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DitD
LIF Adolescent
Member since 1/12 650 total posts
Name:
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Low AMH normal FSH
Last week my doctor told me I had a very low AMH number, of .36, but my FSH number was 5.96. I didn't put too much thought into the AMH because my doctor did not seem concerned.
Then I started to research it myself and found that .36 is a very low AMH. That anything lower then .5 and some RE's tell you to use Donor eggs. I am giving myself a heart attack.
Anyone have experience with low AMH? Anyone have a test come back with a low number, get retested and have it not be as low?
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Posted 10/26/12 1:39 AM  |
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bookworm
Two Little Rosebuds
Member since 8/09 2106 total posts
Name:
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Re: Low AMH normal FSH
I have low AMH (.95) and normal FSH. I am a borderline poor responder, so that's confirmation that the AMH number is real in my case.
Did your doctor do an antral follicle count via ultrasound to check if the AMH was a lab error? AMH is basically a blood test that measures your AFC based on a hormone the follicles produce, so it's an easy way to double check.
Have you done any cycles with stim meds? Your response to stims and the quality/quantity of the eggs and embryos you produce are the real test for a Dx of diminished ovarian reserve.
FM any time if you have questions or need support.
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| Posted 10/26/12 5:39 AM |
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DitD
LIF Adolescent
Member since 1/12 650 total posts
Name:
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Re: Low AMH normal FSH
Posted by bookworm
I have low AMH (.95) and normal FSH. I am a borderline poor responder, so that's confirmation that the AMH number is real in my case.
Did your doctor do an antral follicle count via ultrasound to check if the AMH was a lab error? AMH is basically a blood test that measures your AFC based on a hormone the follicles produce, so it's an easy way to double check.
Have you done any cycles with stim meds? Your response to stims and the quality/quantity of the eggs and embryos you produce are the real test for a Dx of diminished ovarian reserve.
FM any time if you have questions or need support.
Yes my antral follicle count is low, so that in conjunction with the low AMH gives me reason to think the blood test was accurate, but I had them rerun the test today just to be sure.
I haven't done stims yet, only clomid and I respond well to clomid. This is my last IUI cycle, then I will do IVF in January.
The DOR prognosis is really depressing me.
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| Posted 10/26/12 3:54 PM |
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bookworm
Two Little Rosebuds
Member since 8/09 2106 total posts
Name:
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Re: Low AMH normal FSH
I respond well to clomid too, but they have to pump me full of meds to get an IVF off the ground, and I never have frosties. I definitely know how scary DOR is. I've been through the ringer.
To be honest, and this is no judgment on your current doctor, I wish now that I had gone right to Cornell and not wasted precious time with doctors that don't have enough experience or research to treat this Dx properly. Make sure you do the IVF (if you get to that point) at a place that has ways to address egg quality. A cookie-cutter protocol doesn't work for girls with DOR.
FM any time 
Message edited 10/27/2012 4:34:38 PM.
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| Posted 10/27/12 4:30 PM |
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DitD
LIF Adolescent
Member since 1/12 650 total posts
Name:
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Re: Low AMH normal FSH
Posted by bookworm
I respond well to clomid too, but they have to pump me full of meds to get an IVF off the ground, and I never have frosties. I definitely know how scary DOR is. I've been through the ringer.
To be honest, and this is no judgment on your current doctor, I wish now that I had gone right to Cornell and not wasted precious time with doctors that don't have enough experience or research to treat this Dx properly. Make sure you do the IVF (if you get to that point) at a place that has ways to address egg quality. A cookie-cutter protocol doesn't work for girls with DOR.
FM any time
Thanks for your input. My Antral count was 9, which isn't horribly low, especially considering my AMH of .31.
ALL my other tests are great, just the AMH. I think I have downloaded and have read or am going to read every medical journal I can on the topic.
Some of what I have read already gives me hope. I just wish I had known this sooner, I think I would have saved my money on IUI's and gone right for IVF.
My one question, that I can't find an answer to is why a low AMH would cause fertility issues if your quality is good, which mine is. As long as I am ovulating, which I am, then why would my amount matter?
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| Posted 10/27/12 7:42 PM |
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bookworm
Two Little Rosebuds
Member since 8/09 2106 total posts
Name:
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Re: Low AMH normal FSH
Posted by DitD
Posted by bookworm
I respond well to clomid too, but they have to pump me full of meds to get an IVF off the ground, and I never have frosties. I definitely know how scary DOR is. I've been through the ringer.
To be honest, and this is no judgment on your current doctor, I wish now that I had gone right to Cornell and not wasted precious time with doctors that don't have enough experience or research to treat this Dx properly. Make sure you do the IVF (if you get to that point) at a place that has ways to address egg quality. A cookie-cutter protocol doesn't work for girls with DOR.
FM any time
My one question, that I can't find an answer to is why a low AMH would cause fertility issues if your quality is good, which mine is. As long as I am ovulating, which I am, then why would my amount matter?
Well you don't know if the quality is good until you harvest them and watch them grow in the lab, and even then, you're working off a general correlation between healthy, vigorous growth and chromosomal viability with no guarantees.
The idea is that the antral follicles themselves produce the suppression hormone (AMH) that prevents that ovaries from wastefully recruiting more eggs for that cycle from the primordial follicle pool. So if you don't have that many antral follicles, then you're not recruiting more because the ovaries are not producing them as exuberantly as they should, as opposed to the ovaries responding to natural suppression and regulation by the AMH. This also correlates with poor quality even if you ovulate on your own. I also ovulate on my own but most of my eggs save for 2-3 are slow-growers that eventually arrest. But those 2-3 look perfect...but I do not have a baby. But other women who responded worse than I do have babies. It's a gamble with a lot of x-factors.
But as I said in my FM, age is a factor regardless of AMH when it comes to quality.
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| Posted 10/28/12 1:43 PM |
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LInMI
LIF Adult
Member since 7/10 1800 total posts
Name:
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Re: Low AMH normal FSH
Hi, I also have low AMH (.4). IMO the AMH # is a lot more important than the FSH. I was told when you have a low AMH it falsely skews the FSH level lower. That being said I highly recommend seeing an RE ASAP if you aren't already. My doc recommended going straight to IVF since my level was so low. Don't get discouraged!! After hearing my diagnosis I was in shock! I'm in my early 30's, have regular cycles and never would have guessed this was the road I was headed for. That being said, I responded well to stims, had 8 out of 9 eggs fertilize, transferred 2 grade A back, and now if all goes well I should be "graduating" from my RE next week. Stay positive and feel free to FM me at anytime
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| Posted 10/28/12 2:28 PM |
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LInMI
LIF Adult
Member since 7/10 1800 total posts
Name:
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Re: Low AMH normal FSH
PS: don't let any clinic or doc force donor eggs before giving yourself a chance. My RE didn't even mention donor eggs to me because of my age.
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| Posted 10/28/12 2:30 PM |
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