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Going for genetic counseling tomorrow

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babyquestions
LIF Adolescent

Member since 9/05

579 total posts

Name:

Going for genetic counseling tomorrow

My doctor gave me a referral since I am such a nervous ninny about anything that can go wrong, so we are going before we get PG so I can hopefully ease my mind but just reading through the information they sent made me nervous. 1 out of every 2,500 caucasian couples has a child with cystic fibrosis. I really hope they tell us we are fine and don't need further testing, so we can really get the TTC on the road.

Posted 10/19/05 5:23 PM
 
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DebG
Pick a cause & stand up for it

Member since 5/05

18602 total posts

Name:
The cure IS worse!

Re: Going for genetic counseling tomorrow

Best of luck to you! Hope tomorrow goes well.

Posted 10/19/05 5:33 PM
 

FeliciaDP

Member since 5/05

18599 total posts

Name:
Mommy

Re: Going for genetic counseling tomorrow

Good Luck!!!

DH and I will also have to go for genetic counseling as well, due to the M/C I had last month.

... I am in the process of looking for a recommendation either on LI or NYC, as the doctor that I was referred to is no longer accepting new patients

If you like this doctor, could you please let me know (FM is fine)

TIA .. and again, I hope all goes well for you today Chat Icon Chat Icon

Posted 10/20/05 11:02 AM
 

babyhopes
LIF Adolescent

Member since 9/05

733 total posts

Name:

Re: Going for genetic counseling tomorrow

GOOD LUCK! Chat Icon

Posted 10/20/05 3:35 PM
 

doggielover
LIF Toddler

Member since 9/05

391 total posts

Name:
Stacey

Re: Going for genetic counseling tomorrow

good luck!

Posted 10/20/05 3:40 PM
 

leighla
Support Cancer Research

Member since 5/05

16353 total posts

Name:
Lauren

Re: Going for genetic counseling tomorrow

Good luck!!

Chat Icon

Posted 10/20/05 3:54 PM
 

Donna
1 year already!!

Member since 5/05

3360 total posts

Name:
Donna

Re: Going for genetic counseling tomorrow

Good luck!

Posted 10/20/05 3:57 PM
 

dooodles
When you wish upon a star

Member since 5/05

11997 total posts

Name:
Because 2 people fell in love

Re: Going for genetic counseling tomorrow

How did everything go today? How long until you get the results?

Posted 10/20/05 5:59 PM
 

babyquestions
LIF Adolescent

Member since 9/05

579 total posts

Name:

Re: Going for genetic counseling tomorrow

Today we only met with a genetist who reviewed our family history. She suggested I get tested for cystic fibrosis and Fragile X and DH get some kind of blood chromosome test. They are both blood tests. She said there is probably not much to worry about, but if I'm such a worry wart it will put my mind at ease. DH has some issues on his side, which is why I pursued this in the first place.

It was through a referral my GYN gave me for an agency called Genzyme. I met with the genetist at North Queens Hospital (old Booth Memorial).
She said for the blood tests all I do is call my insurance and find out where I can get them done.
I'll let you know what happens when I get my blood tests back. I honestly don't know what I would do if they came back positive.

Posted 10/20/05 6:12 PM
 

DebG
Pick a cause & stand up for it

Member since 5/05

18602 total posts

Name:
The cure IS worse!

Re: Going for genetic counseling tomorrow

I am glad to hear your meeting went well. Did they give any indication of a time frame of when you will receive your results?

Posted 10/20/05 7:09 PM
 

babyquestions
LIF Adolescent

Member since 9/05

579 total posts

Name:

Re: Going for genetic counseling tomorrow

Deb - To be honest, I didn't ask how long it takes for the results to be in. I just assumed however long it takes for blood work results to be in. I'm hoping to call my insurance today or Monday to get the information to set up the blood tests somewhere. When I make the appts. I'll ask how long results usually take and I'll let you know.

Posted 10/21/05 7:04 AM
 

dooodles
When you wish upon a star

Member since 5/05

11997 total posts

Name:
Because 2 people fell in love

Re: Going for genetic counseling tomorrow

Sending you hugs and prayers for no-worry results Chat Icon Chat Icon Chat Icon Chat Icon Chat Icon

Posted 10/21/05 7:13 AM
 

nrthshgrl
It goes fast. Pay attention.

Member since 7/05

57538 total posts

Name:

Re: Going for genetic counseling tomorrow

SIL's chromosome test results were 2 weeks. She called & nagged them down to a few days earlier.

Best wishes for the best results! Chat Icon Chat Icon

Posted 10/21/05 7:18 AM
 

Donna
1 year already!!

Member since 5/05

3360 total posts

Name:
Donna

Re: Going for genetic counseling tomorrow

Not sure if it's the same type of tests but I was able to have a genetic blood workup done by Quest. When I started seeing my RE she sent me for it. I know I got tested for cystic fibrosis, fragile x and some others.

Good luck!

Posted 10/21/05 8:44 AM
 

Suzanne
May the Force Be With You!

Member since 5/05

2083 total posts

Name:
Suzanne

Re: Going for genetic counseling tomorrow

DH and I are going as well for testing next month. We want to make sure everything is ok with us too before we TTC. We have a lot of unanswered questions when it comes to his family history. We won't be TTC until at least next summer but I wanted to see a doc that came recommended to me before we move to NC.

Message edited 10/21/2005 1:19:51 PM.

Posted 10/21/05 1:19 PM
 

Diane
Hope is Contagious....catch it

Member since 5/05

30683 total posts

Name:
D

Re: Going for genetic counseling tomorrow

My friend goes to RSONY and they now do genetic testing on the embryos bfore they get transfered. This is something supposedly new.
She had about 10 fertilize and only 3 were good, the rest were all tested for Down Syndrome.
I think that is wonderful that they do that.

Posted 10/24/05 7:44 AM
 

meganNbobby
Our Family is Complete

Member since 5/05

2774 total posts

Name:
Megan

Re: Going for genetic counseling tomorrow

does insurance pay for this? I wanted to us to get tested becuase DH was adopted from colombia and we have no information at all on his medical history - none -

who should i ask about this? my gyn or gp?

Posted 10/24/05 10:40 AM
 

Diane
Hope is Contagious....catch it

Member since 5/05

30683 total posts

Name:
D

Re: Going for genetic counseling tomorrow

Posted by meganNbobby

does insurance pay for this? I wanted to us to get tested becuase DH was adopted from colombia and we have no information at all on his medical history - none -

who should i ask about this? my gyn or gp?




My place did the blood work prior to my IVF cycle.
My friends had it done on HER embryos before they transferred them back.
They had to pay out of pocket. I think she said it cost $4200.

Posted 10/24/05 2:11 PM
 

babyquestions
LIF Adolescent

Member since 9/05

579 total posts

Name:

Re: Going for genetic counseling tomorrow

I called my insurance today (GHI) and they gave me a list of labs I could go for the bloodwork. According to the woman, all I have to do is pay my $15 copayment.
I have to call the labs tomorrow and set up a time to go.

I'm not pregnant yet, so I don't know if that affects the type of tests and costs.

Posted 10/24/05 3:56 PM
 

meganNbobby
Our Family is Complete

Member since 5/05

2774 total posts

Name:
Megan

Re: Going for genetic counseling tomorrow

wow, i have to call my insurance company (united healthcare) and ask them about it i would just like bloodwork to see whats in his genes

Posted 10/24/05 8:29 PM
 
 

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