| Posted By |
Message |
mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
|
Had a not great dr's appt for Jordan's torticollis today...
We saw Jordan's head specialist today. Last visit was seven weeks ago. Since the last visit, we were working on weaning him off the the TOT collar. About three weeks ago or so, I visibly noticed his tort take a turn for the worse. Really out of nowhere. He'd really been doing well and he suddenly had a noticeable tilt again. I don't know if it's due to teething or working on walking, but it's there. What's weird is he was pretty sick on his birthday and his neck looked fine. This started afterwards.
So, doctor wasn't happy. Wants to see us in a month. We need to get him neck xrays to make sure there is nothing wrong skeletally. He's willing to "give" us the reasoning that Jordan's working on walking now but if he doesn't see an improvement in a month, he wants to send him for Botox shots. I know this is a long way off but he also started talking about surgery at two if he still "actively" has tort.
I am just sick to my stomach right now.
|
Posted 2/15/11 9:35 PM  |
| |
|
Long Island Weddings
Long Island's Largest Bridal Resource |
beanie571
:-P
Member since 5/07 2509 total posts
Name:
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/15/11 9:38 PM |
| |
|
CucumberGirl
You give the best smiles!
Member since 1/09 2398 total posts
Name:
M~
|
Re: Had a not great dr's appt for Jordan's torticollis today...
ugh, i'm so sorry. i hope he is just concentrating on walking and improves soon!!!  
|
| Posted 2/15/11 9:53 PM |
| |
|
allIwant
Love my crazy life!
Member since 1/10 9170 total posts
Name:
|
Re: Had a not great dr's appt for Jordan's torticollis today...
So sorry you are going through this! Very often kids who are learning how to crawl or walk will regress a little in their torticollis. Once he gets more comfortable walking he should start to improve again!
|
| Posted 2/15/11 10:04 PM |
| |
|
nferrandi
too excited for words
Member since 10/05 18538 total posts
Name:
Nicole
|
Re: Had a not great dr's appt for Jordan's torticollis today...
I'm not familiar wth tort, but I hope it was just a little setback and things will get back on the right track this month.
|
| Posted 2/15/11 10:07 PM |
| |
|
dm24angel
Happiness
Member since 5/05 34581 total posts
Name:
Donna
|
Re: Had a not great dr's appt for Jordan's torticollis today...
So Sorry your going through this. praying it gets better before any of those worse case scenarios
|
| Posted 2/15/11 11:12 PM |
| |
|
|
|
Re: Had a not great dr's appt for Jordan's torticollis today...
Poor Zevvy! Hopefully it is just the walking and he will be fine. 
|
| Posted 2/16/11 2:23 AM |
| |
|
skinny
3 boys and a princess!
Member since 11/08 8178 total posts
Name:
Momma
|
Re: Had a not great dr's appt for Jordan's torticollis today...
I'm so sorry!
|
| Posted 2/16/11 5:46 AM |
| |
|
pickles16
Real Estate Professional
Member since 11/07 17227 total posts
Name:
Jen
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 7:09 AM |
| |
|
BaroqueMama
Chase is one!
Member since 5/05 27530 total posts
Name:
me
|
Re: Had a not great dr's appt for Jordan's torticollis today...
I'm so sorry, Miki Did they ever figure out why his tort was so severe? I will keep my fingers crossed that the walking is what's causing the tilt. I could totally see that happening or if he's getting teeth, I could see that happening, too. I'm thinking about you guys
|
| Posted 2/16/11 7:10 AM |
| |
|
Shelly
She's 7!!!
Member since 8/05 14624 total posts
Name:
|
Re: Had a not great dr's appt for Jordan's torticollis today...
Sorry you are going thrugh this.
|
| Posted 2/16/11 7:17 AM |
| |
|
Peainapod
Peanuts are here!
Member since 1/09 13591 total posts
Name:
Diana
|
Re: Had a not great dr's appt for Jordan's torticollis today...
hopefully in 1month it will get better and this is just a little setback.
have you seen a pediatric chiropractor? Im seeing a chiro now which I met through a wellness seminar at my job and they do treat a lot of children for different issues. at the seminar they mentioned birth traumas to the nervous system which can lead to colic and SIDs.
I dont know..before doing surgery maybe this is something you should look into?
|
| Posted 2/16/11 7:46 AM |
| |
|
summerBaby10
let's be nice
Member since 9/07 10208 total posts
Name:
Wifey
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 8:01 AM |
| |
|
jam11308
Member since 11/07 7273 total posts
Name:
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 8:11 AM |
| |
|
labonnevie
sometimes 1+1= 4 <3
Member since 8/09 3869 total posts
Name:
the lucky one
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 8:18 AM |
| |
|
CrankyPants
I'm cranky
Member since 7/06 18178 total posts
Name:
Mama Cranky
|
Re: Had a not great dr's appt for Jordan's torticollis today...
geez, what our poor kids go through
|
| Posted 2/16/11 8:25 AM |
| |
|
MrsA714
Baby #2 is here!
Member since 8/07 8806 total posts
Name:
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 8:26 AM |
| |
|
Ian&EmmesMommy23
My family is complete!
Member since 11/08 12970 total posts
Name:
Diana
|
Re: Had a not great dr's appt for Jordan's torticollis today...
im so sorry hon!! but I'm 99% positive it's just a new milestone. Ian did this all the time. just when i thought the tort was gone, he learned a new skill and was back to tilting. i would give it time before you do anything drastic!
|
| Posted 2/16/11 8:28 AM |
| |
|
lbw
I am ONE !!!!!
Member since 5/07 1560 total posts
Name:
Lisette
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 8:29 AM |
| |
|
mrswask
Pookie Love
Member since 5/05 20229 total posts
Name:
Michal
|
Re: Had a not great dr's appt for Jordan's torticollis today...
Thank you guys so so much for the hugs and FMs. They are so appreciated. I've posted before about my displeasure with the PTs we've seen down here in FL and how our PT in NY (this past summer) was FABULOUS.
I am going to look into a ped. chiro but right now, I can't imagine adding a chiro appt to our 2x a week PT appts (which we have to take him to, they don't come to the house.) I hate not being in NY and not having recs for people.
I would never go and do surgery before exhausting every avenue.
We work so so hard with him and home - bust our butts doing the exercises with him fighting them and crying and us distracting him with tv, etc. It just breaks my heart.
The Dr. said it could be congenital and the neck muscles just grew shorter in utero (vs. shorter because he was cramped inside and they just need to be stretched.) If that's the case, no amount of stretching will help and he will eventually need surgery. I am so sick inside right now.
I know there are parents and babies out there who have severe health and medical problems and I truly count my blessings every day that I have such a wonderful and happy boy. But, between the tort, the reflux, milk allergies, stomach issues - I feel like this poor boy has not gotten a break. I can't even remember a week we've had that we're not running to PT or a dr's appt.
I'm just so tired of this for him and for us :(
|
| Posted 2/16/11 8:45 AM |
| |
|
|
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 8:57 AM |
| |
|
oneday
<3
Member since 5/05 4319 total posts
Name:
Pam
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 9:08 AM |
| |
|
Smileyd17
kids
Member since 5/05 20997 total posts
Name:
Mommy
|
Re: Had a not great dr's appt for Jordan's torticollis today...
Hang in there and I hope that there is some additional help for him.
I think its just a milestone....I was told that this happens and can set them back.
Im a mom of a tort child as well....and ours is pretty severe.
Many 
|
| Posted 2/16/11 9:13 AM |
| |
|
bluekat16
My boys :-)
Member since 3/09 6659 total posts
Name:
Kathy
|
Re: Had a not great dr's appt for Jordan's torticollis today...
|
| Posted 2/16/11 9:14 AM |
| |
|
