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RisiLeigh
LIF Infant
Member since 11/08 124 total posts
Name:
Marisa
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Girls, I need prayers/advice *UPDATE*
So, I had a blood test done on Tues morning. My derm requested it b/c he is still trying to get to the bottom of my itchy boob problem LOL! The blood test tested for different things - things that they don't typically test for unless requested.
I went to my derm yesterday and he told me my results are "abnormal." The Thyroid result came back high, so now I have to see an Endocrinologist. And the scarier thing is that the A&A came back positive (A&A is what they test for Lupus)  So NOW I ALSO have to see a Rheumotologist (sp). He DID say that there are tons of false positives out there, which is WHY he wants me to see the Rheumo. And of course I need to see my PCP first to get referrals for all this!!!
It just never ends! I had a breakdown when I got home last night. I am 28, I should not be spending all my time and money on doctors and specialists!!! I have used my entire FSA for the year already and its only the end of March!
I'm sorry, I just needed to vent, and ask for your prayers. And if anyone has any experience w/ the A&A or high Thyroid thing, please let me know. I don't really know what any of this means!!! 
Message edited 4/1/2009 10:31:51 AM.
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Posted 3/27/09 9:09 AM  |
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dajc23
My Loves :)
Member since 1/09 4980 total posts
Name:
Dana
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Re: Girls, I need prayers/advice
i'm going to send you FM
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| Posted 3/27/09 9:10 AM |
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Tulips915
................
Member since 8/08 6851 total posts
Name:
Me
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Re: Girls, I need prayers/advice
Oh no Marisa. I dont know anything about that so I can offer advice, just hugs.
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| Posted 3/27/09 9:13 AM |
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Megan1129
LIF Adolescent
Member since 3/09 515 total posts
Name:
Megan
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Re: Girls, I need prayers/advice
I'm soo sorry you are going through all of this. If you don't mind me asking, since I just joined on here, but how was your boob itching, because mine has been on and off? You can FM me if you feel more comfortable.
Try not to stress just yet. Wait until you see the specialists and find our what they say.
In the past two years, I've seen so many doctors as well, and have been diagnosed with so many different ailments that I go to the doctor regularly as well.
FM me if you ever want to talk.
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| Posted 3/27/09 9:13 AM |
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Jonsgirl04
Love my two girls! xoxo
Member since 9/08 6079 total posts
Name:
Stephanie
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Re: Girls, I need prayers/advice
Awwh Marissa. I do not have any experience with this. My nanny has lupus though. Anyway i just wanted to send some hugs your way and prayers!!  
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| Posted 3/27/09 9:16 AM |
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RisiLeigh
LIF Infant
Member since 11/08 124 total posts
Name:
Marisa
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Re: Girls, I need prayers/advice
Posted by Megan1129
I'm soo sorry you are going through all of this. If you don't mind me asking, since I just joined on here, but how was your boob itching, because mine has been on and off? You can FM me if you feel more comfortable.
Try not to stress just yet. Wait until you see the specialists and find our what they say.
In the past two years, I've seen so many doctors as well, and have been diagnosed with so many different ailments that I go to the doctor regularly as well.
FM me if you ever want to talk.
Thanks, Megan! Well, I guess it was a blessing in disguise that he had me go for the bloodwork b/c of all this but in truth, I REALLY think he was over thinking it and that the itching is really just dry skin and from my bras. On the weekends, I don't wear a bra and I don't itch! Clearly, there's a relation there! So, I guess it was good that I had the bloods done but I really don't think it was related to the itchiness.
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| Posted 3/27/09 9:18 AM |
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Megan1129
LIF Adolescent
Member since 3/09 515 total posts
Name:
Megan
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Re: Girls, I need prayers/advice
Posted by RisiLeigh
Posted by Megan1129
I'm soo sorry you are going through all of this. If you don't mind me asking, since I just joined on here, but how was your boob itching, because mine has been on and off? You can FM me if you feel more comfortable.
Try not to stress just yet. Wait until you see the specialists and find our what they say.
In the past two years, I've seen so many doctors as well, and have been diagnosed with so many different ailments that I go to the doctor regularly as well.
FM me if you ever want to talk.
Thanks, Megan! Well, I guess it was a blessing in disguise that he had me go for the bloodwork b/c of all this but in truth, I REALLY think he was over thinking it and that the itching is really just dry skin and from my bras. On the weekends, I don't wear a bra and I don't itch! Clearly, there's a relation there! So, I guess it was good that I had the bloods done but I really don't think it was related to the itchiness.
Thats what I assumed it was, dry skin because of the winter. It is a blessing that you just happened to get a blood work, who knows how long you would've went without knowing you had to get these things checked. Its better to be safe and knowing whats going on with your body than be totally oblivious.
I had fallen while on vacation a year and a half ago and dislocated my tailbone, because of the pain, I almost fainted. When I came back and went to my dr and told him I fainted, he sent me to a cardiologist. When I went, the heart tests showed that I have a bicuspid aortic valve and I need to get it tested every year to check its status. For 24 years I had not known. I feel safer knowing I have to get it checked and that I am fine.
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| Posted 3/27/09 9:23 AM |
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SusiBee
. . . . .
Member since 3/09 8268 total posts
Name:
S
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Re: Girls, I need prayers/advice
My advice : don't worry until you have to. It will just make you crazy in the interim.
Sounds like so far there are no conclusions yet to your tests, hence the further testing. Sounds like your doctors are trying to be thorough, which is a good thing.
Here's hoping that this turns out to be nothing more than itchy boobs.
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| Posted 3/27/09 9:26 AM |
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maymama
my little loves
Member since 8/08 18453 total posts
Name:
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Re: Girls, I need prayers/advice
first advice, breathe!!
I have hypothyroidism (the autoimmune version, Hashimotos Syndrome) and I also have a plethora of other AI conditions, chronic AI hives, Lupus, Sjogrens and many others exist in my family.
The best thing with any AI is to stay calm and stress free, stress tends to exaserbate AI conditions.
Thyroid issues can totally be controlled by medications and worst case scenerio, they take your thyroid out which is not life threatening or altering in the least.
You will be ok, dont jump to any conclusions, speak with the MDs first and go from there.
FM me if you have ANY questions 
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| Posted 3/27/09 9:41 AM |
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MrsFab
this is bliss.......
Member since 10/08 1234 total posts
Name:
Mb
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Re: Girls, I need prayers/advice
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| Posted 3/27/09 9:46 AM |
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RisiLeigh
LIF Infant
Member since 11/08 124 total posts
Name:
Marisa
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Re: Girls, I need prayers/advice
Posted by mrskparetta
first advice, breathe!!
I have hypothyroidism (the autoimmune version, Hashimotos Syndrome) and I also have a plethora of other AI conditions, chronic AI hives, Lupus, Sjogrens and many others exist in my family.
The best thing with any AI is to stay calm and stress free, stress tends to exaserbate AI conditions.
Thyroid issues can totally be controlled by medications and worst case scenerio, they take your thyroid out which is not life threatening or altering in the least.
You will be ok, dont jump to any conclusions, speak with the MDs first and go from there.
FM me if you have ANY questions
THANK U, Karen!!! I may just pick your brain as I learn more!!!
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| Posted 3/27/09 9:48 AM |
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jennarose023
Jack's gonna be a big brother!
Member since 11/08 7769 total posts
Name:
Jenna
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Re: Girls, I need prayers/advice
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| Posted 3/27/09 9:54 AM |
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kimbalina
Bring on the glitter and bows!
Member since 6/08 15158 total posts
Name:
Kim
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Re: Girls, I need prayers/advice
Marisa!! i am sorry that you are having some medical issues!!
You will be in my thoughts!!!
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| Posted 3/27/09 9:56 AM |
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MissRadiant
Happily Ever After
Member since 9/08 2534 total posts
Name:
N
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Re: Girls, I need prayers/advice
Awww Marisa I am so sorry. Big  's for you. I hope things get better and know that we are all here for you.
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| Posted 3/27/09 9:57 AM |
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Chris516
LIF Infant
Member since 1/09 99 total posts
Name:
Christina
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Re: Girls, I need prayers/advice
Sorry Marisa. But i would just try to relax. Im also in the middle of some testing right now so i know its not easy. Lots of Im sure everything will be ok.
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| Posted 3/27/09 10:05 AM |
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Megs4
LIF Adult
Member since 11/08 1619 total posts
Name:
Megan
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Re: Girls, I need prayers/advice
I don't have any advice other than to do your best not to go crazy worrying while you wait for test results. I am sure that is much easier said than done though!
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| Posted 3/27/09 10:16 AM |
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maymama
my little loves
Member since 8/08 18453 total posts
Name:
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Re: Girls, I need prayers/advice
Posted by RisiLeigh
Posted by mrskparetta
first advice, breathe!!
I have hypothyroidism (the autoimmune version, Hashimotos Syndrome) and I also have a plethora of other AI conditions, chronic AI hives, Lupus, Sjogrens and many others exist in my family.
The best thing with any AI is to stay calm and stress free, stress tends to exaserbate AI conditions.
Thyroid issues can totally be controlled by medications and worst case scenerio, they take your thyroid out which is not life threatening or altering in the least.
You will be ok, dont jump to any conclusions, speak with the MDs first and go from there.
FM me if you have ANY questions
THANK U, Karen!!! I may just pick your brain as I learn more!!!
not a problem!! you know where to find me  
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| Posted 3/27/09 10:20 AM |
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MrsG123
LIF Toddler
Member since 3/09 401 total posts
Name:
Taryn
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Re: Girls, I need prayers/advice
i am so sorry about all this! many hugs try to stay as positive as u can..(i know - easier said than done..)but things will get better...just hang in there! in the meantime many prayers - and please keep us updated!
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| Posted 3/27/09 10:42 AM |
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kris01
LIF Adult
Member since 10/06 1731 total posts
Name:
Kris
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Re: Girls, I need prayers/advice
OK – I know it’s scary but really try not to panic….I had this happen a few years ago to me and I was a mess and it turned out I don’t have Lupus.
I have an auto immune disease - alopecia where I lose my hair in round bald spots usually when I am stressed and the doctors really don’t know why it happens, well I started going to a new pc doctor and she sent me for blood work etc and my A&A levels were high so she said oh you have Lupus & need to go see a Rheumatologist. Well needless to say I was HYSERTICAL and a mess! I went to the doctor and he walked in the room grabbed my hands and said my dear you don’t have Lupus I have no idea what your doctor is talking about!
You’re A&A levels and thyroid levels can up high for a number a reasons - I think mine turned up high because of the alopecia and at the time I was on bc pills and it cause my potassium levels in increases which can cause your A&A levels and thyroid levels to be increased.
Sorry so long! Hope everything works out okl!!
FM me if you need anything!!
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| Posted 3/27/09 11:07 AM |
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HollaDay
LIF Adolescent
Member since 8/08 620 total posts
Name:
Holla!
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Re: Girls, I need prayers/advice
Marissa, what were you tested for with the thyroid?
I have hyperthyroidism and Graves Disease...FM me if you need anything. i'm hear to help or just listen if you need to vent.
it is VERY scary to find out when you have something "wrong" with you. but dont worry you are such a positive person you will get through this!!!
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| Posted 3/27/09 11:08 AM |
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HollaDay
LIF Adolescent
Member since 8/08 620 total posts
Name:
Holla!
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Re: Girls, I need prayers/advice
Posted by mrskparetta
Posted by RisiLeigh
Posted by mrskparetta
first advice, breathe!!
I have hypothyroidism (the autoimmune version, Hashimotos Syndrome) and I also have a plethora of other AI conditions, chronic AI hives, Lupus, Sjogrens and many others exist in my family.
The best thing with any AI is to stay calm and stress free, stress tends to exaserbate AI conditions.
Thyroid issues can totally be controlled by medications and worst case scenerio, they take your thyroid out which is not life threatening or altering in the least.
You will be ok, dont jump to any conclusions, speak with the MDs first and go from there.
FM me if you have ANY questions
THANK U, Karen!!! I may just pick your brain as I learn more!!!
not a problem!! you know where to find me
Karin--who is your endo?? i am looking for a new one.
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| Posted 3/27/09 11:09 AM |
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KimberlyScott
Graceyn=My World <3
Member since 10/08 4173 total posts
Name:
Kimberly
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Re: Girls, I need prayers/advice
I'm sorry that you are feeling scared right now. Just try to stay positive until you have some definate results. It's important that you try to stay calm. I know that it's easier said then done but, we know you can do it! Please keep us posted.
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| Posted 3/27/09 11:11 AM |
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aliska21
LIF Infant
Member since 3/09 66 total posts
Name:
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Re: Girls, I need prayers/advice
honey!!! you will be in my prayers..stay positive! everything will be great!!!! dont think of bad things...!!!!!!!!!!!
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| Posted 3/27/09 11:11 AM |
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JC621
LIF Adolescent
Member since 8/08 616 total posts
Name:
JC
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Re: Girls, I need prayers/advice
Posted by mrskparetta
first advice, breathe!!
I have hypothyroidism (the autoimmune version, Hashimotos Syndrome) and I also have a plethora of other AI conditions, chronic AI hives, Lupus, Sjogrens and many others exist in my family.
The best thing with any AI is to stay calm and stress free, stress tends to exaserbate AI conditions.
Thyroid issues can totally be controlled by medications and worst case scenerio, they take your thyroid out which is not life threatening or altering in the least.
You will be ok, dont jump to any conclusions, speak with the MDs first and go from there.
FM me if you have ANY questions
I could have written this exact post myself. It's completely understandable to feel overwhelmed and frightened now, but stay positive!
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| Posted 3/27/09 11:13 AM |
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RisiLeigh
LIF Infant
Member since 11/08 124 total posts
Name:
Marisa
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Re: Girls, I need prayers/advice
Thank you all SO SO SO much!!!
My next questions will prob be for any recommendations for endocrinologists and rheumatologists. My insurance isn't taken by too many doctors so what I did was printed out the list of docs that take my insurance from the Oxford website. Here's what they gave me for my area:
Endocrinologists:
Howard Brand
Michelle Jardine
David Kugler
Ching-Hui Wu
Teng-Lung Hsu
Rheumatologists:
Mark Bernstein
Ronald Bennett
Sara Johnson
Paul Schulman
Alan Kaell
Max Hamburger
Peter Rumore
Howard Blumstein
Hong Xu
John Ippolito
Mark Tan
Yaqoot Khan
Myron Kleiner
Clara Markovits
I live in the Centereach area but if you have someone you know and love and its in Nassau that is okay too. I would just need to see if they take my Oxford.
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| Posted 3/27/09 11:52 AM |
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