beyond Belief
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| Posted 8/9/10 8:23 PM |
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BRod-Cheng
I'm going to be a big brother!
Member since 6/07 1860 total posts
Name:
Betty
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Re: Devastated Beyond Belief
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| Posted 8/9/10 9:50 PM |
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Mushesgirl
Too blessed to be stressed
Member since 4/09 6691 total posts
Name:
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Re: Devastated Beyond Belief
First, and to you.
Second: i'm glad that you can come to LIF for support!! I know what it feels like to not want to tell anyone what is going on and to come on here and just get it out. So good for you, I hope you can find some good advice and support here, along with your great dh! And please continue to pursue professional help.
Third: I am not a parent and have no idea what it is you are going through, however, I have lived with anxiety and panic attacks for many years now. I heard this ad on radio from Lucinda Bassett about the cd's she has for anxiety and I got them as a trial to help me. They did. They are very expensive and I ended up returning them (they give a full refund within like 30 days of purchase) but not before I got something out of it by listening. This may be a supplement to your other strategies for support. I am also a 'glass half empty' person and always look at the gloom and doom, dh is the opposite.
Praying for you and your daughter
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| Posted 8/9/10 9:52 PM |
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Reese1106
Family of 4! :o)
Member since 8/06 6655 total posts
Name:
Theresa
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Re: Devastated Beyond Belief
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| Posted 8/9/10 9:59 PM |
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Dani922
Here's to new beginnings
Member since 10/07 7260 total posts
Name:
Danielle
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Re: Devastated Beyond Belief
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| Posted 8/9/10 10:57 PM |
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ChaTTerBoX
LIF Infant
Member since 2/10 245 total posts
Name:
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Re: Devastated Beyond Belief
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| Posted 8/9/10 11:19 PM |
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DRMom
Two in Blue
Member since 5/05 20223 total posts
Name:
Melissa
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Re: Devastated Beyond Belief
I am so sorry. I really hope everything works out for you and your little girl
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| Posted 8/9/10 11:25 PM |
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MrsH2009
Thank you St. Gerard!
Member since 8/09 6631 total posts
Name:
M
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Re: Devastated Beyond Belief
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| Posted 8/9/10 11:33 PM |
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waterspout4
My loves
Member since 5/06 19150 total posts
Name:
Kelly
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Re: Devastated Beyond Belief
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| Posted 8/9/10 11:39 PM |
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baghag
:P
Member since 5/05 10278 total posts
Name:
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Re: Devastated Beyond Belief
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| Posted 8/10/10 8:27 AM |
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KarenG2003
My BIG man and my little man!
Member since 4/08 1684 total posts
Name:
Karen
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Re: Devastated Beyond Belief
I am very sorry that you're dealing with this right now.
I just wanted to respond because there is a strong presence of RP in my family.
My paternal grandmother has it as well as 3 out of 5 of her sons. Luckily my father is one of the 2 sons that did not get RP, but instead he has uvitis.
I just wanted to let you know that a lot of times, RP causes a VERY SLOW loss of sight.
It took my grandmother 80 years to become legally blind. My uncles are nowhere near blind and they are in their 40s and 50s.
I know how terrible it is to hear that your daughter may have RP, but please be encouraged by the fact that many times, RP is a very slow working disease.
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| Posted 8/10/10 8:31 AM |
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headoverheels
s'il vous plaît
Member since 6/07 42079 total posts
Name:
LB
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Re: Devastated Beyond Belief
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| Posted 8/10/10 8:39 AM |
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CaseyGirl
Mommy to 3 Boys :)
Member since 5/05 19978 total posts
Name:
Jen - counting my blessings...
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Re: Devastated Beyond Belief
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| Posted 8/10/10 12:06 PM |
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Diane
Hope is Contagious....catch it
Member since 5/05 30683 total posts
Name:
D
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Re: Devastated Beyond Belief
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| Posted 8/10/10 12:18 PM |
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LINewbie
Tigger the the Rescue!
Member since 8/08 5647 total posts
Name:
LB
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Re: Devastated Beyond Belief
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| Posted 8/10/10 9:29 PM |
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JenniferEver
The Disney Lady
Member since 5/05 18163 total posts
Name:
Jennifer
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Re: Devastated Beyond Belief
I don't even know what to say. I can't imagine the pain and anxiety you are going through. Get every kind of help your family needs (medical, psychological, etc) because there is life beyond this, and a happy one.
I knew someone in college with that condition. He was at a point where he could see ok during the day but was almost completely night blind at that point. He honestly seemed like a well-adjusted normal, brave person facing this. We used to tell him how jelous we were that he gets to wear night vision goggles. (That's college for you), but the point is he was really doing well despite the condition.
I don't mean to minimize it in ANY way, but you've got to have faith that this is not the end of the world. I am so so sorry you are going through this. 
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| Posted 8/11/10 9:20 AM |
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